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My Little Experiment

Jenny1972

By Jenny1972
in Coping with Celiac Disease

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Jenny1972 Rookie
Jenny1972
Posted

Got fed up of doctors messing me about. Does she or doesn't she have celiacs so I decided to conduct a little experiment. Been gluten free for 3 month . Had a bread role at lunch time and within 2 hours my bowels exploded. Won't go into details but it wasn't nice. So much for blood tests. Will stick to gluten free dispite what doctors say!!!!

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Canadian Karen Community Regular
Canadian Karen
Posted

Can't get much more definitive that that! Even though I am one of those who has the confirmed bloodwork/biopsy diagnosis, I have come to the realization that the conventional testing for celiac is letting a whole society down - half of the world is gluten intolerant and no test yet shows that..... <_<

NoGluGirl Contributor
NoGluGirl
Posted

Dear Jenny1972,

Yep, I know what you are sayin'! I had negative blood work and biopsies done several years ago. It turn out, I am a Celiac! I have a very violent reaction. I can take up to twelve hours to react, but when it hits, it is bad! I have been gluten free for more than six months now. I have been glutened a lot lately though due to my parents' carelessness. They just think I am being a hypochondriac. They are not taking this illness as seriously as they should.

Sincerely,

NoGluGirl

Jenny1972 Rookie
Jenny1972
Posted
  • Author
Dear Jenny1972,

Yep, I know what you are sayin'! I had negative blood work and biopsies done several years ago. It turn out, I am a Celiac! I have a very violent reaction. I can take up to twelve hours to react, but when it hits, it is bad! I have been gluten free for more than six months now. I have been glutened a lot lately though due to my parents' carelessness. They just think I am being a hypochondriac. They are not taking this illness as seriously as they should.

Sincerely,

NoGluGirl

Felt really rough all weekend with pains in my legs and ankles and sooo tired today. Any idea how long it takes to get unglutened? Experiment was a good idea at the time but one I won't be repeating in a hurry.

Ursa Major Collaborator
Ursa Major
Posted

Jenny, I am sorry you are still feeling bad. Unfortunately, it can take up to two weeks to feel better. I hope it will be a lot less for you.

Still, it was a good idea to try gluten, because now you know that you are definitely intolerant to it, forget about ignorant doctors.

NoGluGirl Contributor
NoGluGirl
Posted
Felt really rough all weekend with pains in my legs and ankles and sooo tired today. Any idea how long it takes to get unglutened? Experiment was a good idea at the time but one I won't be repeating in a hurry.

Dear Jenny1972,

Some people it takes longer than others to recover. At least now you know how sensitive you are so you will not be eager to cheat. I take anywhere between two days to a week to feel better. It varies. I have a violent reaction, too. So, even a microscopic amount makes me terribly sick. Luckily, I have promethazine on hand in case I need it. I hope you recover quickly!

Sincerely,

NoGluGirl

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      Negative biopsy and seeking doctor recs in Los Angeles

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    • trents
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      By trents · Posted

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