Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Casein Vs. Lactose?


GeoffCJ

Recommended Posts

GeoffCJ Enthusiast

"So, if he can eat cheese without any reaction, he is most likely lactose intolerant. But, if he has a reaction to cheese than he may be casein intolerant."

What's the easiest way to tell reliably which I'm reacting too?

Thanks,

Geoff


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

The easiest way would be to avoid dairy for a time, then drink milk and take a lactaid. If it still bothers you, it was the casein.

SunnyDyRain Enthusiast

I've heard that it sometimes takes a large dose of lactaid to help lactose intolerant people.

Is there blood work or something they can test for?

How come dairy is just starting to bother me now, 3 weeks after going gluten free?

missy'smom Collaborator

Been wondering about this for the longest time. So, for those who are casein intolerant, what happens if you drink Lactaid milk?

dlp252 Apprentice
Been wondering about this for the longest time. So, for those who are casein intolerant, what happens if you drink Lactaid milk?

Terrible sinus congestion leading to sinus infection develops over a few days to a week. :(

Sometimes gas, bloating, diarrhea or any one or a combination of those, happens within a few hours of ingesting.

CarlaB Enthusiast
Been wondering about this for the longest time. So, for those who are casein intolerant, what happens if you drink Lactaid milk?

It makes no difference that it has lactaid since it's the casein that bothers them.

Sunny, the dairy may have been bothering you all along but you only started noticing it as you started feeling a bit better. That would be my guess.

Enterolab tests for casein sensitivity. I tested positive, went off casein for six months and noticed no difference at all. I added it back and had no problems. I don't think any test is accurate all the time.

missy'smom Collaborator

My problem must be lactose then because in the past there was a big difference in my reaction to Lactaid vs. regular milk. On a day when my system is running smoothly, I should try a test again and drink a glass of Lactaid milk and see how I feel, now that I'm gluten-free (never drink it straight up). My mother was told when I was an infant that I had a milk allergy so she just didn't give it to me in a glass :huh: I got it in every other form!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SunnyDyRain Enthusiast
Sunny, the dairy may have been bothering you all along but you only started noticing it as you started feeling a bit better. That would be my guess.

I could see that if I didn't have 2 weeks of good BM's , and feeling good before the dairy started to effect me.

To me it seems once my body got used to not eat gluten, it said "OH CRAP, she's feeling good....now how are we going to screw with her?!"

ArtGirl Enthusiast
Enterolab tests for casein sensitivity. I tested positive, went off casein for six months and noticed no difference at all. I added it back and had no problems. I don't think any test is accurate all the time.

It may have been a false positive, but this I think is very rare. I tested positive to Casein through Enterolab, but also through other labs as well. They were dead-on.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748

    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.