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Vitamin D Level Way Low ~scared

chgomom

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chgomom Enthusiast
chgomom
Posted
  • Author

Also.....

With this D deficiency....anybody get some blurriness and fatigue???

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holdthegluten Rising Star
holdthegluten
Posted
I'm betting...I get that vitamin D horse pill in my and it should help with alot of these things going on.

CAN YOU BELEIVE...

postive blood work

Osteopenia and Porosis,

deficiencies in zinc, A, D and E

Teeth issues - soft enamel

and DH

6 months gluten free....and the blood work is back to normal, and all my levels that indicated inflamation are normal but all I have is this lingering Zinc and D issue.

That to me says, supplement me and see how that works.

Why the biopsy still.....why do they NEED that.

And...wow...if my D ,level is 8 they better get me something fast,,,,he says he needs to see how much he can put me on.....

ugggggggghhhhhhhhhh

I told my doc i wanted to get a blood test to check my vitamin levels, and he only ordered a B12 lab......What blood test did you get to check all of those vitamins?
Jerri Ward Apprentice
Jerri Ward
Posted
I'm betting...I get that vitamin D horse pill in my and it should help with alot of these things going on.

CAN YOU BELEIVE...

postive blood work

Osteopenia and Porosis,

deficiencies in zinc, A, D and E

Teeth issues - soft enamel

and DH

6 months gluten free....and the blood work is back to normal, and all my levels that indicated inflamation are normal but all I have is this lingering Zinc and D issue.

That to me says, supplement me and see how that works.

Why the biopsy still.....why do they NEED that.

And...wow...if my D ,level is 8 they better get me something fast,,,,he says he needs to see how much he can put me on.....

ugggggggghhhhhhhhhh

I am unable to retain Vitamin D. In the beginning I was taking 50,000 units weekly. I did that for 8 mths. Then my dr. told me I could back it down to 50,000 units once mthly. I have been taking that for a year and a half now. He said that I would probably have to take it forever. Also my iron level has been dangerously low for at least 6 mths. now. My dr. does not know why. He is sending me to another dr. to see if he can find out why I cannot retain iron. It is just one thing after another.

Nancym Enthusiast
Nancym
Posted

If you've got a vit D deficiency I think it is up to you to educate yourself, this is another area doctors are really trailing behind in.

A great place to start is with Open Original Shared Link

It is so important. They're finding a huge link between insufficient D levels and a lot of life-threatening diseases like heart disease and cancer.

Jesse E Rookie
Jesse E
Posted

The primary cause of low vitamin D is low sun exposure.

If you want to raise your vitamin D naturally, go outside at mid-day with as little clothing as possible for as long as you can without getting sunburned. Don't wear sunscreen because this blocks vitamin D absorption.

Slowly increase the amount of time you stay outside until you can stay outside for 1 hour everyday without getting burned.

This will rapidly raise your vitamin D levels without having to use supplements.

CarlaB Enthusiast
CarlaB
Posted

Jesse, good advice, but some of us live up north where it's only 40 degrees (or colder for some)! ;)

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      Welcome to the forum, and thank you for sharing your detailed experience. It sounds like you’ve been through a lot over the past several months, and it’s understandable to feel frustrated after navigating unclear diagnoses and conflicting advice. Since you’ve found relief with a gluten- and corn-free diet, it might be worth continuing that approach for now, especially given your current commitments to culinary classes. You could consider working with a knowledgeable dietitian or a gastroenterologist who specializes in food intolerances and celiac disease to explore potential intolerances or other conditions without immediately reintroducing gluten. If confirming celiac disease is important for your long-term health management, you could plan for an endoscopy during a less busy period, ensuring you follow the gluten challenge protocol beforehand. In the meantime, prioritizing your well-being and avoiding known triggers seems like a practical step. Always advocate for yourself with doctors, and seek second opinions if needed—your health concerns are valid. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
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