Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Not Feeling Well Again!


Walter S

Recommended Posts

Walter S Explorer

Hello everyone! I was hoping you all might have some advice on what could be making me sick (glutened). Yesterday, I went to a friend's house about 40 miles away from my house. It was his son's 6th birthday and my friend and I dressed up as mad scientists and put on a show with science experimants for the kids. We used the following things, (though I came in contact with them I did not eat any of these) cornstarch, green food coloring, water, oil, vinegar, and alka-seltzer. The kids and adults ate pizza, chips, chocolate cake with icing, beer, wine, and soda. However, I brought my own food. I brought a piece of chicken that I marinated in gluten-free balsamic dressing (the brand name was Annie's I think) and grilled, a couple spoons of gluten-free risotto, and a small handful of gluten-free pretzel sticks. I drank a mug of decaf tea on the way there and had 2 bottles of water at the party. During the party I had some of the famous "brain fog" and diziness. On the ride home I got a BAD stomach ache and had to stop at a rest area on the highway to use the restroom. I had severe stomach cramps and diarrhea for quite a while. Being in a public restroom and feeling/being so sick simply added insult to injury becasue I had to deal with the discomfort I have with using public restrooms which I have mentioned before. I just barely made it to the bathroom in time. Today I am still having bouts of diziness, diarrhea, and a sore neck??? And this afternoon I have a christening to attend and they are having the food catered for it afterwards. I am not really sure what I am going to do then. I may decline all food that does not seem "safe" and just have a tiny bit of something and say I am not feeling well? Any ideas what could be making me sick? If it's CC does that mean I have to throw out all of my food and get new stuff??? Thanks in advance if you have any information. I am so sick of getting these stomach aches!!! It's a rough life like this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Sorry you're feeling bad. My thought might be Annie Balsamic Dressing. Some of Annies are gluten free, but many are not. I don't have it in may house and I love Balsamic Dressing,which makes me think that it may not be gluten free.

Can you list the ingrediences?

happygirl Collaborator

according to their website, the balsamic vinagrette dressing is gluten free. Open Original Shared Link

Walter, I'm sorry to hear that you had a reaction. I'm not sure what it is that you could be reacting to...did you touch any unsafe food (pizza, etc?) Did you rill your chicken at home or did someone else do it? When you grilled, was it on a safe grill?

I hope you are feeling well enough to attend the christening. I would just decline the food anyways, regardless of if you were feeling ill or not. Tell them its more important to you to enjoy the occassion than risk getting sick. Bring your own food.

By the way, how long have you been gluten free?

Get some immodiums to ALWAYS keep with you...in your car, your wallet, etc for those moments. It is a lifesaver.

Hope you feel better soon...let us know how you are doing.

Laura

Walter S Explorer

Thanks for the response. I am going to see if I can find the empty bottle and list the ingredients. I wondered if just breating in corn starch or touching food coloring or something like that could have somehow been the problem. I am probably just stretching to find a reason with those. I also find it hard to know if I am sick becasue of this condition (or Crohn's, becasue I have been diagnosed with both Celiac and Crohn's) or maybe I am just plain sick. I wnder sometimes (like this one) if just maybe I have a plain old stomach ache or stomach virus or something just plain didn't agree with my stomach like it could for somebody without these conditions. How would we ever know. I just assume it's glutening becasue of the severity and urgentness of the diarrhea as well as the dizzy spells that come with it. Perhaps many of the times when I got a stomach ache, etc. in the past it was becasue of gluten. Who knows? It's just something I find myself thinking about often so I thoiugh I should mention it.

Walter S Explorer
according to their website, the balsamic vinagrette dressing is gluten free. Open Original Shared Link

Walter, I'm sorry to hear that you had a reaction. I'm not sure what it is that you could be reacting to...did you touch any unsafe food (pizza, etc?) Did you rill your chicken at home or did someone else do it? When you grilled, was it on a safe grill?

I hope you are feeling well enough to attend the christening. I would just decline the food anyways, regardless of if you were feeling ill or not. Tell them its more important to you to enjoy the occassion than risk getting sick. Bring your own food.

