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- dixonpete commented on dixonpete's blog entry in Pete Dixon3An early incubation and inoculation
When unprotected by hookworms I strongly associate any gluten exposure with wanting to pass out, wanting to throw up/actually throwing up, and total bowel evacuation, but I'm actually seeing my doctor in an hour or so, so I'll put the endoscopy question to him. What other blood tests do you recommend? -
- Travel Celiac posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0Test says no, but body says Yes?
New here, and came for answers to this. I was diagnosed in the Summer of 2007, at the same time two of my kids also tested positive. Actual doctor, actual tests. Have lived as clean as possible for 17 years, with the inevitable accidents (and symptoms and recovery), none recent, thankfully. I have accepted that I am celiac and have lived accordingly – ... -
- Matt13 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0Can food allergies like milk and soy flatten villi?
Hi Guys, How are u? I am still in the middle of "the storm" and recently i did repeated endoscopy but for some reason it was partially ok and partially not(due to bad handling with tissue samples). So some of the doctors suggest to repeat gastroscopy...and some do not.... Did anyone repeated gastroscopy due to bad taking of the histology tissue samples... -
- Scott Adams commented on dixonpete's blog entry in Pete Dixon3An early incubation and inoculation
You say "Consumption of gluten continues to have no effect," but when was your last endoscopy/biopsy? Without doing a regular biopsy, there is no way for you to be sure that eating gluten has no effect on your health. -
- Scott Adams replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8
Is it gluten?
@Woodster991, were you eating lots of daily gluten in the 6-8 weeks leading up to your blood test for celiac disease? If not, then your results could be false negative. Many of your symptoms are identical to mine before I was diagnosed, with the exception of constipation. This article might be helpful. It breaks down each type of test, and what a...
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By Travel Celiac · Posted
New here, and came for answers to this. I was diagnosed in the Summer of 2007, at the same time two of my kids also tested positive. Actual doctor, actual tests. Have lived as clean as possible for 17 years, with the inevitable accidents (and symptoms and recovery), none recent, thankfully. I have accepted that I am celiac and have lived accordingly – as have my now-grown kids. Last week, along with loads of other tests, my primary ordered a Celiac Disease Antibody panel and I just saw the results. The summary stated "no antibodies detected," although my IgA total was quite high at 425. The Tissue Transglutaminase IgA was less than <1.0. My question is whether antibodies would be found in my body after all this time living gluten-free? To be clear, if I get gluten and do NOT know it, I will get sick later no matter what. So any psychological element is right out of it; I get nailed every time if there's gluten in my food. Later, we will trace everything and find it. Small wonder I work so hard to keep gluten out of my diet. I am a senior citizen, and watch my health very carefully. But now this test seems to indicate I don't have celiac disease... or do I? LIke the title says, the test says no, but my body says yes and has for 17 years. Any thoughts on what's going on? Happy to answer question. Thank you. -
Hi Guys, How are u? I am still in the middle of "the storm" and recently i did repeated endoscopy but for some reason it was partially ok and partially not(due to bad handling with tissue samples). So some of the doctors suggest to repeat gastroscopy...and some do not.... Did anyone repeated gastroscopy due to bad taking of the histology tissue samples? And also i cannot find this answer....can soy or milk/dairy products cause flatten villi? Thanks in davance!
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By Scott Adams · Posted
@Woodster991, were you eating lots of daily gluten in the 6-8 weeks leading up to your blood test for celiac disease? If not, then your results could be false negative. Many of your symptoms are identical to mine before I was diagnosed, with the exception of constipation. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. -
By Scott Adams · Posted
Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. -
By Scott Adams · Posted
Welcome to the forum @Mantooth, your symptoms are very common in people with undiagnosed celiac disease (I had most of your symptoms as well), and this article talks about the various symptoms of celiac disease: When you were tested in the past for celiac disease were you on a gluten-free diet? In order to properly test anyone for celiac disease you need to be eating lost of gluten everyday for 6-8 weeks before being screened, otherwise your results could be false negative. Feel free to share your old blood test results if you have them. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.
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