Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do Symptoms Come And Go?

familyfirst

Recommended Posts

familyfirst Rookie
familyfirst
Posted

My DS's GI has ruled out Celiac disease(however, we see him on Monday and I'm going to probe him for more answers). He is still having minor syptoms after 3 weeks straight of D and stomach pain. He still has major stomach pain, but the D has disappeared even to the point of constipation. He also is now having major headaches with a heat feeling inside his entire body! He is on Nulev for D and stomach pain. He is having such extreme symptoms, I just don't know what to think...

Like I said, if the dr. doesn't give us more definate answers on Monday, I'm going to try the gluten-free diet and forget the medical dr. It won't hurt anything.

My question to the forum is...

Can you have symptoms that go away and start again? Or change over time?

Has anyone have a hot feeling inside their whole body and headaches?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Generic Apprentice
Generic
Posted

Absolutely! I started having stomcah issues at the age of 1-1/2 or 2 years of age. My sysmptoms came and went for years, I never knew when I would get sick. I was finally diagnosed at 13 years of age due to the symptoms being a daily occurence.

I was always a D sufferer but some people get C, or both C and D. I put out tremendous amounts of heat when I eat gluten. I also suffered from migraines rather frequently prior to going gluten-free.

ravenwoodglass Mentor
ravenwoodglass
Posted

Yes, except for the ataxia all my symptoms were 'come and go' for many years. A lot of damage was done in those years.

I was 30 before the D became a daily occurance and my intermittant joint pains became a daily agony. I did not show up in blood tests and no one told me anything about the diet other than I should be glad I did not have to be on it, yea right. Oh yea, and the children who are both honor students with never a grade below a B and usually A's in college, just didn't want to go to school, oh and they were depressed so have a pill. Whoops, got off on a bit of a rant there.

I am so glad to hear you will be doing the diet no matter what the tests outcome. It is the best way to find those of us who are not lucky enough to show positive. Only 6 months before I was diagnosed by an allergist (MD) my DD told me the family would understand if I killed myself. That allergist saved both my and my families life, without him and the dietary elimination and challenge (not the weeks that GI want, he had me stop as soon as my D came back). If only we had known when my children were little. It would have saved them so much pain and for my DD permanent disfigurement and my DS permanent severe growth stunting.

familyfirst Rookie
familyfirst
Posted
  • Author
Yes, except for the ataxia all my symptoms were 'come and go' for many years. A lot of damage was done in those years.

I was 30 before the D became a daily occurance and my intermittant joint pains became a daily agony. I did not show up in blood tests and no one told me anything about the diet other than I should be glad I did not have to be on it, yea right. Oh yea, and the children who are both honor students with never a grade below a B and usually A's in college, just didn't want to go to school, oh and they were depressed so have a pill. Whoops, got off on a bit of a rant there.

I am so glad to hear you will be doing the diet no matter what the tests outcome. It is the best way to find those of us who are not lucky enough to show positive. Only 6 months before I was diagnosed by an allergist (MD) my DD told me the family would understand if I killed myself. That allergist saved both my and my families life, without him and the dietary elimination and challenge (not the weeks that GI want, he had me stop as soon as my D came back). If only we had known when my children were little. It would have saved them so much pain and for my DD permanent disfigurement and my DS permanent severe growth stunting.

Thank you for your support. I would hate the fact that I listened to an MD and didn't stop the gluten, and my child develop cancer or such because I didn't do the diet. I'm taking a gut(no pun intend) feeling on this and doing the gluten free diet. I also am due for my appt., so I think I'm going to ask for bloodwork as well. I had C when I was younger. So bad that I would miss family gatherings and would be depressed forever about that. I'm thinking I have celiac disease as well as maybe my DD. She has severe excema, mood swings galore, and bloated. Like I said above, it won't hurt anyone if we all went gluten free.

familyfirst Rookie
familyfirst
Posted
  • Author
Yes, except for the ataxia all my symptoms were 'come and go' for many years. A lot of damage was done in those years.

I was 30 before the D became a daily occurance and my intermittant joint pains became a daily agony. I did not show up in blood tests and no one told me anything about the diet other than I should be glad I did not have to be on it, yea right. Oh yea, and the children who are both honor students with never a grade below a B and usually A's in college, just didn't want to go to school, oh and they were depressed so have a pill. Whoops, got off on a bit of a rant there.

I am so glad to hear you will be doing the diet no matter what the tests outcome. It is the best way to find those of us who are not lucky enough to show positive. Only 6 months before I was diagnosed by an allergist (MD) my DD told me the family would understand if I killed myself. That allergist saved both my and my families life, without him and the dietary elimination and challenge (not the weeks that GI want, he had me stop as soon as my D came back). If only we had known when my children were little. It would have saved them so much pain and for my DD permanent disfigurement and my DS permanent severe growth stunting.

