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I Don't Know What To Do Long Trying To Find Anwsers

BUGTWIG

By BUGTWIG
in Coping with Celiac Disease

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BUGTWIG Rookie
BUGTWIG
Posted

I am a migraine sufferer. and my whole life have had stomach bowel problems been tested and diaganosed with many things IBS GERD Spastic Colon Never quite getting a fix. Then on a Diet to loose weight I didn't eat bread or processed foods. Then Once I started again I had all the same syptoms cramps bloating running to the bathroom more migraines etc. So I gave up ALL wheat listed in the ingredients. So The Doctor brought up Celiac Spure But said to be tested I would have to start eatting wheat. I said NO way.

Any way in the mean time I have had some weird syptoms and don't know if the can be related. I passed out at work went into shock and was taken by ambulance to the hospital for a 5 day stay. They aren't sure what caused the shock. My potassium levels were really low. I turned elmo red. Since then I have had high levels of serationin in my urine. and my tryptase levels were elevated. I have since seen an endrochronologist and waiting for tests.

I am curious if any of this sound familar to anyone ? does it sound like it is related to celiac?

Any Advice?

I am so frustrated sitting and waiting for tests and answers. I am scared to drive or be alone with my youngest son. I am eating Gluten free and it is frustrating to figure it all out. I was also put on a MSG free diet. I tell you if it doesn't have gluten it has MSG.

Waiting

Jyn

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zansu Rookie
zansu
Posted

Some of the thyroid and etc folk will be along soon.

But even I can tell you that nutritional deficiencies and mal-absorption are key characteristics of celiac. after all, your intestinal lining that takes care of all that might be quite damaged. Stay off gluten (not just wheat, but barley (and malt) and rye). Take whatever supplements they decide you need, just make sure they're gluten-free, and treat the secondary issues until your body has a chance to heal.

you're not alone and there are lots of folks here who can give you first hand data.

sansglutengrl Explorer
sansglutengrl
Posted
I am a migraine sufferer. and my whole life have had stomach bowel problems been tested and diaganosed with many things IBS GERD Spastic Colon Never quite getting a fix. Then on a Diet to loose weight I didn't eat bread or processed foods. Then Once I started again I had all the same syptoms cramps bloating running to the bathroom more migraines etc. So I gave up ALL wheat listed in the ingredients. So The Doctor brought up Celiac Spure But said to be tested I would have to start eatting wheat. I said NO way.

Any way in the mean time I have had some weird syptoms and don't know if the can be related. I passed out at work went into shock and was taken by ambulance to the hospital for a 5 day stay. They aren't sure what caused the shock. My potassium levels were really low. I turned elmo red. Since then I have had high levels of serationin in my urine. and my tryptase levels were elevated. I have since seen an endrochronologist and waiting for tests.

I am curious if any of this sound familar to anyone ? does it sound like it is related to celiac?

Any Advice?

I am so frustrated sitting and waiting for tests and answers. I am scared to drive or be alone with my youngest son. I am eating Gluten free and it is frustrating to figure it all out. I was also put on a MSG free diet. I tell you if it doesn't have gluten it has MSG.

Waiting

Jyn

Welcome Jyn,

I don't have many answers for you, but I can tell you that you will find the support and answers you need here, don't worry. I know very very little about shock and what would cause it - but I do know that lots of people have trouble when they go gluten free because it's such a drastic change. It can be hard to cut out so much and make sure you're still getting enough of the good stuff. Instead of vitamins, which can be hard on your stomach and you can add later when you are more comfortable, make sure you are eating a well rounded diet - lots and lots of protein, and a little fat if you can take it. When my gut is in pain, I eat only rice and chicken - it's a little bit of carbs, a little protein, and I think it's a soothing meal.

Also, about being afraid of driving or being along with your youngest son - don't be too hard on yourself - not only can celiac contribute/cause anxiety and depression, but you have no reason to trust your body right now, of course it's scary! But it will get better, I promise. I do also want to tell you that I used to get terrible, three-day long migranes and I have not had a single one since I went gluten free about a year ago. So hang in there, it may be looking up. :)

Hope you feel better soon.....

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