Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anxious About Going On Vacation


anemic

Recommended Posts

anemic Rookie

Hello everyone! This forum has become a tremendous source of support for me, even my 5 year son says "go talk to your celiac friends on the computer" when we sees I'm feeling frustrated.

My Mom and I are going to New york City for 5 days, we have been planning this dream trip for months. I am very anxious about eating out for this long so I've got my restaurant cards laminated and have a list of restaurants that have gluten-free menus. We have made dinner reservations at 4 restaurants I have always wanted to go to- I'm a bit of a foodie and I specified on the reservation- NO GLUTEN PLEASE!

For me the problem is that I don't have the GI symptoms- I have very bad anemia instead. I am so scared that I will have gluten by accident and not know it. Likewise, my hemotologist said that in time I will probably begin to have GI symptoms if I have gluten by accident. Has this ever happened to anyone? Also, as I write this my kids are playing playdough- should I get rid of playdough, glue etc. I just found out about gluten-free make-up last night, it really hadn't occured to me to get rid of my makeup. Do all of you live in gluten-free households? My husband and kids are still eating gluten and I'm alwys nervous as I'm cleaning up bagel and cereal bar crumbs.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular

Oooo, I would say that all the gluteny food is more of a danger to you than Play-do. Perhaps get a separate toaster for you and designated cutting board? That way none of your food will have to touch where their food did. As for Play-do and things, just scrub your hands extra special till they're red and you should be safe, I think...... I've never had a problem with things like that, but I'm much less sensitive than a lot of people on the board, might want to wait for their feedback. I definitely get GI symptoms, but they're harder to trigger in me than most celiacs, it seems.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,299
    • Most Online (within 30 mins)
      7,748

    Lozzaka20
    Newest Member
    Lozzaka20
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Raquel2021
      Yes stress can .make the pain worse. That being said it is taking years for my body to heal. I am not able to eat out as 98 % of restaurants do not know how to cook for celiacs.  I only eat out on special occasions. Any time I eat gluten I feel there is a tourch going through my digestive system specifically in the area you have mentioned.  Like where the deudenal is . I am very sensitive to cross contamination so any small amount of gluten makes me sick.
    • trents
      @Ems10, celiac diagnosis normally involves two steps. The first one is serum antibody testing which you may have already have had done and are waiting on the results. The second step involves and endoscopy (aka, gastroscopy) with biopsy of the small bowel lining. This second step is typically ordered if one or more antibody tests were positive, is a confirmation of the serum antibody testing and is considered the gold standard diagnostic test for celiac disease. Now hear this, you should not be eating gluten free weeks or months in advance of either kind of testing. Prematurely going on a gluten free diet can and will sabotage the results of the endoscopy/biopsy should you get a referral to a GI doc who would want to do that. Eliminating gluten from the diet causes causes inflammation to subside which allows the small bowel ling to heal such that the damage they would be looking for is no longer there.
    • Scott Adams
      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.  
    • Scott Adams
      It might make sense for you to find out if they've run a celiac disease test on you, and if not, consider planning for it.
    • Ems10
      Thanks for your reply! I’m really not too sure, the doctor just took a few tubes of blood & that’s all I know 🥹
×
×
  • Create New...