Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab


pnltbox27

Recommended Posts

pnltbox27 Contributor

dx in feb by blood test and also upper and lower scope all came back positive for celiac, so i have no problem accepting the fact i have celiac and i am lving the gluten-free life, but my question is do i need to also get tested with enterolab??will that give me a better idea how screwed up my inside are??i see in alot of peoples signatures test levels and results and was just curious.. thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Nope. No need for you. You have the gold standard of celiac tests!

Enterolab is best for those of us who are negative for celiac but nontheless think we're sensitive to gluten. It's also good for someone who's already gluten-free and isn't willing to go back on gluten for testing.

Nantzie Collaborator

Nope. Enterolab is generally used when someone has negative or inconclusive tests, but still responds to the gluten-free diet as if he has celiac. A lot of people get enterolab to make sure they're barking up the right tree and it's not "all in their head".

Since you have positive tests, I would skip the Enterolab unless you want to do it out of curiousity. Some people like to know what genes they're dealing with, for example. They do a full genetic panel for all the genes associated with gluten problems (not just the celiac genes) for $150.

Nancy

pnltbox27 Contributor

ok thanks ,but one more question what will the full genetic panel tell me??does that cover allergies to dairy , nuts etc....?

CarlaB Enthusiast

No, it will tell you whether you have celiac genes or gluten intolerant genes. Unless you're Asian, you have either celiac or gluten intolerant genes as there's only one gene not considered to be gluten intolerant.

All it would tell you is whether you had one or two celiac genes. A few people have celiac with gluten intolerant genes, but MOST celiacs have a celiac gene.

The best test for other foods is an elimination diet.

Nantzie Collaborator

The genetic test will tell you if you have one celiac gene and one gluten intolerant gene, or two celiac genes, or two gluten intolerant genes. Two gluten intolerant genes aren't likely because you tested so strongly positive, but it's still possible. This is done by a cheek swab.

The rest of what Enterolab does is via stool testing - You can actually order individual tests, so if you're concerned that there might be another food intolerance going on, you can do that. They have individual tests for:

Casein (dairy) - $99

Egg - $99

Yeast - $99

Soy - $99

Gluten - $99

Open Original Shared Link

These are all intolerances and not the same as an allergy. If you go to an allergist they can identify any true allergies, such as nuts. I've never been, so maybe someone else can give you more info on how all that works.

Nancy

Nantzie Collaborator

Hi Carla! Sorry 'bout that echo (echo.. echo.. echo...) :ph34r:

;)

Nancy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pnltbox27 Contributor

thanks for the info. and the quick response

ENF Enthusiast

I had all of the Enterolab tests (I think), even though I was previously diagnosed with Celiac by endoscope and blood tests. Enterolab found two Celiac genes.

According to the results I have soy and casein antibodies, also. I do not know if they mean anything, but I avoid dairy completely, and soy as much as possible.

There is a lab run by a diffrent company, which Dr. Peter Green recommends in some circumstances, that does DNA testing. I cannot remember the name, but it's been mentioned on this forum.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    2. - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    3. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    5. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,496
    • Most Online (within 30 mins)
      7,748

    dalimoda
    Newest Member
    dalimoda
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.