Thank you for your support. I would hate the fact that I listened to an MD and didn't stop the gluten, and my child develop cancer or such because I didn't do the diet. I'm taking a gut(no pun intend) feeling on this and doing the gluten free diet. I also am due for my appt., so I think I'm going to ask for bloodwork as well. I had C when I was younger. So bad that I would miss family gatherings and would be depressed forever about that. I'm thinking I have celiac disease as well as maybe my DD. She has severe excema, mood swings galore, and bloated. Like I said above, it won't hurt anyone if we all went gluten free.

mamabear Explorer
mamabear
Posted
Yes, except for the ataxia all my symptoms were 'come and go' for many years. A lot of damage was done in those years.

I was 30 before the D became a daily occurance and my intermittant joint pains became a daily agony. I did not show up in blood tests and no one told me anything about the diet other than I should be glad I did not have to be on it, yea right. Oh yea, and the children who are both honor students with never a grade below a B and usually A's in college, just didn't want to go to school, oh and they were depressed so have a pill. Whoops, got off on a bit of a rant there.

I am so glad to hear you will be doing the diet no matter what the tests outcome. It is the best way to find those of us who are not lucky enough to show positive. Only 6 months before I was diagnosed by an allergist (MD) my DD told me the family would understand if I killed myself. That allergist saved both my and my families life, without him and the dietary elimination and challenge (not the weeks that GI want, he had me stop as soon as my D came back). If only we had known when my children were little. It would have saved them so much pain and for my DD permanent disfigurement and my DS permanent severe growth stunting.

You have definitely earned the right to rant. I feel bad for the medical community's ignorance of celiac disease then and still now. At least ONE doctor of yours could figure it out. I am so sorry.

If we were 100% symptomatic 100% of the time.....it'd be a lot easier to figure out and I guess we'd all be diagnosed by the time we were out of diapers. So the answer to familyfirst's question is YES.

FabulaScribe Newbie
FabulaScribe
Posted

I'm new here and just began eating gluten-free 8 days ago after suspecting a wheat problem for many years, but not realizing I needed to give up all glutens in order to avoid the problem. I'm learning now, and have just had the most productive week I've had at work in years - literally.

Anyway, the reason I'm replying to this topic is because when I read that someone said they have had stomach problems since childhood, a lightbulb went on for me. I had a peptic ulcer when I was 5 1/2, and I've always wondered why. I think at the time, the doctor said I was born with a weak stomach lining or something. I'm 43 now, so that was a long time ago. But I was wondering if that ulcer was related to this. Has anyone else had ulcers, especially at a young age?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ed-G Newbie
Ed-G
Posted
Can you have symptoms that go away and start again? Or change over time?

Has anyone have a hot feeling inside their whole body and headaches?

I don't think everyone has the same symptoms either. I know I don't have the abdominal pain most have, though I do go from D to C and back again, have nice smelly stools, and have have the remains of red pimples on my back and sides (and I haven't even heard of DH until I began researching celiac disease on the net).

I'm in a venting mood, so forgive me if I'm grousing a bit much.

Ed in MD

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,961
    • Most Online (within 30 mins)
      7,748
    MaryEH
    Newest Member
    MaryEH
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.1k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Refractory or super sensitive?

