Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Now Dairy?

TinkerbellSwt

Recommended Posts

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

I have just had a horrible Easter. I ended up spending the day in bed, with massive upper stomach pain and nausea. I thought I must be getting sick. I have never felt this before, at least not celiac related since the beginning when I was first diagnosed. I havent felt nausea as a gluten affect in over a year. Now, the dairy thing.. I am not ready for this.. I am at an emotional break down phase.. I ate a special yogurt thing from Iceland this morning for breakfast, very creamy, very dairy. Then for lunch I had a small gluten free cheese pizza, and a tiny piece of cheesecake, we were having a late Easter dinner.

I wasnt feeling good, a sore throat and a headache, so I laid down twice to try and feel better, didnt want to miss Easter. Then the second time, I woke up after a short nap, with pain.. so much pain.. in my upper stomach, gluten always hits me lower stomach, without fail. Then the nausea hits.. omg, I must have a stomach flu..

My mom came and took Colin to dinner with the family and me and Gary stayed home. I remembered that I had reglan in my dresser from my previous doctor who swore I didnt have celiacs and that reglan would calm the nausea down, needless to say, the reglan didnt work for that.

but I took one today, and slowly I began to feel better, I was able to come downstairs and see Colin all dressed up in his Easter outfit.. then I realize, I am major constipated...

Could it have been the dairy?? once I fixed the constipation problem.. voila, I am better.. missed dinner, but they brought a plate home to me...

help anyone???

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RiceGuy Collaborator
RiceGuy
Posted

One way to find out would be to avoid all dairy for a few weeks, then try some and see how it goes. I wouldn't think it should take very much dairy to cause a noticeable reaction if it's the cause of the symptoms you describe. So hopefully you won't need to have very much, and any symptoms might then be manageable, yet definitive.

TinkerbellSwt Collaborator
TinkerbellSwt
Posted
  • Author

Thanks, will try that. I had a lot of dairy yesterday as you saw on my post of what I ate that day. Later in the day, I had chicken with goat cheese on it... and I was fine. I havent had any dairy today and feel fine, just sick.. head congestion kind.. sore throat.. sicky... just got out of bed! ahhh, days when the daddy is home, spoiled!

rsm Newbie
rsm
Posted

I have been gluten free for 4 weeks tomorrow, feeling much better but I can not handle dairy in any quantity over a teaspoon or two. I guess thats normal until you get healed up a little bit.

TinkerbellSwt Collaborator
TinkerbellSwt
Posted
  • Author

yes, without a doubt that is normal. I experienced that when I first went gluten free, its been over a year now.. cant believe that, just feels like this is the way it has always been.. I was lucky.. I took to the diet easily and completely right away... never have cravings for gluten filled foods nothing.. even when everyone around me is eating it.. nah.. maybe its just b/c of the getting sick thing.. who knows? but now after over a year.. to hit the dairy thing.. taking me by surprise.. now I am getting glum about it.. not the gluten.. that is fine.. just the dairy thing...

anyone know?? does dairy do damage like gluten does to our system? I admit I never really read up on it, b/c I never experienced a problem.. I mean if I cant have it, I cant.. I will have to learn to deal with it.. b/c yesterday was NOT fun... but does it hurt our villi or anything??

Lisa Mentor
Lisa
Posted

Jumping in here and I'm not absolutely certain....My understanding is that dairy will cause symptons such as gluten, but will not do villi damage as gluten does.

TinkerbellSwt Collaborator
TinkerbellSwt
Posted
  • Author

Thanks Momma.. you have always been quick to help and share what you know.. you have no idea how much that means to me.. you are a credit to this board!!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

:D

Thanks Momma.. you have always been quick to help and share what you know.. you have no idea how much that means to me.. you are a credit to this board!!!!

:):);)

TinkerbellSwt Collaborator
TinkerbellSwt
Posted
  • Author

Ok, dairy experiment last nite... I guess I failed. My b/f gets Mickey D's every Monday nite usually, he bowls and gets home late and that is the day I make pasta and all the stuff he wont eat but me and Colin do... so he does his usual, brings me home a vanilla shake, sweet of him eh?

So, I drink not even half of it.. its actually too late at nite, too heavy.. never can finish it.. sooo, upstairs reading, the bubbles start in the gut.. lots of gas, then the D, just once, which is what I usually get when I havent gotten a major glutening or anything.. I am not sure if its the dairy, or did a crumby hand touch the outside of the cup and voila, in my mouth..

So, staying completely away from dairy today.. and so far I feel fine..

Judyin Philly Enthusiast
Judyin Philly
Posted

HI STEPHANIE

GLAD YOU FOUND CHOP...PREVIOUS POST.

I FOUGHT TOOTH AND NAIL AGAINST GIVING UP DAIRY/CASEIN BUT ALAS.......................I FEEL SOOOOOOOOO GOOD 7 WEEKS D/C FREE.

