Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Positive Blood Work


momof2sn

Recommended Posts

momof2sn Apprentice

I joined this message board on the 18th of April in dispair. My daugter, 21 mo, had an endoscopy on the 28th of March with a negative biopsy. She had the genetic make-up for celiac. The doctor pointed out that her B-12, folate and iron were low. She was lactose intolerant and her intestines were inflammed. She has also had diarrhea forever. Well, I got on here and basically said "HELP" Because of all of you I was compelled to call the doctor. The next day, she called, the blood work that was ordered for July (we were on a wait and see for my baby) was never done the first time!!!!!!!!! A big OOPS on there part!! We had the blood work done last Tuesday and by Friday I had learned enough and put here on the diet. Well two days later no more diarrhea!!! No, I didn't think I could get so excited about poop!!! Anyways, doc called me yesterday morning and said her blood work was positive!!! They want to do another endoscopy, I said "No" She was shocked I had already put her on the diet and said most moms want a positive biopsy to go with all the symptoms before they try the diet. I said all of this to say "THANK YOU". If I would have not gotten so much information and encourgement from all of you, I probably would still be dealling with diarrhea and not know any different!!

Ya'll are a great group of people and should pat yourself on the backs for helping my little baby get well, for good!!!!!!!!!!!!!!!

Shealey


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

Glad to hear everything worked out for you. Your daughter will feel much better soon.

Canadian Karen Community Regular

That's wonderful news! You will soon notice some wonderful, positive changes in your child now! She is on the road to health!

Hugs and welcome!

Karen

Lisa Mentor

It wonderful to hear about some good news. I am so happy for you and your daughter!

JennyC Enthusiast

I'm so happy to hear that your daughter is getting better! It's amazing how happy we can get over poop! :lol: I hope your daughter continues to thrive on this diet and that you will be amazed by her progress.

Ursa Major Collaborator

Congratulations, that's wonderful news! Have you put her on supplements for her deficiencies? It takes too long to fix those without supplements.

You can give yourself a pat on the back for doing the right thing for your daughter, you can't rely on doctors to be much help.

momof2sn Apprentice
Congratulations, that's wonderful news! Have you put her on supplements for her deficiencies? It takes too long to fix those without supplements.

You can give yourself a pat on the back for doing the right thing for your daughter, you can't rely on doctors to be much help.

She is only on a multi-vitamin. Should she be on anything else?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - eKatherine replied to SaiP's topic in Coping with Celiac Disease
      12

      Dangerously underweight, Perfect gluten free and insomnia

    2. - trents replied to AndiOgris's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      False blood test positive?

    3. - Russ H replied to AndiOgris's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      False blood test positive?

    4. - trents replied to sillyyak52's topic in Coping with Celiac Disease
      6

      Family education

    5. - Rogol72 replied to sillyyak52's topic in Coping with Celiac Disease
      6

      Family education


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,176
    • Most Online (within 30 mins)
      7,748

    Marla Jansen-DeMarco
    Newest Member
    Marla Jansen-DeMarco
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • eKatherine
      I suggest you look at your calorie intake. If you're not eating enough calories, your body will signal you to wake up and forage for more food. You need to be eating more calories than a healthy person of normal weight in order to gain weight. Also, your diet is extremely low in fat unless you are eating chicken thighs with the skin on, which I would recommend. Also be sure to add butter (real butter) to your vegetables. You can measure and record everything you eat, then look up and calculate what your protein/carb/fat intake is. Or just eat more chicken rather than filling up on vegetables and fruit.
    • trents
      Since your mother has celiac disease, I would still keep an eye on this as there is a genetic component. Study results vary wildly, but the numbers are that anywhere from 10% to almost 50% of the first degree relatives of those with active celiac disease will themselves develop celiac disease.
    • Russ H
      Your initial test showed a moderately raised level of IgA tTG2. There are several causes of this apart from coeliac disease including: inflammation of the joints, bowel and liver. Transient rise in levels can be caused by an infection.
    • trents
      Rogol72, your recommendation to the OP to "show them pictures of dermatitis herpetiformis" confuses me as the OP does not mention having dermatitis herpetiformis.
    • Rogol72
      Hi @sillyyak52, I empathize with you. I would suggest showing them pictures of "dermatitis herpetiformis" which is a complication of undiagnosed/untreated Coeliac Disease. You can find them on Google images. It's pretty alarming to see and it may be the wake up call they need to visually understand what gluten can really do to the body. In this case the skin ... The Coeliac rash that won't go away without a strict gluten free diet and Dapsone treatment (a toxic antibiotic). I'd also look at @glutenhatesmyguts on youtube  ... a funny educational take on Coeliac Disease ... the clips titled as follows may help ... "Celiac Disease Explained | Why Gluten REALLY Hates My Guts!" and "Story time: I almost ..." This person is on Tiktok also and has a category "Coeliac & gluten-free Info ". There's plenty of Coeliacs on Tiktok and IG posting frequently and advocating for themselves about the need to be strict and what happens when they get glutened.    Celiac Canada also has good resources on YT, both long and short educational clips  ... @CCACeliac . Do you know any Coeliacs in your area who could help you explain the need to be so strict? Some Coeliacs have mild symptoms while others have awful reactions to just a few crumbs. Or maybe the nurse could put you in contact with some other Coeliacs or a support group to help you with your family. Hope this helps you. And keep advocating for yourself no matter what.
×
×
  • Create New...