Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Have A Weird Tongue


BRCoats

Recommended Posts

BRCoats Enthusiast

My tongue is getting its tastebuds back. I hadn't realized I lost them, but I looked in the mirror the other day, and noticed them perking back up. Has anyone else had that experience? I've been gluten-free for about two months...with a few oopsies.

Also, ever since I got REALLY sick, my tongue curls on the sides. The only time it's not curly is when I feel good....which is not often (yet). Does anyone know what would cause a curly tongue? :P

Brenda


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



FreyaUSA Contributor

What you have is called "Geographic Tongue." My son and niece both have it (and my husband slightly.) It is totally benign. It's non contageous. Non harmful. With my son, when he's not feeling well, the swirls and curls become much more pronouced, too. Kind of like a thermometer. "Am I really sick or just have the blahs?" stick out your tongue! :P On a side note, I went to a celiac support group for the first time last month. They have a flyer that lists possible indications of the disease. Geographic tongue was listed! Who'd have thought? (So, now I'm thinking of encouraging my husband to get tested, though he follows a gluten-free diet 95% of the time anyway.)

kabowman Explorer

I don't have a "curly" tongue but have always had a geographic toungue - my oldest, the one with stomach problems but tested negative for celiac disease also has a geographic toungue. It even changes occasionally.

I had just read last week that a geographic toungue was a possible indicator or side effect or something like that...

-Kate

Guest gfinnebraska

I read another side effect of celiac disease is long eyelashes... I never knew how I got long lashes when my Mom and Sis have none... when I read that it answered a lot of questions! There are SOME good things about celiac disease ~ :)

BRCoats Enthusiast

Yeah, I know about geographic tongue. But the descriptions that I've seen of it seem a little bit different than mine. So, who knows? Glad I'm not the only one with a weird tongue though. :P

Mine changes when I don't feel well too. It's nice and flat everytime I feel good. As soon as I feel a little bit "off", it's back to being curly.

Thanks for the reassurances. I appreciate it!!

BRCoats Enthusiast

Kimberly,

I have long eyelashes too. :rolleyes:

jaimek Enthusiast

That is so funny that you guys wrote this topic. I was just telling my fiance and my best friend that i feel like my tongue is getting in the way sometimes. That I feel like I am not talking correctly cause my tongue was acting funny. Like I had no control over it. They both laughed at me and told me I was losing it. I just forwarded this post to them and told them that I wasn't crazy. So weird!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BRCoats Enthusiast

Either that, or we are ALL crazy. HAHAHA!! Totally kidding of course!! :D

FreyaUSA Contributor

Long lashes? How funny! My second son (without geographic tongue) has ridiculously long lashes. He's 10 and even embarrassed about them. (I thought it was so funny, though I naturally DID NOT laugh, when he came home all upset because one of his friends was asking him why they were sooooooooooo long.) He's already a cutie (nope, no bias here :rolleyes: ), but he's going to be one of those dreamy guys when he's grown up, light blond hair, spring green eyes and long black lashes. :D

cdobbs Rookie

I am glad to see other peope with a tongue problem. my dad and i seem to be parallel in the symptoms we see with having celiac disease. ours isnt a curly tongiue it like its raw or num all them time. like when you burn it. thats how it feels. some days its worse and others mild. is that the same thing as the g tongue thing yall were talking about?

christi

darlindeb25 Collaborator

cristi--when your tummy is upset it causes canker sores on your tongue and that is what your tongue sounds like--mine does it whenever my tummy gets upset--i have been told that you get similiar sores in your tummy--big canker sores and then all that acid causes your tongue to do the same thing--not fun, is it :( deb

cdobbs Rookie

is it just acid? both my dad and i have the problem wether or not our stomach is upset. its just on the top end of our tongue. coul dbe its jsut really weird how raw it feels. i dont ever see or feel any sores in my mouth.

thanks

christi

  • 2 weeks later...
Guest cowboy

What is included in Geographic Tongue? My wife has nothing on the top of her tongue, but along the edges it looks bumpy. I do not know if I am describing it right, but if you stick out your tongue it is only on the edges... not on top or below. I have always been curious. :P

mommida Enthusiast

I've had several doctors and a doctor freak out when the saw my tongue!

Their explaination afterward is, it is swollen. Are the "curly edges" of your tongues the impression of your teeth? Does it sometimes look like it is cracked? If so then I guess I have a name for it now, geographic tongue. Sounds like I was sticking it somewhere it doesn't belong. LOL

Interesting enough, a swollen tongue is a symptom of poisoning.

Laura

BRCoats Enthusiast

Cowboy,

Sounds like your wife and I have the same type of tongue. There's nothing wrong with the top of my tongue at all. But the sides get curly when I don't feel well. Very rarely will it all look normal. I don't think there's one set way the tongue looks with geographic tongue. It seems to vary.

FreyaUSA Contributor

Oops! Sorry so long in getting back to this. Both the curly edges and the red, whorly top can be signs of geographic tongue. My son also has the numbness, reduces taste, "burned" sensitivity feeling along with his. It's not canker sores, it just seems to be an indication of his overall recent health. If it's clear, we know he's been feeling fine for the last week or so. If it's acting up, he's recently not felt well. It acts up when he eats gluten, but it reacts to any cold symptom (which he gets whenever he eats gluten.)

