Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Been Diagnosed


loozey

Recommended Posts

loozey Newbie

hi,im lucy and i live in Northampton uk. I have just been diagnosed and am a bit freaked out. I know it is not the end of the world,i was just wondering if u were daunted like myself when u al found out? thanx


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NJKen Rookie
hi,im lucy and i live in Northampton uk. I have just been diagnosed and am a bit freaked out. I know it is not the end of the world,i was just wondering if u were daunted like myself when u al found out? thanx

Hi, Lucy! Yes, it's very upsetting at first, but it gets better. I think you'll find that you can keep your home stocked with plenty of gluten-free options without too much trouble. Eating out is more of a problem, but you can find out which places are more celiac-friendly by reading the posts on this board, and by posting your own questions. (Be aware that many of the posters on this board have multiple food intolerances/allergies; you may not need to be as restrictive as everyone who posts.) If you have favorite places that you like to eat, contact the manager(s) directly to find out how they can accommodate you. If you like to travel abroad, look up the websites of the celiac societies of the countries that you plan to visit. Let your friends and family know about your new dietary restrictions, and be prepared to patiently explain again and again why you can't eat the item that they were sure was OK for you. Eating is often a social activity, and it can be challenging to safeguard your health without offending your eating companions.

Good luck!

Ken

Guest j_mommy

Hello and Welcome!

Let me tell you, you have come to the best site ever! I am also newly Diagnosed(april 1) and it is very scary at first! I have a biopsy scheduled 5/15, I am still eating gluten until then so my biopsy is "true". I never thought I would say this but I can't wait to go Gluten free!!!!! I now know I will feel so much better. As soon as I was DX'd I went to amazon .com and bought: "Living Gluten Free for Dummies" and Celiac Disease:A Hidden epidemic" by Peter Green. Those two books and this site have made me sane agian. I really feel like I can do this!!! The "For Dummies" book has alot of Starter stuff and makes you laugh! It was a great buy! I hope this helps!!!! YOU'RE NOT ALONE! Everyone on this site is knowledgeab;e and helpful.....even if you just need a "shoulder" to lean on! Good Luck

luvs2eat Collaborator

Yea, I was TOTALLY freaked out when I was diagnosed! But there's so much information here that will make you feel so much better and so many people who know the answers to just about ANY question you could ask! It doesn't take long to focus on all the foods you CAN have rather than the ones you can't. Ya just have to learn to cook a little differently, that's all.

Welcome!!

nikki-uk Enthusiast
hi,im lucy and i live in Northampton uk. I have just been diagnosed and am a bit freaked out. I know it is not the end of the world,i was just wondering if u were daunted like myself when u al found out? thanx

Hi Lucy and welcome!! :)

I'm in the UK (London) and my hubby and son have celiac disease.

I know my hubby found it very overwhelming at first but it truly does get easier with time.

Have you joined Coeliac UK yet?? (their 'handbook' listing safe foods is very helpful)

Now that my hubby has been gluten-free for nearly 3 yrs, I can see that in a roundabout sort of way it done the whole family a favour.We eat so much more healthily now :) ...it just takes time to adjust.

Good Luck ! :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,739
    • Most Online (within 30 mins)
      7,748

    Chef7269
    Newest Member
    Chef7269
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      You are most welcome, Marie.  Thank you for getting in touch, because this sort of post will be seen by other parents who find themselves in this position, I am sure there are many.   And as I say, in the long run, I am sure your daughter will be sorry for what she said.  I remember having a go at my dear Mum when I was in my twenties about something and then apologising, saying, "I don't know how you put up with me."  I can't remember her exact words but it was something along the lines of, "I used to say things like to my Mum.  Now it's my turn [to be on the receiving end]!"    😂  Although it isn't very nice to be on the receiving end, it is good your daughter feels safe to say these things to you. We look forward to hearing from you again in due course.  
    • Wheatwacked
      Are You Confused About Your Celiac Disease Lab Results? Some people test negative but have a positive biopsy, others test positive but negative biopsy.  This is why it can take years and misdiagnosis of other diseases that Celiac Disease can mimic. The above link is a good read with real life examples. Something I find interesting is that in 1980 or so a new diagnosis was created, Non Celiac Gluten Sensitivity, only 10 years after Norman Borlaug won the Nobel Peace Prize for creating our modern wheat and the Green Revolution.    
    • trents
      @Steve-n-Portland, there is a difference in the requirements to use the label "Gluten Free" and the label "Certified Gluten Free". "Gluten Free" is governed by FDA regulations and has a ceiling of 20 ppm. "Certified Gluten Free" is a labeling convention used by the GFCO, an independent international third party certifying group that uses 10 ppm as its standard.
    • trents
      We have had numerous reports from forum participants experiencing gluten reactions from Trader Joe "gluten-free" products. It seems it's not a good place for the celiac/gluten sensitive community to shop.
    • Steve-n-Portland
      Also, a class action lawsuit was launched in 2024 against Trader Joe's re: their " gluten free" everything bagels. They tested at 269ppm. (Personally, I am not sure they will win. The FDA says that the *ingredients* have to be less than 20ppm for a company to label something "gluten-free."  In order to be certified as gluten-free by the GFCO, the *final product* needs to be less than 20ppm. That said, the lawsuit is arguing that most people read that label and assume the final product is safe for people with celiac. Thus, many people were made sick. And being sick can have costly consequences in regard to work or school, depending when one becomes ill.)
×
×
  • Create New...