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Oddest Places That Have Gluten


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Juliebove Rising Star
I attended a Celiac conference today and the doctor from MacMaster Hospital and the nurtitionist (Shelley Case) both said that the gluten molecules are too large to penetrate the skin so moisturizers, shampoos, etc. are fine. The only thing they said to watch for was gluten in lipstick.

I was surprised to hear this. After everything I read on this forum, I pitched my "hydrolyzed wheat protein" items for "gluten and wheat free"....

Thoughts?

My daughter isn't celiac but has allergies to both wheat and gluten. She reacts very badly to anything with wheat of gluten used externally. I would also think if you had celiac it would be all too easy to use a moisturizer or shampoo then not get it fully rinsed from your hands. You cuold then transfer this to your mouth. I would avoid such things. It just isn't worth the risk.


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Nantzie Collaborator
Seventh Generation Maxi pads. Who woulda thunk it? I never would have known had I not been bored while in the bathroom and picked up the package to read it. The absorbant material is made of wheat! Must remember this as daughter has a wheat allergy.

OM-freakin-G!!! What the heck!?!?!???

Why is it that I am continually surprised? Shouldn't there be an end to the hidden gluten thing???

Bah!

:rolleyes:

Nancy

Felidae Enthusiast

Swiss cheese (Primo Taglio brand from Safeway)

Karen B. Explorer

toothpaste... When I was first diagnosed, Aim toothpaste was the culprit. Who would have thought?

Some of the new calcium added orange juice or other OJ that they process into something special can catch you unaware.

Casa Ole uses flour in their refried beans (definintely not true Mexican food!)

and I've found a bit of flour tortilla in my corn tortilla chips several times. I don't get those at restaurants any more -- even if they say they should be safe.

K

NoGluGirl Contributor
Tropicana OJ isn't safe?

I drink it, and to my knowledge it's never made me sick. But I'm usually VERY sensitive.

I'll stop drinking it, if it's not safe, I don't want to press my luck.

Does anyone know for sure?

Dear amybeth,

Only Tropicana's 100% Juice is safe. Any others are not safe. I am very sensitive as well. I get violently ill if I ingest a microscopic speck of gluten. I am paranoid careful!

Some things you also would not expect it to be in are:

Pringles Potato Chips (Wheat is in there!) :(

Kellogg's Rice Krispies (Barley Malt)

Any Georgia-Pacific Toilet Paper (Angel Soft) or Paper Towels (Mardi Gras) have gluten in the adhesive at the end of the roll. Do not use the last piece or two!

Amy's Kitchen - CC issues have made others on the forum ill.

Lay's - Stax are safe, because they are made in a dedicated facility, but not the kind in bags.

Yogurt - Dannon (The only ones that are safe are the plain regular, low-fat, and fat-free.)

Tortilla Chips - Some brands have wheat flour in them. Certain brands such as On The Border have safe plain restaurant style tortilla chips, but flavors like guacamole have wheat.

Play-Doh - Children love this stuff, but it can make Celiac kids sick.

Cosmetics - Many are not safe. Bonne Bell Original Lip Smackers contain wheat. Face powders can make you ill and if you accidentally breathe it in, the reaction may be quicker.

Envelopes and Stamps - pretty much every kind has gluten in the adhesive.

Sincerely,

NoGluGirl

alamaz Collaborator

I have to second the fish food. I just randomly read the label one morning thinking it would be safe and it was the third or fourth ingredient. Isn't it interesting that the government gives more subsidies to grain farmers than fruit and veggie farmers (atleast in the good ol' US of A)? Hmmm........ a conspiracy? :P

mcsteffi Rookie

I must have the double wheat fish food.... Ours has Wheat flour, Wheat germ meal, Rolled oats and Wheat gluten meal. Both of the brands we have contain 3 or 4 wheat ingredients.

Stephanie


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mftnchn Explorer
Lay's - Stax are safe, because they are made in a dedicated facility, but not the kind in bags.

In China, Lay's chips have MSG, which is wheat based. :( no chips for me!

Lisa Mentor
In China, Lay's chips have MSG, which is wheat based. :( no chips for me!

Where in China are you.? My brother is in Shanghai.

Just noticed, MSG is gluten free in the US, in China is it wheat based? Crap, this is why it's so difficult for everyone.

brendygirl Community Regular

The brand of soymilk I used to love had it.

Lindt chocolate and others, chocolate chips, etc.

butter/margarines, etc.

chicken- some are injected with broth for flavor

Cocoa Puffs- used to be gluten-free

miso soup

Bailey's Irish Cream

pickles

Hidden Valley Ranch- used to be gluten-free

some shredded cheeses- to prevent caking

"mesquite" and other smoked flavorings

bleu cheese- it's grown on bread

Lawry's season salt

some spices

cornbread

meat or veggies that've been marinated

sauteed mushrooms at restaurants- Outback uses soy sauce

some vodkas, most whiskey, bourbon, gin, beer

vanilla flavoring- the alcohol

vitamins and medicines

hair color

protein bars

McDonald's french fries

mascara

Byte Me Apprentice
Lay's - Stax are safe, because they are made in a dedicated facility, but not the kind in bags.

