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- Wheatwacked replied to Gluten is bad's topic in Gluten-Free Foods, Products, Shopping & Medications4Gluten Free ADHD medications
I take Clonidine for blood pressure control. It is the only one that did not debiltate me. It also helps with my ADD. Doctors always turned me down when I requested Ritalin (I am an adult) so it turned out for the best that I reacted badly to all the different BP meds they tried. Originally Clonidine was developed for ADHD adolescents that could not... -
- Wheatwacked replied to ABP's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
9 year old- questionable results
You should also have her checked for vitamin deficiencies. "Iodine's presence in the diet can contribute positively to hair strength and elasticity by maintaining hair follicle cycling and supporting the synthesis of hair shaft components like keratin. Keratin is strong and won't dissolve in diluted acids, alkalines, solvents, or water" "Keratosis... -
- gregoryC replied to gregoryC's topic in Traveling with Celiac Disease7Celebrity Cruise for Gluten Free
Just finished my second celebrity cruise. My first was on one of their oldest ships, it was awesome! Now we have sailed on the edge class. Wow! Not only do they have so many gluten-free options but the selection is mind blowing! Any given day you will have between 5 to 7 different gluten-free cakes to try. Yes that is right, one day at the coffee shop I had... -
- trents replied to ABP's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms29 year old- questionable results
Welcome to the forum, @ABP! We can't comment on the test numbers you give as you didn't include the range for negative. Different labs use different units and different ranges. There are no industry standards for this so we need more information. If your daughter doesn't have celiac disease she still could have NCGS (Non Celiac Gluten Sensitivity...- 1
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- ABP posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms29 year old- questionable results
My nine-year-old daughter has suffered with severe constipation and bloating for years as well as frequent mouth sores, and keratosis Polaris on her arms. She also has recently decreased on her growth curve her % going down gradually. After seeing a gastroenterologist, her IgG GLIADIN (DEAMIDATED) AB (IGG) was 22.4 while her IGA was normal. Her TISSUE TRANSGLUTAMINASE...
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0December 11, 2024 12:00 AM
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By Wheatwacked · Posted
I take Clonidine for blood pressure control. It is the only one that did not debiltate me. It also helps with my ADD. Doctors always turned me down when I requested Ritalin (I am an adult) so it turned out for the best that I reacted badly to all the different BP meds they tried. Originally Clonidine was developed for ADHD adolescents that could not tolerate Ritalin. -
By Wheatwacked · Posted
You should also have her checked for vitamin deficiencies. "Iodine's presence in the diet can contribute positively to hair strength and elasticity by maintaining hair follicle cycling and supporting the synthesis of hair shaft components like keratin. Keratin is strong and won't dissolve in diluted acids, alkalines, solvents, or water" "Keratosis pilaris is a benign skin condition characterized by small bumps around hair follicles. It is caused by excess keratin, a protein that forms hair, nails, and skin. Iodine is not directly related to keratosis pilaris, but certain foods can help improve it" It could be deficiency in iodine may be causing the keratosis Polaris. Insufficient iodine intake affects healing, intellegence skin and nails. The average intake of iodine fell 50% from 1970 to now. A Medium Urinary Iodine Concentration test will indicate intake. TSH and T4 will not show iodine intake deficiency until damage is being done. Most newly diagnosed Celiac Disease and other autoimmune diseases are deficient in vitamin D when diagnosed. Other than bone growth, vitamin D is essential for mental health and the immune system. -
Just finished my second celebrity cruise. My first was on one of their oldest ships, it was awesome! Now we have sailed on the edge class. Wow! Not only do they have so many gluten-free options but the selection is mind blowing! Any given day you will have between 5 to 7 different gluten-free cakes to try. Yes that is right, one day at the coffee shop I had to choose between 5 gluten-free cakes not including the several puddings on display. So they gave me a small piece of each. 2 were great, 2 were just good, and 1 I did not enjoy. But never have I had the tough decision of which cake to eat? These selections are from their normal options available for all guest. In the main dining room they always surprised me with some awesome desserts. In my opinion the best pizza was on the Millennium class and best buffet on the Edge class. Although these two ship vary in size they are both consistent and serving high quality food from the main dinning room. The edge class gives you 4 “main” dining rooms (all included). I was unsure how this would work with my gluten-free diet? It worked great! I was able to order or see the next night’s menu for each of the four dinning venues finding that very little to no modifications needed to be made due to their extensive gluten free options. The Millennium and Edge class ships provide the best gluten-free options from any of the cruise lines I have sailed with. You will find a larger selection and options on the edge class ships, however you will not be disappointed with the smaller Millennium class. Which is still my favorite cruise ship to date.
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Welcome to the forum, @ABP! We can't comment on the test numbers you give as you didn't include the range for negative. Different labs use different units and different ranges. There are no industry standards for this so we need more information. If your daughter doesn't have celiac disease she still could have NCGS (Non Celiac Gluten Sensitivity) which some experts believe can be a precursor to celiac disease and is 10x more common than celiac disease. However, there is no test for it yet but it does share many of the same symptoms with celiac disease. Both require complete abstinence from gluten. It is seldom the case during testing where all tests are positive, even for those who do have celiac disease. This is no different than when diagnosing other medical conditions and that is why it is typical to run numbers of tests that come at things from different angles when seeking to arrive at a diagnosis. It seems like you are at the point, since you have had both blood antibody testing and endoscopy/biopsy done, that you need to trial the gluten free diet. If her symptoms improve then you know all you need to know, whatever you label you want to give it. But given that apparently at least one celiac antibody blood test is positive and she has classic celiac symptoms such as slow growth, constipation and bloating, my money would be on celiac disease as opposed to NCGS.
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My nine-year-old daughter has suffered with severe constipation and bloating for years as well as frequent mouth sores, and keratosis Polaris on her arms. She also has recently decreased on her growth curve her % going down gradually. After seeing a gastroenterologist, her IgG GLIADIN (DEAMIDATED) AB (IGG) was 22.4 while her IGA was normal. Her TISSUE TRANSGLUTAMINASE AB, IGA was 11.9. Most recently her genetic test for celiac was positive. After an endoscopy her tissue showed inflammation of the tissue as well as , increased intraepithelial lymphocytes (IELs) but there was no blunting of the change in the villi. It seems that every result that we get one out of two things positive rather than all leading to an inconclusive diagnosis. While we do have another appointment with the doctor to go over the results. I'm curious based on this information what others think. I would hate to have her eliminate gluten if not necessary- but also don't want to not remove if it is necessary. Signed Confused and Concerned Mama
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