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Vitamin D Level Way Low ~scared

chgomom

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chgomom Enthusiast
chgomom
Posted
  • Author

Also.....

With this D deficiency....anybody get some blurriness and fatigue???

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holdthegluten Rising Star
holdthegluten
Posted
I'm betting...I get that vitamin D horse pill in my and it should help with alot of these things going on.

CAN YOU BELEIVE...

postive blood work

Osteopenia and Porosis,

deficiencies in zinc, A, D and E

Teeth issues - soft enamel

and DH

6 months gluten free....and the blood work is back to normal, and all my levels that indicated inflamation are normal but all I have is this lingering Zinc and D issue.

That to me says, supplement me and see how that works.

Why the biopsy still.....why do they NEED that.

And...wow...if my D ,level is 8 they better get me something fast,,,,he says he needs to see how much he can put me on.....

ugggggggghhhhhhhhhh

I told my doc i wanted to get a blood test to check my vitamin levels, and he only ordered a B12 lab......What blood test did you get to check all of those vitamins?
Jerri Ward Apprentice
Jerri Ward
Posted
I'm betting...I get that vitamin D horse pill in my and it should help with alot of these things going on.

CAN YOU BELEIVE...

postive blood work

Osteopenia and Porosis,

deficiencies in zinc, A, D and E

Teeth issues - soft enamel

and DH

6 months gluten free....and the blood work is back to normal, and all my levels that indicated inflamation are normal but all I have is this lingering Zinc and D issue.

That to me says, supplement me and see how that works.

Why the biopsy still.....why do they NEED that.

And...wow...if my D ,level is 8 they better get me something fast,,,,he says he needs to see how much he can put me on.....

ugggggggghhhhhhhhhh

I am unable to retain Vitamin D. In the beginning I was taking 50,000 units weekly. I did that for 8 mths. Then my dr. told me I could back it down to 50,000 units once mthly. I have been taking that for a year and a half now. He said that I would probably have to take it forever. Also my iron level has been dangerously low for at least 6 mths. now. My dr. does not know why. He is sending me to another dr. to see if he can find out why I cannot retain iron. It is just one thing after another.

Nancym Enthusiast
Nancym
Posted

If you've got a vit D deficiency I think it is up to you to educate yourself, this is another area doctors are really trailing behind in.

A great place to start is with Open Original Shared Link

It is so important. They're finding a huge link between insufficient D levels and a lot of life-threatening diseases like heart disease and cancer.

Jesse E Rookie
Jesse E
Posted

The primary cause of low vitamin D is low sun exposure.

If you want to raise your vitamin D naturally, go outside at mid-day with as little clothing as possible for as long as you can without getting sunburned. Don't wear sunscreen because this blocks vitamin D absorption.

Slowly increase the amount of time you stay outside until you can stay outside for 1 hour everyday without getting burned.

This will rapidly raise your vitamin D levels without having to use supplements.

CarlaB Enthusiast
CarlaB
Posted

Jesse, good advice, but some of us live up north where it's only 40 degrees (or colder for some)! ;)

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    • Jy11
      Conflicting results

      By Jy11 · Posted

      Would you also agree that being so close to the IgA deficient cut off is significant? We just have been told he’s not as just over into the not deficient category…   thank you so much for all the help so far, it’s been so helpful!
    • Scott Adams
      Conflicting results

      By Scott Adams · Posted

      One study showed that up to 44% of first degree relatives also have celiac disease, so his odds of having it are quite high. Also, if he were not IgA deficient his celiac disease test scores would likely have been much higher because they were based on the IgA antibodies.
    • trents
      Conflicting results

      By trents · Posted

      Statistically, the incidence of IBS and other bowel disorders is higher in the celiac population than it is in the general population. Still, I would take one thing at a time. There is significant reason to believe your son does have celiac disease and there is no nasty prep needed for that endoscopic procedure. Assuming that he does have either celiac disease or NCGS, it is likely that a gluten-free diet corrects his symptoms and there would be no need to pursue a lower GI and it's nasty prep.  I would also add that the immune system of a child his age is not mature. It's in flux. Because of this, celiac disease testing can yield erratic results. And I would also add that some experts believe that NCGS can be a precursor to the development of celiac disease. If this is true, there would seem to be transition phases. I hope you will keep us posted.
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      Conflicting results

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      Thank you, I do feel the likelihood is high which is why I am reluctant to do a colonoscopy as I feel we will find the answer. Whatever the endoscopy says though and even if it were to be negative he will be going gluten free as the positive EMA has to mean something with symptoms and one parent coeliac.  But there is a niggling doubt as I try and make the right choice… I just want him to get better and be happy again! 
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      By Scott Adams · Posted

      As the article mentions: EMA-IgA (endomysial antibodies IgA) Blood Test for Celiac Disease: tTG-IgA (tissue transglutaminase IgA) Blood Test for Celiac Disease: So the likelihood is very high he has celiac disease, and even if the biopsy results turn out negative, I would still consider a gluten-free diet.
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