Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Doesn't My Doctor Know About This ?


marciab

Recommended Posts

marciab Enthusiast

Dr. Kent Holtorf, MD, is Medical Director of the Holtorf Medical Group Center for Hormone Imbalance, Hypothyroidism, and Fatigue in Torrance, California.* He specializes in treating CFS and FM patients.

This article says that doctors are 10 - 20 years behind on current research ... Marcia

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

The overwhelming majority of physicians rely on what they learned in medical school and on pharmaceutical sales representatives to keep them

kirbymom Newbie

In my area of Canada, the doctors are mainly practicing reactive (not proactive) medicine and using drugs. I did not wait for a diagnosis for my daughter (age 3 in June) because of this. I do not think we have pinpointed all of her intolerances and even though my doctor thinks I am doing a good job and has no qualms about me having her on a gluten free dairy free diet, he is unwilling to have her have further testing. She is almost 3 and 23.5 lbs!!! Hey, this is better than most of her life. At least her height is on the chart now since gluten was taken out of her diet! I am woandering if I have to gluten her to get him to take me seriously - probably would only say - oh look, she has another cold! One of her symptoms is major ruuny nose.

Anyway, he is a family physician teaching new docs! He is so busy, he does not have time to check all of the recent literature so the new docs are seeing all of the old stuff - depressing, isn't it?

  • 2 weeks later...
loco-ladi Contributor

I took all the information I could gather into my "local Dr" and still he insists its acid reflux, there are pills for that ya know ;) I had it all in cronological order from my early years right up to current, still he insists "thats not it"..... I have others in my family with this as well..... everything to me points to this direction and after being 99% gluten free (had a couple of accidental glutenings) for a few months can say I am self diagnosed, I refuse to go back to the way I was before to get a dr to listen to me or to have the appropriate tests done, most of my symptoms have either reduced greatly or in a couple of instances disappeared altogether....

I would wait until your daughter got older and you could explain to her what went on and let her decide, she is after all the one who will suffer if you are correct and take her off the diet, and seriously is it hurting her now to be gluten free? It sounds like she is doing great.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ShariW replied to glucel's topic in Coping with Celiac Disease
      5

      potato chip cross contamination

    2. - Dawn Meyers replied to Dawn Meyers's topic in Related Issues & Disorders
      7

      Vaccines

    3. - trents replied to Dawn Meyers's topic in Related Issues & Disorders
      7

      Vaccines

    4. - Scott Adams replied to BIg Nodge's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Opinions on my test results/symptoms

    5. - Scott Adams replied to Dawn Meyers's topic in Related Issues & Disorders
      7

      Vaccines


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,842
    • Most Online (within 30 mins)
      7,748

    clkilmer14
    Newest Member
    clkilmer14
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • ShariW
      Cape Cod potato chips are gluten-free, according to the company. I've never had a problem with these.
    • Dawn Meyers
      I'm 63  Thank you for the article. I have worked with Dietitian at Mayo and also had breath testing done. They felt I was following a strict gluten-free diet along with eliminating sugar alcohol and chicory root. Also don't eat a lot meat, eggs and peppers. Because I get so sick I use only gluten-free products for my skin food medicine my pet food is gluten-free and I live alone so all my cooking stuff is all brand new prior to being diagnosed.  I buy only organic certified gluten free products and if not sure  look up or just don't eat or use. The Dermatologist at Mayo gave me a list of gluten-free products that I can use. ( personal products,  laundry detergent, I use vinegar and baking soda for cleaning ) . I ask family and friends to not bring  anything  in to my home that has gluten in it. I have tried  everything and my numbers still off the charts.   So as for the pneumonia vaccine I question if it has anything in it that will react negative in me? 
    • trents
      Dawn, yes, once the genes that give the potential for the development of celiac disease are "turned on" so to speak, they will be on for the rest of your life. It is not something that is cured or comes and goes but something that must be managed. Eliminating major sources of gluten from one's diet is pretty straight forward but many don't realize the multitude of places and ways gluten is hidden in the food supply and sneaks its way into our eats. So, eating "lower gluten' is easy but attaining a consistently and truly gluten free state is much harder and requires diligence. I am linking this article that might be of help to you in that regard:  
    • Scott Adams
      PS -  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. You mentioned that your bowel movements may be a bit more regular, so this could be another indication of NCGS.    
    • Scott Adams
      You did not mention your age, but depending on how old you are it makes a big difference on how important it is to get a flu vaccine. 
×
×
  • Create New...