By the way, how long have you been gluten free?

Get some immodiums to ALWAYS keep with you...in your car, your wallet, etc for those moments. It is a lifesaver.

Hope you feel better soon...let us know how you are doing.

Laura

Walter S Explorer
according to their website, the balsamic vinagrette dressing is gluten free. Open Original Shared Link

Walter, I'm sorry to hear that you had a reaction. I'm not sure what it is that you could be reacting to...did you touch any unsafe food (pizza, etc?) Did you rill your chicken at home or did someone else do it? When you grilled, was it on a safe grill?

I hope you are feeling well enough to attend the christening. I would just decline the food anyways, regardless of if you were feeling ill or not. Tell them its more important to you to enjoy the occassion than risk getting sick. Bring your own food.

By the way, how long have you been gluten free?

Get some immodiums to ALWAYS keep with you...in your car, your wallet, etc for those moments. It is a lifesaver.

Hope you feel better soon...let us know how you are doing.

Laura

Walter S Explorer

WHOOPS! SO SORRY!!!!! I was trying to quote and respond and instead it seems I quoted TWICE without a response! I did cook the chicken on my grill at home and I made the risotto at home. I seal the meal in a tupperware and I heated i tin the microwave. The only way I may have come in to contact with the pizza or cake is by helping clean up the plates after the kids ate.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kbtoyssni Contributor

Did you grill the chicken BBQ-style or in a frying pan? If it was BBQ-style, the grill could easily be contaminated from previous cooking. Some charcoal also has gluten in it so I always cook in foil just in case.

CarlaB Enthusiast

What kind of grill do you have? Regular charcoal has gluten. :blink: When I first went gluten-free and couldn't figure out what got me, it was the charcoal!

I now use natural charcoal. It's actually easier to use anyway!

Also, is your grill completely clean of past grilling residue that may have contained gluten? You can just burn it off.

Walter S Explorer

I have been on the gluten-free diet for about 3-4 weeks now, I think. Also, I used a George Foreman grill in the kitchen which I always clean after each use. However, I am glad to have learned about the outside charcoal grills and contamination that it can cause. Now I will be prepared and able to head off a future problem when I start grilling outdoors in the summer. I did make it to the Christening today, but I had to leave early becasue I got very sick during the reception afterwards and now I have been painfully running to the bathroom non-stop since I got home. Is there any way to keep a positive attitude and not get frustrated and down when that is going on???

Mango04 Enthusiast
. I brought a piece of chicken that I marinated in gluten-free balsamic dressing (the brand name was Annie's I think) and grilled, a couple spoons of gluten-free risotto, and a small handful of gluten-free pretzel sticks. I drank a mug of decaf tea on the way there and had 2 bottles of water at the party.

Are you exploring possibilities of other intolerances or are you pretty sure your only problem is gluten? I only ask because gluten-free pretzels usually contain high concentrations of soy flour (which can be really hard on the digestive system). The other thing I wonder about is the risotto. Did your risotto contain dairy? Even if it didn't, I've had reactions from gluten and dairy-free risotto. I'm not sure why...maybe it something to do with the starch?

Sorry you are struggling. It sounds like you are eating good healthy food....I can imagine how frustrating it must be...

Walter S Explorer

It definitely is frustrating and I certainly am making all efforts to eat healthy food and avoid gluten. I have noticed that diary seems to upset my stomach and so I have been avoiding it. Maybe it was the pretzels or risotto, but I have eaten them on other days without a problem. What might be the best way to find other possible food intolerances I could have? I have called the GI doc, but he has not seemed too worried and does not seem to be much of a help. So I continue to feel sick and suffer. Very annoying and frustrating. I guess I should get a new doc but I don't feel like starting over again.

happygirl Collaborator

If you have Crohn's on top of Celiac, you will probably get sick/have episodes, even if you are gluten free. Your episdoes may very well NOT be related to Celiac.

