Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Got Sick From Canola Oil?


Yenni

Recommended Posts

trents Grand Master
(edited)

A gluten allergy would be scientifically defined since allergic reactions engage the immune system in specific ways. Intolerances are typically conditions that cause lower GI distress, as in lactose intolerance. Gluten sensitivity falls short of celiac disease but is usually viewed as creating some sort of toxic reaction that has a more systemic effect and can manifest itself in various ways such as brain fog and neurological problems. It does not damage the mucosa of the small bowel like celiac disease does. This is my understanding of the differences between these gluten-related medical conditions. The problem isn't so much differentiating them medically and scientifically but rather the confusion of the terms in the populace as driven by the indiscriminate use of these terms by marketing and pop science, which tends to lump all of them under the heading of "gluten intolerance" or "gluten allergy." Gluten sensitivity may be a precursor to celiac disease.

"Leaky gut" is the result of the damage done to the SB mucosa and is the chief defining characteristic of celiac disease. Dermatitis Herpetiformis is also considered to be a certain indicator of celiac disease. So if you have leaky gut I would certainly be tested for celiac disease since celiac disease does in fact have a genetic basis. We know the genes responsible. But it takes both the genes and a triggering event such as a viral infection to wake up the genes and produce an active condition of celiac disease. Otherwise, it remains in a latent form. Many people with the genes do not experience a triggering event and therefore the genes are not expressed in active celiac disease. Once you develop active celiac disease it does not go away. You will always need to avoid gluten entirely. Celiac disease is classified as an autoimmune disease since the ingestion of gluten by people whose celiac genes have been activated by a stressor (such as a viral infection) causes inflammation in the small bowel mucosa that damages the villi. In other words, the body is attacking itself. This in turn causes leaky gut and poor absorption of nutrients. Poor absorption of nutrients in turn causes a host of other medical conditions over the course of time. The turning on of the genes to wake up the latent celiac disease can happen at any time in life. Many with active celiac disease do not experience dramatic GI symptoms, at least at first. We call them "silent celiacs." Various medical conditions down the road typically develop, however.

The first stage of diagnosis of celiac disease is to get a serum celiac antibody panel done. The damage to the small bowel produces some characteristic antibodies. If the serum antibody panel is positive for celiac disease, especially if the results are not strongly indicative, the physician may order an endoscopy and biopsy of the small bowel to check for microscopic villi damage. Sometimes the damage is so severe the doc doing the scoping can see it even before sending the biopsy to the lab for analysis.

I would suggest you look into this. By the way, the inability to absorb fats is very common in celiac disease because of the damage to the SB mucosa and so people with celiac disease often see oily/fatty residue in their stools until the gluten free diet allows their villi to heal. That may take a year or more. I mention that in connection with your OP about canola oil.

Edited by trents

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



raspberryfirecracker Contributor
9 hours ago, Hoody123 said:

pathology courses in massage therapy school

This is not the same as being a diagnostician; knowing a disease exists doesn't make anyone a medical doctor trained to diagnose diseases.

9 hours ago, Hoody123 said:

I was diagnosed with IBS and leaky gut in college when I first developed these reactions. I was not born with them. Therefor I do not have a genetic disease

This isn't an accurate understanding of celiac disease, Hoody. You are born with the genes, but genetic diseases can either be active from birth, get triggered in adolescence, or get triggered in adulthood. People who have genes for Huntington's for example, will start developing nerve damage in their 30s and 40s. 

9 hours ago, Hoody123 said:

I believe celiac to be . . . (one of the strongest on the scale). I do not know if my understanding is correct

It's not correct. Celiac disease is not "the strongest" response to gluten on a scale of symptom severity. Someone who has a severe allergy to wheat gluten might go into anaphylaxis and die from exposure to a breadcrumb, and someone who has celiac could get a rash, mild bloating, and a headache and have no idea it's because of what they ate.

It's genetic in that, you inherit genes which come with these instructions to the immune system: If you find the presence of gluten, produce antibodies. Those antibodies are what do the damage, to our own tissues. Celiac is an autoimmune disease, and is one of the "great imitators." Stress makes any autoimmune disease worse, and easing stress makes any disease easier to live with, but it doesn't stop the underlying illness.

Your descriptions sound exactly like so many people here before we accepted we might have more than "an intolerance" which we could control by just living better. I count myself in that group. What you wrote is frightening, because we know that kind of denial, and we know how bad the disease sometimes has to get before people in denial are forced to acknowledge it. The truth is celiac disease is a silent killer. The truth is anyone with gluten intolerance should be evaluated by a doctor who can test for the antibodies, genes, and a biopsy if necessary (they're starting to diagnose without the biopsy if other tests are overwhelmingly positive) because it will get worse. Undiagnosed people just get diagnosed with other, seemingly unrelated diseases that never needed to occur if they'd have stopped ingesting gluten sooner. There is no easier time to live gluten free than right now. I wish you the best.

raspberryfirecracker Contributor

(And what trent said--sorry I didn't see there was a page two until I'd already replied!)

  • 4 years later...
gailc Newbie

I get coughing and choking from canola oil. I cough up stuff.  Symptom is like bronchitis.  I have gluten intolerance, maybe celiac.  the choking persists for about a week, it simulates a cold.  I got it from the gluten free menu at Outback too, that time I got cramps for 25 hours. the cramps start about 20 minutes after finishing eating.

 

  • 1 month later...
SoBannaz Rookie

No I use canola oil all the time never had a problem (yet) my body is so crazy who knows. But yes I can use canola oil and olive oil. I stay away from vegetable oil because of the soy, soy makes my throat tight it’s the reason I no longer eat chicken unless it’s from krogers because I noticed it made my throat tight looked up on their website majority of those chicken companies feed their chickens soy. The only brand I can tolerate is the one in Kroger’s Simple Truth. 

trents Grand Master

@SoBannaz, how are you using the term "vegetable oil"? I think all the oils you mentioned in your above post would be considered vegetable oils since they aren't made from animal tallow.

gailc Newbie

I avoid soy because of the link to breast cancer. I have had some scares and two biopsies. Not cancer.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

    2. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,871
    • Most Online (within 30 mins)
      7,748

    Koyanna
    Newest Member
    Koyanna
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SamAlvi
      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.