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- RMJ replied to Toaster's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8What might this EMA result mean?
g/L, a weight per volume unit, would be a very unusual unit for a celiac specific (EMA) test. 1.24 g/L would be in the normal range if this was a TOTAL IgA test. Best to ask the doctor.- 1
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- Lieke posted a topic in Doctors0Searching for good MD/PCP in Portland ME Area
Hi Hi! I am looking for a PCP in the Portland ME area. I have been dealing with Celiac disease for 30 years. My specialist Celiac MD is in Boston, but I want somebody closer by. Am thinking of an MD working in functional medicine/integrative medicine who is willing to ‘walk the journey’ with me. Despite a strict gluten-free diet, I still have challenges, am... -
- knitty kitty replied to Mnofsinger's topic in Related Issues & Disorders4Food Tasting Salty
Part of the body's immune reaction to gluten is to release histamine. This tastes salty, just like tears and snot. -
- knitty kitty replied to aperlo34's topic in Related Issues & Disorders4
Eye irritation 2.5 months into gluten free diet
I've had dry eye symptoms. The eye drops did not help me. What did help was making sure I was consuming Omega Three fats like flax seed oil and olive oil, and taking essential B vitamins, especially Riboflavin, Thiamin, and Vitamin C, as well as Vitamin A, one of the fat soluble vitamins. Newly diagnosed Celiac can have trouble absorbing fats and...- eyes
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- trents commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease60Celiac Disease Blood Antibody Tests
Not that long. More recent guidelines are saying at least 10g of gluten (equivalent of 4-6 slices of wheat bread) for at least two weeks before either the blood draw or the biopsy. However, just to be sure I would extend that to 4 weeks.- accurate
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g/L, a weight per volume unit, would be a very unusual unit for a celiac specific (EMA) test. 1.24 g/L would be in the normal range if this was a TOTAL IgA test. Best to ask the doctor.
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Hi Hi! I am looking for a PCP in the Portland ME area. I have been dealing with Celiac disease for 30 years. My specialist Celiac MD is in Boston, but I want somebody closer by. Am thinking of an MD working in functional medicine/integrative medicine who is willing to ‘walk the journey’ with me. Despite a strict gluten-free diet, I still have challenges, am ‘super sensitive celiac’ with at time cross contact issues when going out to dinner. any suggestions? much appreciated! lieke
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By knitty kitty · Posted
Part of the body's immune reaction to gluten is to release histamine. This tastes salty, just like tears and snot. -
By knitty kitty · Posted
I've had dry eye symptoms. The eye drops did not help me. What did help was making sure I was consuming Omega Three fats like flax seed oil and olive oil, and taking essential B vitamins, especially Riboflavin, Thiamin, and Vitamin C, as well as Vitamin A, one of the fat soluble vitamins. Newly diagnosed Celiac can have trouble absorbing fats and absorbing B vitamins. Most gluten free processed foods contain saturated fats which the body can't utilize. Gluten free processed foods are not enriched with vitamins like gluten containing products. The eyes make a film of healthy omega three fats which keeps the eyes lubricated. Insufficient omega threes can show up as dry eyes. Most newly diagnosed Celiac are low in Vitamin D, as well as Vitamin A, both fat based vitamins. Thiamin Vitamin B 1 and Riboflavin B 2 are needed for eye health and optic nerve health. Taking a B Complex vitamin supplement is beneficial. Since the B vitamins are water soluble, any excess that the body doesn't need is excreted easily in urine. The gluten free diet is low in essential B vitamins because gluten free processed foods that replace gluteny breads are not required to have vitamins and minerals added to them in order to replace vitamins and minerals lost in processing as is required with gluten containing products. Other things that are helpful is to refrain from using highly perfumed products (hair care, body washes, deodorants, room fresheners, cleaning products, etc.). These can dry out the eyes, too. Staring at computer screens can be detrimental because you STARE and don't blink. The tear ducts that keep the eyes lubricated are in the corners of the eyes. Take breaks from staring at the computer screen. Look out of the corners of your eyes to the right and blink several times, then look to the left and blink to help the tears spread over the whole eye. My eyes have sustained permanent damage because of nutritional deficiencies. My ophthalmologist and my doctors did not connect any of my health problems with nutritional deficiencies which occurred with undiagnosed Celiac Disease. My optic nerve shuts down and I lose my vision if I spend too much time looking at computer screens, led lights, and TV. My vision goes gray and dim. It's much worse than "optic snow". It can take hours or days for my vision to return. My ophthalmologist said my vision might not come back from that sometime. My ophthalmologist said the flash rate, refresh rate, is registered by the optic nerve which gets over stimulated and shuts down. The optic nerve uses lots of Thiamine. Thiamine insufficiency will cause permanent optic nerve damage unless corrected promptly. My thiamine insufficiency/deficiency was not corrected promptly and I have this permanent damage and light sensitivity. I take Benfotiamine, a form of Thiamine that also is beneficial for healing the intestinal tract. Riboflavin, Pyridoxine B 6, and Vitamin A are also needed for eye health. Thiamine insufficiency can also cause anxiety. Thiamine and magnesium will relieve muscle cramps. Talk to your nutritionist and doctor about supplementing with essential vitamins and minerals while your intestines are recovering. Hope this helps! -
UPDATE I've been asked for an update by someone who sent a PM, but It's best to post health info publicly because this means fellow Mods can make sure I'm staying on the straight and narrow path with any advice I'm giving out! Alex... Yes, my symptoms did slowly improve. They started around October, from memory. Approaching Christmas I remember the feeling as if there were feathers irritating my chest in my lower throat and in my lungs, and things like scented candles made things even worse. I had a endoscopy and they found nothing wrong, I also had a chest X-Ray because of the cough which lasted more than six weeks and nothing showed. In the end I think the end it settled because I was doing the following: following a reflux/gastritis diet (you can find lots of these diets on line, which focus on a low fat, low acidndiet, avoiding spices etc, avoiding alcohol and coffee etc) not eating three hours before I went to bed, which means going to bed with an empty stomach sleeping with a wedge pillow, which I still do, five years on... taking Gaviscon Advanced before bedtime, and after meals (not much, just a large teaspoon) using a blue Salbutamol inhaler, I think it was two puffs in the morning and two puffs at night. I felt a lot better after about three or four months. I then only used the inhaler and Gaviscon when I had to, if I started to feel my chest was getting irritated again. I find keeping on top of reflux symptoms the way forward. My gastroenterologist told me that the cough was to do with reflux/gasses in the gut coming up that can irritate the throat and airways and the fact I noticed improvement when using Gaviscon showed that that was what was causing it, because it provides a barrier that stops this happening. From the Gaviscon UK website: "It creates a protective barrier or raft over the Stomach contents (which is mostly acid, but also pepsin and bile)." https://www.gaviscon.co.uk/#:~:text=It creates a protective barrier,water and other neutral substances. This protective barrier stopped the contents of my stomach from coming up to irritate my throat, as I understand it, and allowed any irritation in my throat to settle. I do still take Gaviscon if I eat a late meal but not every day. I hope this helps. Do come back to me on this thread if I can help further. Cristiana
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