That is weird! I get super sick from Lays stax, even though they say gluten-free right on the label, but I haven't gotten sick from the bagged Lay's. I had just thought the stax might have CC, I didn't know they had a dedicated facility. Guess I need to investigate the extra ingredients in the stax and find out what's up. <_<

confused Community Regular
That is weird! I get super sick from Lays stax, even though they say gluten-free right on the label, but I haven't gotten sick from the bagged Lay's. I had just thought the stax might have CC, I didn't know they had a dedicated facility. Guess I need to investigate the extra ingredients in the stax and find out what's up. <_<

I get sick from lays staxx to but i dont think it is a gluten reaction, I think its one of the oils that they use that make me have stomach pains and D. I do get glutened from lays chips tho. But last night i tried the lays kettle chips and i was fine.

paula

little-c Contributor

Does anyone know about water softener tablets? They're supposed to be salt, but do they put gluten in as a binder?

rmmadden Contributor

Wallpaper glue has wheat starch in it. I was cleaning my son's bedroom walls and scrubbing the residue off the walls after I had removed his border and was very sick afterward.

Cleveland Bob B)

NoGluGirl Contributor
I get sick from lays staxx to but i dont think it is a gluten reaction, I think its one of the oils that they use that make me have stomach pains and D. I do get glutened from lays chips tho. But last night i tried the lays kettle chips and i was fine.

paula

Dear Paula and Byte Me,

I know what you mean. The oil is a likely possibility. I only got the unflavored ones. I have trouble due to the oil because I had my gallbladder out. Fats in general need limited. I ate a half a tube today, and I am hoping I will not suffer for it!

Dear mftnchn,

Thanks for telling us! We will know not to eat them if we travel! I have always wanted to go to China! The mountains of Guilin are heavenly! What is allowed where you live?

Sincerely,

NoGluGirl

jacqui Apprentice

FYI:

Thank you for contacting Neutrogena.. It is always important to hear from our consumers, and we appreciate the time you have taken to contact us.

In reference to your inquiry, our Neutrogena. Healthy Skin. Anti-Wrinkle Intensive Serum is gluten free. However, our Neutrogena. Healthy Skin Anti-Wrinkle Intensive SPF 20 has not been tested for this. If you have any further questions regarding gluten, please call our toll-free number, 1-800-582-4048. Our specialists are available Monday through Friday between 8 AM and 5 PM EST and will be happy to assist you.

Again, our thanks for your interest in Neutrogena.. We are creating a Neutrogena Consumer Panel and would love to have you join. You are invited to share your views and opinions with us. By joining the Neutrogena Consumer Panel, you will have an opportunity to participate in surveys that will help us learn more about your preferences. You can sign up now at www.neutrogenapanel.com <Open Original Shared Link

If anyone uses or wanted to use...

darlindeb25 Collaborator

Does anyone know about water softener tablets? They're supposed to be salt, but do they put gluten in as a binder?

I had a water softener for years in Michigan and I used different brands of salt, was never glutened by it.

You can always call the company to be sure. Salt should be 100% salt.

NoGluGirl Contributor

Dear Everyone,

I go to Gluten-Free in SD to get some current info on products. It really helps. Here is the URL:

Open Original Shared Link This is a wonderful place to find more current information than we normally can find. This site has served me well a lot. You just look on the left side where they have Product Updates. It has headings at the bottom of this page I gave you. Just click on what you want to know!

Dear Jacqui,

Thanks for posting about the Neutragena. I was wondering about wrinkle creams. They say you should start in your 20s with those! So, I would rather! I desperately need make-up, so the URL above will really help. It has a list of all Maybelline ingredients that contain gluten.

Sincerely,

NoGluGirl

Sam's Molly Newbie
Sheetrock mud, some dryer sheets

As a newbie, let me just say... oh dear. How overwhelming ! :unsure:

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    • trents
      Yes, I'd like to know also if a "total IGA" test was ever ordered. It checks for IGA deficiency. If you are IGA deficient, it will likely render the individual celiac IGA antibody tests invalid. Total IGA goes by other names as well:  Immunoglobulin A (IgA) Test Serum IgA Test IgA Serum Levels Test IgA Blood Test IgA Quantitative Test IgA Antibody Test IgA Immunodeficiency Test People who are IGA deficient should have IGG tests run as well. Check this out:    I am also wondering if your on again/off again gluten free experimentation has sabotaged your testing. For celiac disease testing to be valid, one must be eating generous amounts of gluten for weeks/months leading up to the test.
    • Scott Adams
      I’m so sorry you’re going through this—it sounds like you’ve been on a really challenging journey with your health. Your symptoms (stomach pains, bloating, low iron, joint pain, brain fog, etc.) do sound like they could be related to gluten sensitivity or another condition like non-celiac gluten sensitivity (NCGS). It’s interesting that your bloodwork hasn’t shown celiac markers, but the lymphocytosis in your duodenum could still point to some kind of immune response or irritation, even if it’s not classic celiac disease. The fact that your symptoms improved when you went gluten-free but returned when you reintroduced gluten (especially with the donut incident) is a pretty strong clue that gluten might be a trigger for you. It’s also worth noting that symptoms can be inconsistent, especially if your body is still healing or if there are other factors at play, like stress, cross-contamination, or other food intolerances. Do you have more info about your blood test results? Did they do a total IGA test as well? 
    • KDeL
      For years, I have dealt with various gluten related symptoms like stomach pains, bloating, IBS-C "ish" digestive issues, low iron, low Vit D, joint pains, brain fog, and more. I finally got a double scope and stomach looks clear, but I have some lymphocytosis of the duodenum. I am wondering if this sounds familiar to anyone, where I have not shown celiac red flags in bloodwork IGA tests. WIll be following up soon with GI Dr, but so far, my symptoms are intermittent. I go back and forth with gluten-free diet (especially this past year.... did two tests where the stomach pains I had went away without gluten in diet. HOWEVER, I added it back a third time and I didn't get the pains)   Anyway, I am so confused and scared to eat anything now because I recently had a few bites of a yeasty donut and I immediately got so sick. Any thoughts??
    • Peggy M
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    • Scott Adams
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