The other thing---if you have only been gluten-free for 3-4 weeks, you probably haven't healed yet ... so you might be eating gluten free, but you aren't healed, and therefore, your body is still having trouble digesting anything. Add in the Crohn's.....etc etc etc.

You mentioned touching corn starch...that is gluten free and is not a problem.

There are medications for those with Crohn's...are you being treated for it? If not, I would ask for a second opinion.

NoGluGirl Contributor

Dear Walter,

I am so sorry to hear you have been suffering. :( I have a feeling the dizziness could be from being anemic. Many people who have Crohn's end up anemic (as do Celiacs). If you have GI bleeding, you are a very likely candidate. Have you been tested? The diarrhea also could be dehydrating you, adding to it further. Electrolytes tend to get low. Drinking a Gatorade Thirst Quencher will help that. Pedialyte is another option. Would someone confirm that Pedialyte is safe, please?

Another thing is you could have been cc'd. Using someone else's microwave could cause that. When you heat your food, other food particles can accidentally get in your food! If it was covered, that should have prevented it. However, you may be like me where only a small amount of certain things is tolerated well. I cannot tolerate dairy products such as yogurt or pudding. I get as ill as I get from gluten if I eat them. However, I can tolerate chocolate with it in there. :blink: I am not sure why. Perhaps small amounts of lactose are alright, but not anything else. I also seem to tolerate cheese alright. One day, I ate beans several days in a row, and tolerated them every day but the last day. How odd is that?

Sincerely,

NoGluGirl

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,311
    • Most Online (within 30 mins)
      7,748

