Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Celiacs Donate Their Liver?

annie76

By annie76
in Related Issues & Disorders

Recommended Posts

annie76 Apprentice
annie76
Posted

Hi, I've been around here for awhile and I know there is alot of knowledge on this site. Basically, I am really freeking out here. My mother is going in for a liver biopsy next week, she has ascites (really bad) and all kinds of other problems. She is an alcoholic, but has stopped drinking. Ascites is a pretty good sign that cirrhosis is nearing and end stage. Which means she's going to die, its only a matter of time. I just want to know if we can donate our liver? Maybe thats a dumb question, but you know I really don't know that much about this yet, I've only known about my celiac for 8 months. Matter of fact any info. or experiences you may have with cirrhosis would be greatly appreciated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


blueeyedmanda Community Regular
blueeyedmanda
Posted

I am not sure about organs but I know we cannot donate Bone Marrow. I even googled it one day and it said where there have been instances of celiac being passed through the blood and the person who was getting the bone marrow developed the celiac then. It was an eye opener.

jacqui Apprentice
jacqui
Posted
Hi, I've been around here for awhile and I know there is alot of knowledge on this site. Basically, I am really freeking out here. My mother is going in for a liver biopsy next week, she has ascites (really bad) and all kinds of other problems. She is an alcoholic, but has stopped drinking. Ascites is a pretty good sign that cirrhosis is nearing and end stage. Which means she's going to die, its only a matter of time. I just want to know if we can donate our liver? Maybe thats a dumb question, but you know I really don't know that much about this yet, I've only known about my celiac for 8 months. Matter of fact any info. or experiences you may have with cirrhosis would be greatly appreciated.

sorry to hear about your Mom, but I doubt you can donate. I know I cannot donate b/c I was told by the blood bank and a bone marrow drive that because of my autoimmune diseases I cannot donate. I have the donor sticker on my license but I have a feeeling I'll be dontaed to scieance!!! (ha,ha,ha - actually no kidding) :blink:

Your Mom is in my prayers,

Jacqui

2kids4me Contributor
2kids4me
Posted

This is a site about the criteria for living donations (of liver).

Sorry to hear about your mom, I hope she can feel a bit better while on supportive care..

Open Original Shared Link

What is involved in the donor evaluation process?

A living-donor candidate must complete the following evaluation process to determine if they can safely donate:

The first testing determines if the donor's blood type is compatible with that of the recipient. Additional blood tests are performed to test for healthy functioning of the donor's liver, kidneys and thyroid, and to screen for exposure to transmittable viruses such as hepatitis and HIV, the virus that causes AIDS.

If donor's and recipient's blood types are compatible, a physical examination with a DAOT physician is scheduled to further assess the donor's overall heath.

Abdominal ultrasound testing is performed to screen for abnormalities of the liver and other abdominal organs and blood vessels.

Consultations with the DAOT's social worker and psychiatrist are scheduled.

Magnetic Resonance Imaging (MRI) is performed to create a detailed anatomical "road map" of the donor's internal organs to aid the surgery.

Sometimes additional testing, such as pulmonary function testing, echocardiogram, or exercise stress testing, is required.

The standard time required to complete the donor evaluation process is two to four weeks. If necessary, however, it can be completed in as little as 48 hours.

Sandy

annie76 Apprentice
annie76
Posted
  • Author

Thanks for the response. I had a biopsy shortly after I was diagnosed, and my liver is perfectly fine. Also aside from celiac I have no other conditions, and I was worked up the wazoo before they found the celiac. I read that you can't have cancer, diabetes, heart disease, or aids of course. I'm just racking my brain, there are a few more family members who could help if I can't. My mother doesn't understand the progression of cirrhosis, frankly I think she's in shock. It is just in my nature to find out whats going to happen and be prepared for it. This is just really hard, she's only 59. Thank you for your help.

Guest Happynwgal2
Guest Happynwgal2
Posted
sorry to hear about your Mom, but I doubt you can donate. I know I cannot donate b/c I was told by the blood bank and a bone marrow drive that because of my autoimmune diseases I cannot donate. I have the donor sticker on my license but I have a feeeling I'll be dontaed to scieance!!! (ha,ha,ha - actually no kidding) :blink:

Your Mom is in my prayers,

Jacqui

One more thing I have not thought about because of Celiac: I cannot be an organ donor. I guess it makes sense. And blood drives are also out, huh? I have not been able to donate blood anyway, because I am too honest about when I lived in Europe - in the late 70's and 1980. Red Cross (at least they used to have this rule about 3-4 years ago) says that I may have been exposed to HIV and other nasty illnesses there. Well, I knew I wasn't, but that does not help. I am not allowed to donate blood...

Now knowing I have Celiac, I cannot donate even if I had not lived in Europe way back when....

And to annie76: your mom will be in my prayers... I am glad she has stopped drinking, but so sorry she has such serious health problems.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,702
    • Most Online (within 30 mins)
      7,748
    Kb2608
    Newest Member
    Kb2608
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • TexasCeliacNewbie
      High blood test numbers - with scales. Any advice?

      By TexasCeliacNewbie · Posted

      I do also have the bloating, gas, constipation, hair loss, an auto-splenectomy that no one can see any reason for and some elevated liver enzymes that don't seem to have a cause, I also have joint pain and some spinal compression fractures that have no explanation.  I am only 42 so haven't had a bone density test yet.  My calcium was normal, but my D was a little low.  They haven't checked for any other vitamin deficiencies yet.  My blood test for an autoimmue disorder was quite high but my Thyroid was all normal.
    • TexasCeliacNewbie
      High blood test numbers - with scales. Any advice?

      By TexasCeliacNewbie · Posted

      Hi, I have been having a lot of back pain and gut issues for 8 weeks or so.  I saw the GI on Monday and my results just came in from the lab.  Some of these number are high and off the little chart from the lab.  I am reading this correctly that I most likely have Celiac, right???  It would explain a lot of things for me.  She does have me scheduled for a colonoscopy and endoscopy in  2 weeks to do the biopsy.  I posted this prior, but forgot to put the range assuming they were all the same.  Someone advised me to repost with the ranges for some insight in the meantime. Immunoglobulin A, Qn, Serum 140 (normal) - Normal is 87-352 Deamidated Gliadin Abs, IgA 256 (High) - Moderate to strong positive at or above 30 Deamidated Gliadin Abs, IgG 65 (High) - Moderate to strong positive at or above 30 t-Transglutaminase (tTG) IgA 31 (High) - Moderate to strong positive above 10 t-Transglutaminase (tTG) IgG 10 (High) - Positive is at or above 10
    • trents
      Colonoscopy with large area of inflammation

      By trents · Posted

      Usually, the blood testing is done first and the endoscopy/biopsy follows for confirmation if there are positive antibody test scores. Historically, the endoscopy with biopsy has been considered to be the gold standard for diagnosing celiac disease. If the tTG-IGA scores are very high (5x-10x normal), some doctors will forego the endoscpoy/biopsy and grant a celiac disease diagnosis without it. So, if you are starting with the endoscopy/biopsy that may be all you need to arrive at a diagnosis. Another possibility would be for the GI doc to do a blood draw for antibody testing on the same day you come in for the endoscopy/biopsy.
    • AuntieAutoimmune
      Royal Caribbean Only, Please

      By AuntieAutoimmune · Posted

      Thanks,Scott. Yes, I had already seen those 
    • Scott Adams
      Colonoscopy with large area of inflammation

      By Scott Adams · Posted

      Unless your blood antibody levels are 10x the celiac disease positive level they usually do an endoscopy to confirm the diagnosis.  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
×
×
  • Create New...