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- trents replied to Larzipan's topic in Related Issues & Disorders30Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?
Milaryrnn, your post is confusing. First, your celiac disease antibody testing is negative. By any chance had you already been on a gluten free diet before the blood draw for these tests was done? That would result in negative antibody testing even if you had celiac disease. Or, had you previously been diagnosed with celiac disease and had the antibody... -
- More2Learn replied to More2Learn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6Celiac Maybe a Possibility?
Thanks, yes, I've gone back and forth. There is a lot of autoimmune disease in my family, so primarily I was thinking a real diagnosis might be helpful for other family members -- especially as I have two young biological nephews. I feel like I am at a crossroads, where if I'm going to test now would be the time, since I've been in a less-than-perfect eating... -
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- Milarynn replied to Larzipan's topic in Related Issues & Disorders30Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?
Hello. I recently had an endo/colonoscopy and my GI Dr found lymphocytes in my stomach and small intestine. My TTG Ab, IgA was <2 (normal), GLIADIN (DEAMINATED) IGA at 5 (negative), and IgA at 237 (normal). However, a Lipase test revealed my levels were through the roof at 201, 3x above normal. My GI doctor ordered a dna test to confirm Celiac Disease... -
- kopiq replied to kopiq's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1starting to heal, vitamin d deficiant but cannot tolerate vitamins. what to do? also multiple ongoing issues.
I also have food particles left on toiet paper when i wipe and my stool is light yellow not absorbing fats. I urinate about 15 times a day and have very sticky snot,dry throat.
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0December 11, 2024 12:00 AM
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By knitty kitty · Posted
@Milarynn, Welcome to the forum! Many undiagnosed, untreated Celiac Disease patients have vitamin and mineral deficiencies. Be sure to have your Vitamin D level checked. Vitamin D helps prevent bone loss, including loss from the jaw and teeth. Magnesium and calcium are both important to bone health as well. Magnesium helps keep the calcium from leaving your bones. Magnesium helps make life sustaining enzymes with Thiamine Vitamin B1. Low Magnesium and/or low Thiamine results in muscle cramping. Thiamine deficiency is found in Pre-diabetes and Diabetes. Poor absorption of the eight water soluble B vitamins and Vitamin C are found in Celiac Disease. Insufficient Vitamin C can cause poor oral health, resulting in poor gum health such as receding and bleeding gums. Vitamin C is needed to fight bacteria that cause plaque which causes cavities. Vitamin C helps rebuild tooth enamel. I've had jaw muscle cramping, TMJ problems, tooth loss and gum problems. Do talk to your dentist about having Celiac Disease. Practice good oral hygiene. I'm also Diabetic and take Benfotiamine (a form of Thiamine) that helps regulate blood glucose and heal the intestines. Do keep us posted on your test results and your progress! -
Milaryrnn, your post is confusing. First, your celiac disease antibody testing is negative. By any chance had you already been on a gluten free diet before the blood draw for these tests was done? That would result in negative antibody testing even if you had celiac disease. Or, had you previously been diagnosed with celiac disease and had the antibody testing done to check for compliance with the gluten free diet? Second, DNA testing cannot be used to confirm celiac disease. 40% of the general population has the genetic potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. It takes both the genetic potential and some triggering biological stress event in order to develop active celiac disease. Otherwise, the genes remain inactive. High lipase levels would indicate some problem with your pancreas.
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By More2Learn · Posted
Thanks, yes, I've gone back and forth. There is a lot of autoimmune disease in my family, so primarily I was thinking a real diagnosis might be helpful for other family members -- especially as I have two young biological nephews. I feel like I am at a crossroads, where if I'm going to test now would be the time, since I've been in a less-than-perfect eating period. I'm either going to just going to use what I've learned in these last few months to purposely never cheat again (obviously there is the accidental glutening situations) or test first, and then do that. I don't need an official diagnosis so much that if I'm doing well I'm going to sabotage that by then starting to eat gluten again. I'm so glad you said this. Even from what I've read so far, it makes sense to me that this is a misconception. But growing up with all kinds of allergies, I can see how, as for the general population it's just easier for everyone to simplify it down to a type of "allergy," people would assume this. It's just how most people look at allergies and diets and gluten avoidance has been painted as both. I even see it in my journey to date, when I say I want a gluten free selection at a restaurant and I am asked "is it an allergy?" and it is so much easier just to say yes (even if the answer is actually well, no, it's autoimmune). Because the "yes" answer is the "this is serious" answer. -
Hello. I recently had an endo/colonoscopy and my GI Dr found lymphocytes in my stomach and small intestine. My TTG Ab, IgA was <2 (normal), GLIADIN (DEAMINATED) IGA at 5 (negative), and IgA at 237 (normal). However, a Lipase test revealed my levels were through the roof at 201, 3x above normal. My GI doctor ordered a dna test to confirm Celiac Disease. An A1C test was also done and I am pre-diabetic. When I got home from work today, I started to feel sever cramping in my jaw muscles. I started to have jaw muscle cramps in the the last year. Not to mention, even with good oral hygiene, I have rapidly developed periodontal disease. I did have a small amount of gluten, thinking it wouldn’t harm much but I was sadly mistaken. DNA results should be back in 2 weeks.
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I also have food particles left on toiet paper when i wipe and my stool is light yellow not absorbing fats. I urinate about 15 times a day and have very sticky snot,dry throat.
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