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- Scott Adams replied to joleenrae's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3+ bloodwork - endoscopy.. then + bloodwork and another + bloodwork.. next endoscopy??
I lean towards very probably celiac disease due to the two positive tTg-IgA blood tests. Although there are other things that might cause this test to be elevated in certain individuals, the most likely cause by far would be gluten sensitivity. This article might be helpful. It breaks down each type of test, and what a positive results means in terms... -
- Scott Adams replied to dlaino's topic in Coping with Celiac Disease9
Coping with celiac
What is the LCHF diet...low carb high fiber? -
- knitty kitty replied to SaiP's topic in Related Issues & Disorders13Dangerously underweight, Perfect gluten free and insomnia
@SaiP, I noticed that you are eating foods that are high in histamine. Bananas, avocados, spinach, gluten, and tuna are high histamine foods or are histamine liberators. Histamine is released by mast cells in the body as part of the autoimmune reaction to gluten. High histamine foods add to that histamine burden, making clearing histamine difficult... -
- joleenrae replied to joleenrae's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3+ bloodwork - endoscopy.. then + bloodwork and another + bloodwork.. next endoscopy??
The first lab was different because Allina switched which lab they work with in between March and October. But October and January were the same lab. All through Allina but two separate labs. -
- trents replied to joleenrae's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3+ bloodwork - endoscopy.. then + bloodwork and another + bloodwork.. next endoscopy??
Since she is asymptomatic and her first biopsy was negative I would not assume she has developed celiac disease. If her upcoming biopsy shows evidence of mucosal damage you have the firm evidence you need to trigger the gluten-free protocol at the preschool. There are other causes for mildly elevated tTG-IGA levels besides celiac disease. Studies are all...
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By Scott Adams · Posted
I lean towards very probably celiac disease due to the two positive tTg-IgA blood tests. Although there are other things that might cause this test to be elevated in certain individuals, the most likely cause by far would be gluten sensitivity. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. -
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By knitty kitty · Posted
@SaiP, I noticed that you are eating foods that are high in histamine. Bananas, avocados, spinach, gluten, and tuna are high histamine foods or are histamine liberators. Histamine is released by mast cells in the body as part of the autoimmune reaction to gluten. High histamine foods add to that histamine burden, making clearing histamine difficult. Histamine is a helpful neurotransmitter, causing alertness. We wake after sleep because our body produces histamine. BUT, excess histamine causes insomnia. We need vitamins and minerals, like Thiamine, Pyridoxine, Cobalamine, Vitamin C, and magnessium, to help our body break down and clear out histamine. We need Thiamine and the other B vitamins to turn carbohydrates, like white rice, protein and fats into energy and fuel for the body. The more carbohydrates you eat, the more thiamine is needed above normal. More thiamine is needed when physically sick, or emotionally stressed. Losing weight until skin and bones is a symptom of Thiamine deficiency. White rice is stripped of nutrients like Thiamine, when the germ is removed to make it white. Vitamins added to enriched rice can be lost if the rice is washed. If you are increasing your rice consumption, you need to increase your thiamine. The form Benfotiamine has been shown to promote intestinal healing. Healthy fats like olive oil should be included in the diet. Our body likes to use healthy fats as fuel. Do look into a low histamine gluten free diet. -
The first lab was different because Allina switched which lab they work with in between March and October. But October and January were the same lab. All through Allina but two separate labs.
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Since she is asymptomatic and her first biopsy was negative I would not assume she has developed celiac disease. If her upcoming biopsy shows evidence of mucosal damage you have the firm evidence you need to trigger the gluten-free protocol at the preschool. There are other causes for mildly elevated tTG-IGA levels besides celiac disease. Studies are all over the map with this statistic but there is somewhere between a 10% and an almost 50% chance that your daughter will develop celiac disease since she has a first degree relative who is a celiac (her sister). The important thing in this scenario is to continue to monitor the situation via testing and symptoms. You are already doing this so kudos to you and your doctors. But one question I have is, are the blood samples being tested by the same lab in each case? Different labs build these tests a little differently and there is no industry standard. So, to compare her tTg-IGA test scores from one time to the other is only useful if the analysis is being handled by the same lab.
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