Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nerve Issues And Diet?

daniella

By daniella
in Coping with Celiac Disease

Recommended Posts

daniella Newbie
daniella
Posted

About 2 months ago I developed a severe pain in my inner ankle/foot area and within a week or so was in the worst pain of my life. I have been in bed most of 6 weeks. I first thought it was an injury and had bone scans,xrays but it turned out not. I was reffered to a neurologist and was given emg tests and now have an mri on sat. I have sharp pains in my foot and tingling,numbing. I can barely walk and am in aircast when I do. I was also given a nerve block shot and am on nerve meds along with vicadin for pain. Anyhow I have been tested in the past for celiec and it didn't show but I have a lot of the symptoms including very high liver enzymes,low white blood count,bloating and cramping,usually constipated but when I go its a lot, and now this nerve issue. Before this nerve issue I always had sore joints and pains. I'm in my late 20's. I'm under the care of 3 plus docs right now but was wondering if anyone had any input and found a wheat free diet to help. Thank you and I hope this was the proper place to post.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GeoffCJ Enthusiast
GeoffCJ
Posted
About 2 months ago I developed a severe pain in my inner ankle/foot area and within a week or so was in the worst pain of my life. I have been in bed most of 6 weeks. I first thought it was an injury and had bone scans,xrays but it turned out not. I was reffered to a neurologist and was given emg tests and now have an mri on sat. I have sharp pains in my foot and tingling,numbing. I can barely walk and am in aircast when I do. I was also given a nerve block shot and am on nerve meds along with vicadin for pain. Anyhow I have been tested in the past for celiec and it didn't show but I have a lot of the symptoms including very high liver enzymes,low white blood count,bloating and cramping,usually constipated but when I go its a lot, and now this nerve issue. Before this nerve issue I always had sore joints and pains. I'm in my late 20's. I'm under the care of 3 plus docs right now but was wondering if anyone had any input and found a wheat free diet to help. Thank you and I hope this was the proper place to post.

I had nerve issues in my feet and hands, for 7-10 years. Tingling and numbness. It doesn't sound as severe as yours, mine is rarely debilitating, though on occasion it makes walking or doing simple manual tasks very difficult or uncomfortable.

I have seen some improvement in frequency since going gluten free 4 months ago, but not much improvement in severity. I am still experiencing some GI issues, I'm trying to eliminate corn now, and am starting to wonder about diary.

Geoff

RiceGuy Collaborator
RiceGuy
Posted

Two things in particular have helped me greatly with nerve function and such. A sublingual methylcobalamin supplement (vitamin B12), and a magnesium supplement. I recommend them most highly.

JNBunnie1 Community Regular
JNBunnie1
Posted

I have to bring something up that's very unpleasant, however unlikely. Has any of your doctors considered MS?

daniella Newbie
daniella
Posted
  • Author

Thank you for your replies. I feel very lonely,confused,and scared along with the pain. Thank you for the suggestions and personal experience. I have not been tested I don't think for ms. Unless that would show in my mri tomorrow. I did have bone scan,emg,and doppler,xrays and complete blood work. I'm very frustrated with docs at this point because one sends me to another or like the neurolgist who sent me to pt that overstretched me and now I'm in worse pain then before and why I started to take vicodin. I'm very concerned that all the waiting to get in for tests or for the doc to order more after waiting to see if the meds help or what the previous test shows is making things worse. I'm trying to not get ahead. On the note of stomach issues like last night I was up all night with cramping,bloating and feeling like I need to go.Also would it make a difference if not intolerant but sensitive if you just limit but not take away? Thank you again its very appreciated.

marciab Enthusiast
marciab
Posted

Your digestive issues could be from the Vicodan. All pain meds tear up my stomach. And make me feel like I am disconnected.

I hate it when doctors make me feel worse. I have pain in my right hip and foot from a herniated disk, but the excercises the PT has me doing actually make it feel better, not worse. Did your PT help you with these to make sure you were doing only the ones that did not cause you pain ? Lite stretching excercises are best.

Rotating ice and heat, 20 minutes on and 20 minutes off is actually better for pain than most drugs.

Gluten lite will still cause problems for a lot of people. I can't have any gluten whatsoever or else I will get my myoclonus and insomnia back.