      By knitty kitty · Posted

      @glucel, I agree with @trents.  You can still do the AIP diet while taking aspirin.   I'm one of those very sensitive to pharmaceuticals and have gotten side affects from simple aspirin.  Cardiac conduction abnormalities and atrial arrhythmias associated with salicylate toxicity https://pubmed.ncbi.nlm.nih.gov/3952006/ Another part of the problem is that those drugs, aspirin and warfarin, as well as others, can cause nutritional deficiencies.  Pharmaceuticals can affect the absorption and the excretion of essential vitamins, (especially the eight B vitamins) and minerals.   Potential Drug–Nutrient Interactions of 45 Vitamins, Minerals, Trace Elements, and Associated Dietary Compounds with Acetylsalicylic Acid and Warfarin—A Review of the Literature https://pmc.ncbi.nlm.nih.gov/articles/PMC11013948/   Aspirin causes a higher rate of excretion of Thiamine Vitamin B1.  Thiamine deficiency can cause tachycardia, bradycardia, and other heart problems.  Other vitamins and minerals, like magnesium, are affected, too.  Thiamine needs magnesium to make life sustaining enzymes.  Without sufficient Thiamine and magnesium and other essential nutrients our health can deteriorate over time.  The clinical symptoms of Thiamine deficiency are subtle, can easily be contributed to other causes, and go undiagnosed because few doctors recognize Thiamine deficiency disorders. Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/ Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ Celiac Disease causes malabsorption of vitamins and minerals.  Supplementing with essential vitamins and minerals can boost absorption.   Our bodies cannot make vitamins and minerals.  We must get them from our diet.  The Gluten free diet can be low in Thiamine and the other B vitamins.  Gluten free processed foods are not required to be enriched nor fortified with vitamins and minerals like their gluten containing counterparts. You would be better off supplementing with essential vitamins and minerals than taking herbal remedies.  Turmeric is known to lower blood pressure.  If you already have low blood pressure, taking turmeric would lower it further. Curcumin/turmeric supplementation could improve blood pressure and endothelial function: A grade-assessed systematic review and dose-response meta-analysis of randomized controlled trials https://pubmed.ncbi.nlm.nih.gov/38220376/ I've taken Benfotiamine for ten years without any side effects, just better health. Other References: Association of vitamin B1 with cardiovascular diseases, all-cause and cardiovascular mortality in US adults https://pmc.ncbi.nlm.nih.gov/articles/PMC10502219/ Prevalence of Low Plasma Vitamin B1 in the Stroke Population Admitted to Acute Inpatient Rehabilitation https://pmc.ncbi.nlm.nih.gov/articles/PMC7230706/ Bradycardia in thiamin deficiency and the role of glyoxylate https://pubmed.ncbi.nlm.nih.gov/859046/ Aspirin/furosemide:  Thiamine deficiency, vitamin C deficiency and nutritional deficiency: 2 case reports https://pmc.ncbi.nlm.nih.gov/articles/PMC9023734/ Hypomagnesemia and cardiovascular system https://pmc.ncbi.nlm.nih.gov/articles/PMC2464251/ Atypical presentation of a forgotten disease: refractory hypotension in beriberi (thiamine deficiency) https://pubmed.ncbi.nlm.nih.gov/31285553/
    • Wheatwacked
      Muscle atrophy in legs

      By Wheatwacked · Posted

      Polymyositis is a rare autoimmune disease that makes your immune system attack your muscles. Any autoimmune disease is associated with low vitamin D.   Even as a kid I had weak legs.  Now I feel the burn just walking to the mailbox. A case-control study found that patients with polymyositis (PM) had higher lactate levels at rest and after exercise, indicating impaired muscle oxidative efficiency. The study also found that an aerobic training program reduced lactate levels and improved muscle performance.
    • Wheatwacked
      2 months in... struggling with symptoms

      By Wheatwacked · Posted

      Micronutrient Inadequacies in the US Population "A US national survey, NHANES 2007-2010, which surveyed 16,444 individuals four years and older, reported a high prevalence of inadequacies for multiple micronutrients (see Table 1). Specifically, 94.3% of the US population do not meet the daily requirement for vitamin D, 88.5% for vitamin E, 52.2% for magnesium, 44.1% for calcium, 43.0% for vitamin A, and 38.9% for vitamin C. For the nutrients in which a requirement has not been set, 100% of the population had intakes lower than the AI for potassium, 91.7% for choline, and 66.9% for vitamin K. The prevalence of inadequacies was low for all of the B vitamins and several minerals, including copper, iron, phosphorus, selenium, sodium, and zinc (see Table 1). Moreover, more than 97% of the population had excessive intakes of sodium, defined as daily intakes greater than the age-specific UL" My Supplements: Vitamin D 10,000 IU (250 mcg) DHEA 100 mg  (Dehydroepiandrosterone (DHEA) levels in the body decrease steadily with age, reaching 10–20% of young adult levels by age 70. DHEA is a hormone produced by the adrenal glands that the body uses to create androgens and estrogens.) 500 mcg Iodine 10 drops of Liquid Iodine B1 Thiamin 250 mg B2 Riboflavin 100 mg B3 Nicotinic Acid 500 mg B5 Pantothenice Acid 500 mg Vitamin C 500 mg Selenium twice a week 200 mcg
    • Wheatwacked
      Refractory or super sensitive?

      By Wheatwacked · Posted

      The paleo diet is based on the idea that the human body evolved to consume a balanced ratio of omega-6 and omega-3 fatty acids, and that the modern diet is out of balance. A healthy ratio of omega-6 to omega-3 is 1:1–4:1, while the modern diet is closer to 20:1–40:1. The paleo diet aims to restore this balance.
    • Wheatwacked
      Hey all!

      By Wheatwacked · Posted

      Best thing you can do for them! First-degree family members (parents, siblings, children), who have the same genotype as the family member with celiac disease, have up to a 40% risk of developing celiac disease. Make sure you and they get enough vitamin D and iodine in their diet.   Iodine deficiency is a significant cause of mental developmental problems in children, including implications on reproductive functions and lowering of IQ levels in school-aged children. Vitamin D deficiency is common in the United States, affecting up to 42% of the population.
×
×
  • Create New...