Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Tests Do I Ask For?

cyberprof

By cyberprof
in Dermatitis Herpetiformis

Recommended Posts

cyberprof Enthusiast
cyberprof
Posted

Hi everyone,

I was diagnosed in February of this year. My almost 16 y.o. daughter "thinks" she has some celiac symptoms but I haven't been able to twist her arm to get the blood test, as she's afraid of needles.

This past week she got the most unusual itching on her upper back. I drives her crazy (and me too, since I have to listen to her). Now I find out that she also has "bumps" on her back and on the arm by both elbows.

Tonight she got them under her chin. To me, they look like DH. They don't look like excema or ringworm or anything else that is common, I'm certain.

Question: Should we go to the dermatologist first?

Question: What tests should they do?

Question: My 14y.o. son had the blood test and was negative for celiac disease, although I think he does have a mild (or just developing) case. Should I have daughter do the blood test too or wait until after she sees the dermatologist?

Thanks in advance.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gf4life Enthusiast
gf4life
Posted

Have her go to the dermatologist. They will take a small skin sample and test the bumps to see if it is DH. If it is, then she has Celiac disease as DH only occurs in Celiac patients. The treatment would be the gluten free diet.

I have had a skin sample taken before and basically they take a little metal thing that is like a tiny cookie cutter and rub the cirle on the skin. It will cut through a few top layers of skin and then they just peel it off. It usually isn't painful and I believe they rub some numbing stuff on the skin first anyhow. Much easier if your daughter is afraid of shots.

My oldest son hates shots too, but he did okay with the blood test. He didn't WANT it of course, but he handled it fine, and they did the tests twice! If any of my kids had had DH I woudl have opted for the dermatologist route. My daughter is the only one who gets it and she didn't start until after she went gluten free and then started getting the DH bumps when she would accidentally get glutened. I am the one who gets DH badly! The last time I got glutened it covered my arms, head, neck, and belly, and was moving to my back! Thankfully my legs didn't get it, and my palms stayed clear. I hate having it on my palms. It makes driving uncomfortable...

cyberprof Enthusiast
cyberprof
Posted
  • Author

Thanks Mariann. I am calling the doc tomorrow morning.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,013
    • Most Online (within 30 mins)
      7,748
    pawious25
    Newest Member
    pawious25
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Bebygirl01
      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

      By Bebygirl01 · Posted

      Perhaps you would still like to answer the questions I posed on this topic, because that is all I asked. I am curious to know the answers to those questions, I do not care about the background of Dr. Osborne as I am more aware of the situation than you are, and he is also one of the best known authors out there on Celiac disease. But did you even bother to read the three Research Papers I posted by NIH? You must be one of those who are only gluten intolerant and not yet reacting to all glutens aka grains, but I AM one of those who react to ALL the glutens, and again, that is one of the two questions I originally posted on this matter. NIH sees all these grains as in opposition to celiacs, of which I am one and that is science, not any MD with a good memory who overprescribes medications that contain known food allergens in them, of which they have zero knowledge if the patient is in fact allergic to or not, since they failed to do simple 'food sensitivity' testing. I started with the failed FDA explanation of what Gluten Free is and I stayed sick and got even sicker. It wasn't until I came across NIH's papers and went off all grains that I realized that in fact, I am Celiac and reacting to all the glutens. IF a person wants to get well, they should be the one to determine what grains they are allergic to and what grains they want to leave out, not you. Those who are just getting started with learning about grains etc., can take it easy by just being "grain free' and eating a lot of meat, vegetables, etc. or whole foods as God has intended, without buying so called gluten free garbage out there that is making them sick and the whole reason they are not better. I tried the stupid gluten free garbage and it didn't work, and that will make anyone want to give up, it is better to teach the entire truth and let the patient decide, rather than give them misinformation and lies.
    • Nicola McGuire
      My son newly diagnosed

      By Nicola McGuire · Posted

      Thank you so much I will speak to the doctor for dietician apt . Thank you for your advice Beth much appreciated 
    • Scott Adams
      Celiac pain relief

      By Scott Adams · Posted

      Oh no, I'm sorry to hear about the accidental gluten! This article, and the comments below it, may be helpful:    
    • Karmmacalling
      Celiac pain relief

      By Karmmacalling · Posted

      I was born with celiac disease im 20 years old. And I've been gluten free my whole life. Yes my diet is 100 percent gluten free and no i don't eat at restaurants at all. I got glutened by a chips that was marked as gluten free but it wasn't the company said the packaging was old and the recipe was new. 
    • Scott Adams
      My son newly diagnosed

      By Scott Adams · Posted

      Welcome to the forum, the biggest source of cross-contamination would be eating our in restaurants--even ones that have a gluten-free menu. If your son was just recently diagnosed I'd recommend trying not to eat out during his healing period, which could last up to a year or more, depending on how much villi damage he had.
×
×
  • Create New...