TRY TO GIVE IT A FULL WEEK AND I'LL BET YOU LIKE THE WAY YOU'LL FEEL.

HUGS

JUDY

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,392
    • Most Online (within 30 mins)
      7,748
    Steve greenbaum
    Newest Member
    Steve greenbaum
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.9k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • NavyMom
      I’m terrified it’s too late for me😭

      By NavyMom · Posted

      Hi CathiJean, Wipe those tears my friend.  Finding out that you have celiac just gave you the cheat code on how to start feeling better!  It may feel like a loss right now, but honestly within 6 months you will start feeling better.  Within a year you will look back and wonder how in the world did I survive feeling like that for what feels like a lifetime?  You mentioned 15 years, that's about how long I have been really ill as well.  I had told every doctor I saw that I kept getting sick, infections, hair loss, joint pain, etc. and nobody would listen to me until I turned 45.  I went in for a colonoscopy and the doc says how often do you have bowel movements and I said usually between 10-15 times a day.  Suddenly I had someone actually listen to me and the testing began.  What I can tell you is use this forum, talk to peers, read everything you can about how to gluten-free your kitchen, encourage your family to participate in your journey (trust me they love you enough to make the effort), how to order food in restaurants, and how to avoid cross contamination.  Accept that you will make mistakes and allow yourself grace as you implement your new normal and have a clear understanding that going gluten free will begin healing your body in ways that you will not even begin to understand until you actually do it.  So, have faith that the nutrient deficiencies that you are probably experiencing right now can be corrected and you are on a bright path to feeling SO much better.  Think about how incredible your mom journey is about to become as you begin to feel better!!  Your kids are going to be amazed at your energy levels, ability to play and go do stuff...you are leveling up knowing that you have Celiac.  Knowing gives you power my friend, harness it and have gratitude that it was discovered...even if the docs missed it - you know now and keep moving forward.  You got this!! 
    • trents
      Negative biopsy and seeking doctor recs in Los Angeles

      By trents · Posted

      If you have been eating the gluten equivalent of 4-6 slices of wheat bread daily for say, 4 weeks, I think a repeat blood test would be valid.
    • englishbunny
      Negative biopsy and seeking doctor recs in Los Angeles

      By englishbunny · Posted

      it did include Total Immunoglobin A which was 135, and said to be in normal range. when i did the blood test in January I would say I was on a "light' gluten diet, but def not gluten free.  I didn't have any clue about the celiac thing then.  Since then I have been eating a tonne of gluten for the purpose of the endoscopy....so I'm debating just getting my blood test redone right away to see if it has changed so I'm not waiting another month...
    • trents
      Negative biopsy and seeking doctor recs in Los Angeles

      By trents · Posted

      Welcome to the forum, @englishbunny! Did your celiac panel include a test for "Total IGA"? That is a test for IGA deficiency. If you are IGA deficient, other IGA test resultls will likely be falsely low. Were you by any chance already practicing a reduced gluten free diet when the blood draw was done?
    • englishbunny
      Negative biopsy and seeking doctor recs in Los Angeles

      By englishbunny · Posted

      I'm upset & confused and really need help finding a new gastro who specializes in celiac in California.  Also will welcome any insights on my results. I tested with an isolated positive for deamidated IGA a few months ago (it was 124.3, all other values on celiac panel <1.0), I also have low ferritin and Hashimotos. Mild gastro symptoms which don't seem to get significantly worse with gluten but I can't really tell... my main issues being extreme fatigue and joint pain. The celiac panel was done by my endocrinologist to try and get to the bottom of my fatigue and I was shocked to have a positive result. Just got negative biposy result from endoscopy. Doctor only took two biopsies from small intestine (from an area that appeared red), and both are normal. Problem is his Physician's Assistant can't give me an answer whether I have celiac or not, or what possible reason I might have for having positive antibodies if I don't have it. She wants me to retest bloods in a month and says in the meantime to either "eat gluten or not, it's up to you, but your bloodwork won't be accurate if you don't" I asked if it could be I have early stage celiac so the damage is patchy and missed by only having two samples taken, and she said doctor would've seen damaged areas when performing endoscopy (?) and that it's a good sign if my whole intestine isn't damaged all over, so even if there is spotty damage I am fine.  This doesn't exactly seem satisfactory, and seems to be contrary to so much of the reading and research I have done. I haven't seen the doctor except at my endoscopy, and he was pretty arrogant and didn't take much time to talk. I can't see him or even talk to him for another month. I'm really confused about what I should do. I don't want to just "wait and see" if I have celiac and do real damage in the meantime. Because I know celiac is more that just 'not eating bread' and if I am going to make such a huge lifestyle adjustment I need an actual diagnosis. So in summary I want to find another doctor in CA, preferably Los Angeles but I don't care at this stage if they can do telehealth! I just need some real answers from someone who doesn't talk in riddles. So recommendations would be highly welcomed. I have Blue Shield CA insurance, loads of gastros in LA don’t take insurance at all 😣
×
×
  • Create New...