  • 1 month later...
celiac3270 Collaborator
I read another side effect of celiac disease is long eyelashes... I never knew how I got long lashes when my Mom and Sis have none... when I read that it answered a lot of questions! There are SOME good things about celiac disease ~ :)

Lol....I have REALLY long eyelashes...neither of my parents do, though...lol...yet another connection to celiac. :D

My tongue is sorta weird, too, according to the homeopathic dr. I've been going to. I don't see what he's referring to, but he said it has "islands" on it.....whatever that means :lol:

cdford Contributor

Not only is it truly "geographic", but mine feels swollen. For years, I told my doctors that one of my symptoms was that my tongue felt too big for my mouth and got open "rivers" in it at times. Now we know what it is and they don't look at me funny any more. It seems to have settled down on the gluten-free diet. If I ever get into anything accidentally, my tongue is the first place I know it. It feels swollen, breaks open, and curls up around the edges.

Go figure, though...I didn't get those georgeous eye lashes. Let that boy know that what they are teasing him about now will cause the girls to swoon in a few more years.

Donna

msserena Apprentice

Hello

Yes I to have ridges around my tongue and also my whole tongue swells when I eat something that I wasnt suppose too. :unsure:

McDougall Apprentice

It never ends the things I can blame on celiac that are improving after 30 days gluten-free. My toungue has always been a problem for me and it does curl summamitch, much better lately, best in years, how about that. All my life I've been made fun of for having long eye lashes, brows and I can blame that on celiac to? :-) It's all to wierd.

Carriefaith Enthusiast

I think I get geographic tongue too. When I eat certian foods/drinks, especially citrus drinks like five alive, my tongue gets all irritated and bumpy red lines appear (it kinda looks like mountains on a map)!

mommida Enthusiast

Because of red345 posts I have looked into yeast infections/thrush. Guess what? If you don't get yourself tested, you might just have thrush. I'm waiting for a call from the doctor with results. The descriptions are just too close to call.

L.

FreyaUSA Contributor
Let that boy know that what they are teasing him about now will cause the girls to swoon in a few more years.

Right now that poor boy is watching his brother go through the turmoils of (this is what the 10 year old calls it) HORRORMONES. If I mentioned the girls will love those lashes, he'd cut them off. :lol:

About thrush, if you don't have the typical white patches on the insides of the cheeks, it's pretty unlikely that's it (though it could happen.) Thrush doesn't cause the whorling or curling that geographic tongue exhibits (unless, of course, you have thrush AND geographic tongue.)

  • 2 weeks later...
jknnej Collaborator

My tongue was bleeding in spots for awhile. dentist said everything looked fine, as did doc. So why was it bleeding? It was in different places. Happened every two or three days when I brushed my teeth-didn't brush my tongue.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,193
    • Most Online (within 30 mins)
      7,748

    Jodidodd
    Newest Member
    Jodidodd
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • WednesdayAddams13
      Hello,   I contacted the makers of Alpine Original Spiced Cider Drink Mix and they sent me this email.....   Subject: [EXTERNAL] Fw: Ref. ID:1335211 Alpine Original Spiced Cider Drink Mix.               On Friday, December 6, 2024, 1:04 PM, Consumer <baking@continentalmills.com> wrote: December 06, 2024   Dear Janie, Thank you for taking the time to contact us regarding our Alpine Original Spiced Cider Drink Mix. We appreciate your interest and are happy to provide you with additional information. This product does not contain gluten. However, it is not manufactured in a gluten free facility. If I can be of further help, please contact me at 1 (800) 457-7744, weekdays 7:00 a.m. to 4:00 p.m. (PT), or visit www.alpinecider.com and select "Contact Us." Sincerely, Kristin Kristin Consumer Relations Specialist Ref # 1335211   I hope this helps everyone.  I am currently looking for a spiced hot apple cider drink and have yet to find one that is not made in a plant that manufactures other gluten products.  It's so frustrating. 
    • trents
      @Rogol72, dermatitis herpetiformis occurs in a minority of celiac patients and if the OP hasn't developed it yet I doubt it will show up in the future. I think it unwise to use a scare tactic that probably won't materialize in the OP's experience. It has a good chance of backfiring and having the opposite effect.
    • Rogol72
      Hi @trents, You're correct. The OP mentioned fatigue and vitamin deficiencies as the only symptoms at the time of diagnosis. Since the family are not taking him/her seriously and find them to be too fussy, I suggested showing them pictures of dermatitis herpetiformis as one of the consequences of not taking the gluten-free diet seriously ... would make life easier for him/her, and the family might begin to take his/her strict gluten-free diet more seriously. A picture says a thousand words and the shock factor of dermatitis herpetiformis blisters might have the desired effect. The OP did say ... "How do you deal with people close to you who just refuse to understand? Are there any resources anyone could recommend for families that are short and easy to read?".  @sillyyak52, It might also help mentioning to your family that Coeliac Disease is genetic and runs in families. Any one of them could develop it in the future if they have the HLA DQ 2.5 gene. Here's a Mayo Clinic study calling for screening of family members of Coeliacs ... https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-celiac-disease-screening-for-family-members/ https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-study-calls-for-screening-of-family-members-of-celiac-disease-patients/ I got glutened a few months ago because I missed the may contains statement on a tub of red pesto. It was my own fault but it happens.
    • peg
      Thank you, Scott!  This is just what I needed.  Appreciate your site very much and all of your time and energy that goes into it! Kind Regards, Peg
    • Hopeful1950
      Oh yes.  I would never recommend taking it for an extended period of time.  When 70% of my body was covered in blistering itchy sores, an amazing doctor prescribed it diagnostically because I was unwilling to do a gluten challenge after already going strictly gluten-free in desperation after 10 years of suffering and being poo pooed by dermatologist after dermatologist. The fact that it stopped the itch and mostly cleared the rash after about 2 months was diagnostic for him.  I stopped it and have remained strictly gluten-free with very few flares since that time (over 10 years ago).  So the fact that it cleared the rash was diagnostic for me.     
×
×
  • Create New...