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- Wheatwacked replied to KCGirly's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5Symptoms and trying to figure this out
Also ask for a test of vitamin D levels. I agree with knitty kitty that cyclical Thiamine deficiency may be the cause of your cycle. Celiac Disease causes multiple vitamin and mineral deficiencies. Itchy palms can be a symptom of iodine deficiency. Low iodine levels can lead to dry, flaky skin on the hands and body due to the disruption... -
- Lkg5 replied to ABP2025's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms24Guidance on next steps after the lab tests
Be cautious with vitamin D if you are female and post-menopausal. I had to decrease my D dosage from 4000 IU/day to 2000 IU because of hormonal acne and unwanted facial hair - likely from an increased testosterone level from the D. Finally relief! I hope to keep my D level below 50 nm/l now. -
- knitty kitty replied to dlaino's topic in Coping with Celiac Disease4Coping with celiac
Do you eat processed gluten free foods? -
- Scott Adams replied to dlaino's topic in Coping with Celiac Disease4Coping with celiac
You may want to wear an N-95 mask to filter out any possible gluten, at least when you handle the flour. -
- Scott Adams replied to Sharke's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
3 years with Celiac, now I appear fine.
It sounds like you've been on quite the journey trying to understand your symptoms and diagnosis. It’s great that you’re planning to consult a doctor for allergy testing, as distinguishing between a wheat allergy, celiac disease, or another gluten-related condition is crucial for moving forward. The fact that you’ve tolerated barley and wheat products witho...
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By Wheatwacked · Posted
Also ask for a test of vitamin D levels. I agree with knitty kitty that cyclical Thiamine deficiency may be the cause of your cycle. Celiac Disease causes multiple vitamin and mineral deficiencies. Itchy palms can be a symptom of iodine deficiency. Low iodine levels can lead to dry, flaky skin on the hands and body due to the disruption of normal skin cell regeneration caused by a lack of thyroid hormone production, which relies on iodine. Other symptoms are fatigue, weight gain, sensitivity to cold. I take between 600 and 1200 mcg a day Liquid Iodine. It has improved my healing. Strong Iodine and Lugols Solution are other options. Start low and build up over time. Between 1970 and 1988 the dietary intake of Americans dropped by 50%. Perhaps this is why some can tolerate the bread in Europe? -
Be cautious with vitamin D if you are female and post-menopausal. I had to decrease my D dosage from 4000 IU/day to 2000 IU because of hormonal acne and unwanted facial hair - likely from an increased testosterone level from the D. Finally relief! I hope to keep my D level below 50 nm/l now.
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By Scott Adams · Posted
You may want to wear an N-95 mask to filter out any possible gluten, at least when you handle the flour. -
By Scott Adams · Posted
It sounds like you've been on quite the journey trying to understand your symptoms and diagnosis. It’s great that you’re planning to consult a doctor for allergy testing, as distinguishing between a wheat allergy, celiac disease, or another gluten-related condition is crucial for moving forward. The fact that you’ve tolerated barley and wheat products without recent symptoms might suggest something other than celiac disease, but as you noted, the absence of immediate symptoms doesn’t necessarily rule out potential underlying damage, especially if celiac disease is still a possibility. It’s worth discussing whether you should undergo updated testing, such as genetic testing for celiac markers (HLA-DQ2/DQ8), or even revisiting an endoscopy if appropriate. In the meantime, keep documenting your experiences with food and symptoms—it could provide valuable insights for your healthcare provider. It’s also important to test for other possible causes of your original symptoms, like IBS, food intolerances, or even other autoimmune conditions, to ensure nothing is overlooked.
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