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Genetic Testing?

justme

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justme Enthusiast
justme
Posted

went to a Gluten Free Vendor Fair on Sunday and picked up a at home genetic testing kit.. i thought how great.. a simple cheek swab and you send it in... no getting jabbed with needles (which leads to me passing out) and no trecking to a doctor who has no idea why you are even doing it.. i open it up when i get home and BAM!!! $355 to get the test done! I'm about to call my insurance company to see if they cover it.. but before I do it I wanted to get opinions on these tests.. has anyone done this or other genetic testing for celiac? i tested positive in the blood test.. have yet to get the biopsy... i'm thinking if i test positive for the genetic test i dont need the biopsy? i really cannot even think about getting an IV nevermind actually doing it..

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MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

If you have a positive blood test why go any further? I trust my blood test and the diet. My brother did a biopsy after his blood test came back positive and it came back positive, too. Good luck to you.

SUZ42 Explorer
SUZ42
Posted
went to a Gluten Free Vendor Fair on Sunday and picked up a at home genetic testing kit.. i thought how great.. a simple cheek swab and you send it in... no getting jabbed with needles (which leads to me passing out) and no trecking to a doctor who has no idea why you are even doing it.. i open it up when i get home and BAM!!! $355 to get the test done!

It is much cheaper through EnteroLab!

jerseyangel Proficient
jerseyangel
Posted
It is much cheaper through EnteroLab!

I had the gene test done by Enterolab last fall, and it was $149 + $20 handling fee.

Kellygirl Rookie
Kellygirl
Posted
went to a Gluten Free Vendor Fair on Sunday and picked up a at home genetic testing kit.. i thought how great.. a simple cheek swab and you send it in... no getting jabbed with needles (which leads to me passing out) and no trecking to a doctor who has no idea why you are even doing it.. i open it up when i get home and BAM!!! $355 to get the test done! I'm about to call my insurance company to see if they cover it.. but before I do it I wanted to get opinions on these tests.. has anyone done this or other genetic testing for celiac? i tested positive in the blood test.. have yet to get the biopsy... i'm thinking if i test positive for the genetic test i dont need the biopsy? i really cannot even think about getting an IV nevermind actually doing it..

I tested positive for the blood test, but seeing as I was getting diagnosed with everything under the sun without proof I made the appointment and went to get the test done. It's not unpleasant but in my case it was not necessary. It proved exactly what the blood test did, I have Celiac Disease.

justme Enthusiast
justme
Posted
  • Author

does enterolab test for other things and do you need to go back to eating gluten?

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  • Posts

    • ShariW
      potato chip cross contamination

      By ShariW · Posted

      Cape Cod potato chips are gluten-free, according to the company. I've never had a problem with these.
    • Dawn Meyers
      Vaccines

      By Dawn Meyers · Posted

      I'm 63  Thank you for the article. I have worked with Dietitian at Mayo and also had breath testing done. They felt I was following a strict gluten-free diet along with eliminating sugar alcohol and chicory root. Also don't eat a lot meat, eggs and peppers. Because I get so sick I use only gluten-free products for my skin food medicine my pet food is gluten-free and I live alone so all my cooking stuff is all brand new prior to being diagnosed.  I buy only organic certified gluten free products and if not sure  look up or just don't eat or use. The Dermatologist at Mayo gave me a list of gluten-free products that I can use. ( personal products,  laundry detergent, I use vinegar and baking soda for cleaning ) . I ask family and friends to not bring  anything  in to my home that has gluten in it. I have tried  everything and my numbers still off the charts.   So as for the pneumonia vaccine I question if it has anything in it that will react negative in me? 
    • trents
      Vaccines

      By trents · Posted

      Dawn, yes, once the genes that give the potential for the development of celiac disease are "turned on" so to speak, they will be on for the rest of your life. It is not something that is cured or comes and goes but something that must be managed. Eliminating major sources of gluten from one's diet is pretty straight forward but many don't realize the multitude of places and ways gluten is hidden in the food supply and sneaks its way into our eats. So, eating "lower gluten' is easy but attaining a consistently and truly gluten free state is much harder and requires diligence. I am linking this article that might be of help to you in that regard:  
    • Scott Adams
      Opinions on my test results/symptoms

      By Scott Adams · Posted

      PS -  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. You mentioned that your bowel movements may be a bit more regular, so this could be another indication of NCGS.    
    • Scott Adams
      Vaccines

      By Scott Adams · Posted

      You did not mention your age, but depending on how old you are it makes a big difference on how important it is to get a flu vaccine. 
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