Marcia

daniella Newbie
daniella
Posted
  • Author

Thanks well my stomach symptoms were before the meds but I do agree it has made it worse. I always though that celiec disease came with more diareah and I'm so constipated but when I do go its a lot and I feel drained like again I was up all night with such stomach bloating and still constipated.This is regardless of fiber intake. I saw a nutritionist because I eat a lot and though I don't feel hungry I feel malnurished if that makes sense. I have a bug appetite though regardless of hunger. As for pt actually I saw another doc yesterday and for my issue it aggrevates it. I had my mri today so will see and a nerve shot yesterday. If the next set of shots doesn't help and these tests don't show anything they think they will do surgery to release a nerve. So sick of this and it really teaches you how health is so important.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,721
    • Most Online (within 30 mins)
      7,748
    DonnaKEllis
    Newest Member
    DonnaKEllis
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • nanny marley
      Help with tests

      By nanny marley · Posted

      I have recently had tests for calprotein in a fecal test has come back apparently high at 2500 and flagged up  stage 3a GKD and GFR  59 and 95 on the serum creatinine the test I was sent for also for milk allergy and celiac hasn't come back yet because it's had to be sent off to a different place I was just wondering if anyone had these addition tests going threw ceilac testing any help would be great 
    • Julie Max
      Safe and Forbidden lists

      By Julie Max · Posted

      As far as I know, miso paste is gluten-free and should be added to the Safe List.  And, shouldn't soy sauce be on the Forbidden list?
    • knitty kitty
      Test says no, but body says Yes?

      By knitty kitty · Posted

      @PlanetJanet, Sorry to hear about your back pain.  I have three crushed vertebrae myself.  I found that a combination of Thiamine, Cobalamin and Pyridoxine (all water soluble B vitamins) work effectively for my back pain.  This combination really works without the side effects of prescription and over-the-counter pain meds.  I hope you will give them a try. Here are articles on these vitamins and pain relief... Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ And... Role of B vitamins, thiamine, pyridoxine, and cyanocobalamin in back pain and other musculoskeletal conditions: a narrative review https://pubmed.ncbi.nlm.nih.gov/33865694/
    • Scott Adams
      Canned tomato sauce, ricotta?

      By Scott Adams · Posted

      Here is the info from their website. If you don't trust them, you may find products that are labelled "gluten-free," but I don't see any reason to believe there is any gluten in them. Hunt's Tomato Paste: https://www.hunts.com/tomato-sauce-paste/tomato-paste   Hunt's Tomato Sauce: https://www.hunts.com/tomato-sauce-and-paste/tomato-sauce  
    • PlanetJanet
      Test says no, but body says Yes?

      By PlanetJanet · Posted

      Hi, trents, Thanks for responding! One book I read is called, Doing Harm, by Maya Dusenbery.  She has wonderful perspective and insight, and it's all research-based.  It's about how women can't get treated.  Everyone should read this!  I wouldn't mind reading it again, even.  She believes that women are so busy taking care of families, working, etc., that we are more likely to ignore our pain and symptoms for longer.  Men have women bugging them to go to the doctor.  Women don't have anyone telling us that.  We don't have time to go.  Providers think we are over-emotional, histrionic, depressed, have low tolerance to pain...Men get prescribed opioids for the same symptoms women are prescribed anti-depressants.  My car crash in January 2020 made going to the doctor a full-time job.  I grew up with 2 rough and tumble brothers, played outside, climbed trees.  I was tough and strong, pain didn't bother me, I knew it would heal.  But do you think I could get treated for back pain--as a woman?  I am so familiar now with the brush-offs, the blank looks, the, "Take your Ibuprofen," the insinuation that I am just over-reacting, trying to get attention, or even, "Drug Seeking."  Took almost 2 years, but what was happening was Degenerative Sacroiliitis.  I couldn't walk right, my gait was off, effected my entire spine because gait was off.  I had braced myself with my legs in a front-impact, slightly head-on crash with someone who made a left turn in front of me from the opposite direction.  I finally had SI Joint Fusion surgery, both sides.  It's not a cure. I have given up on trying to get properly treated.  There is so much pain with these spine issues caused by bad gait:  scoliosis, lithesis, arthropathy, bulged disc, Tarlov cysts.  And I can't take anything because of my bad tummy. Not that I would ever hurt anyone, but I can relate to Luis Mangione who couldn't get treated for his back injury. I feel so alone.
×
×
  • Create New...