    SWilson
    Newest Member
    SWilson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, Linda! Many on this forum can sympathize with you. It can be extremely difficult to get reliable information about gluten when it comes to meds, supplements and oral hygiene products. This is especially true since so much of this stuff is generic and comes from over seas. I will deflect with regard to your question about meds and oral products but take you in another direction. Have you tried a low iodine diet. Iodine is known to exacerbate dermatitis herpetiformis and some find that a low iodine diet helps reduce the number of outbreaks. By the way, have you had your celiac antibodies retested recently? If they are elevated that might be a clue that you are getting gluten in your oral hygiene products or meds.
    • Itsabit
      Hi. I’m 70 years old, and a 22 year survivor of head and neck cancer treated with chemo-radiation, which resulted in non-existent submandibular salivary glands and extreme dry mouth and altered oral mucosa. I have been using dry mouth toothpaste, Rx oral dentrifices and moisturizers for years.  I’ve recently been diagnosed with severe celiac dermatitis herpetiformis. I was being treated with oral Dapsone, but it was not effective and I developed some serious side effects. So, the medication was stopped and I was started on Doxycycline (another antibiotic) for inflammation. I’ve been using Rx Betamethasone steroid ointment with little to no effect. I have tried every oral and topical antihistamine treatment available OTC. None have touched this horrible relentless itching. That is my history.  Now to my question. Does anybody know about gluten free toothpastes and mouth moisturizers? I ask because a very common dry mouth brand stated to me that they were indeed gluten free. But as I am not getting any better with my dermatitis herpetiformis, I was wondering if I was getting glutenized some way other than diet as  I have been following a strict clean gluten free diet, but I am not seeing any improvement at all. So, I started looking up the toothpastes and moisturizer ingredients individually and nine (9) of the eleven (11) or so listed showed up as   containing gluten or that may have gluten! Am I getting glutenized orally by these products?  As an aside, I checked on my favorite lavender scented baby lotion which is supposed to be gluten free, but many of those ingredients when investigated separately, show they  do contain or may contain gluten as well. I stopped using the lotion. But I cannot forgo my dental care. I was unable to get any information from the manufacturer of my current brand of chewable multivitamins either. They told me to check with my doctor. If THEY don’t know what’s in their product, how do they think a PCP will?  In light of all this, I am confused and angry that I might keep getting contaminated with gluten through products I am using that are supposedly gluten safe. *I should also state that I have a nickel allergy since I was about 12-13 years old. And I developed a contact allergy to latex (gloves) when I was a student nurse at 19 years old.  I know and I’m sorry that this is so lengthy. I’m trying to do everything I can to combat this condition, and I’m feeling very confused, anxious and angry about not getting adequate information as I try to educate and advocate for myself. I’m hoping someone here is more knowledgeable than me of how to navigate through all of this. Can anyone offer any advice?  Thank you for your time.  Respectfully,  Linda
    • trents
      Welcome to the forum, @Cathijean90! I went 13 years from the first laboratory evidence of celiac disease onset before I was diagnosed. But there were symptoms of celiac disease many years before that like a lot of gas. The first laboratory evidence was a rejected Red Cross blood donation because of elevated liver enzymes. They assume you have hepatitis if your liver enzymes are elevated. But I was checked for all varieties of hepatitis and that wasn't it. Liver enzymes continued to slowly creep up for another 13 years and my PCP tested me for a lot of stuff and it was all negative. He ran out of ideas. By that time, iron stores were dropping as was albumin and total protein. Finally, I took it upon myself to schedule an appointment with a GI doc and the first thing he did was test me for celiac disease. I was positive of course. After three months of gluten free eating the liver enzymes were back in normal range. That was back in about 1992. Your story and mine are more typical than not. I think the average time to diagnosis from the onset of symptoms and initial investigation into causes for symptom is about 10 years. Things are improving as there is more general awareness in the medical community about celiac disease than there used to be years ago. The risk of small bowel lymphoma in the celiac population is 4x that of the general population. That's the bad news is.  The good news is, it's still pretty rare as a whole. Yes, absolutely! You can expect substantial healing even after all these years if you begin to observe a strict gluten free diet. Take heart! But I have one question. What exactly did the paperwork from 15 years ago say about your having celiac disease? Was it a test result? Was it an official diagnosis? Can you share the specifics please? If you have any celiac blood antibody test results could you post them, along with the reference ranges for each test? Did you have an endoscopy/biopsy to confirm the blood test results?
    • Cathijean90
      I’ve just learned that I had been diagnosed with celiac and didn’t even know. I found it on paperwork from 15 years ago. No idea how this was missed by every doctor I’ve seen after the fact. I’m sitting here in tears because I have really awful symptoms that have been pushed off for years onto other medical conditions. My teeth are now ruined from vomiting, I have horrible rashes on my hands, I’ve lost a lot of weight, I’m always in pain, I haven’t had a period in about 8-9 months. I’m so scared. I have children and I saw it can cause cancer, infertility, heart and liver problems😭 I’ve been in my room crying for the last 20minutes praying. This going untreated for so long has me feeling like I’m ruined and it’s going to take me away from my babies. I found this site googling and I don’t know really what has me posting this besides wanting to hear from others that went a long time with symptoms but still didn’t know to quit gluten. I’m quitting today, I won’t touch gluten ever again and I’m making an appointment somewhere to get checked for everything that could be damaged. Is this an automatic sentence for cancer and heart/liver damage after all these symptoms and years? Is there still a good chance that quitting gluten and being proactive from here on out that I’ll be okay? That I could still heal myself and possibly have more children? Has anyone had it left untreated for this amount of time and not had cancer, heart, fertility issues or liver problems that couldn’t be fixed? I’m sure I sound insane but my anxiety is through the roof. I don’t wanna die 😭 I don’t want something taking me from my babies. I’d gladly take anyone’s advice or hear your story of how long you had it before being diagnosed and if you’re still okay? 
    • trents
      Genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out and also to establish the potential to develop celiac disease. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop it. To develop celiac disease when you have the genetic potential also requires some kind of trigger to turn the latent genes "on", as it were. The trigger can be a lot of things and is the big mystery component of the celiac disease puzzle at this point in time with regard to the state of our knowledge.  Your IGA serum score would seem to indicate you are not IGA deficient and your tTG-IGA score looks to be in the normal range but in the future please include the reference ranges for negative vs. positive because different labs used different reference ranges. There is no industry standard.
×
×
  • Create New...