Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Contact Legislators About Celiac Disease


darlindeb25

Recommended Posts

darlindeb25 Collaborator

Subject: [CeliACTIONetwork] Contact legislators about Celiac Disease

The American Celiac Disease Alliance makes this easy. Please take the

time to take action...

<<Disclaimer: Verify this information before applying it to your

situation.>>

Many of you waited a decade or more to FINALLY be diagnosed.

We can't wait a decade for doctors, dietitians, insurance companies,

or legislators to learn about celiac disease.

So far, 8 members of Congress GET IT - and have cosponsored Rep.

Lowey's bill H.Con.Res 70 to help raise awareness about celiac

disease and to urge more federal funding for celiac research.

Rep Arcuri, Michael A. [NY-24] Rep Frank, Barney [MA-

4]

Rep Goode, Virgil H., Jr. [VA-5] Rep Gordon, Bart [TN-

6]

Rep Kuhl, John R. "Randy", Jr. [NY-29] Rep Shays, Christopher [CT-

4]

Rep Udall, Mark [CO-2] Rep Waxman, Henry A. [CA-30]

Its time for the other Representatives get on board, too!

Take a few minutes and call your Representative 1.800.985.8762 and

ask them

to cosponsor H.Con.Res. 70, and urge its passage as soon as

possible.

Go

to:

Open Original Shared Link

to send an email message.

On average, it takes 11 years for an individual to be diagnosed with

celiac disease. No one should have to wait a decade to find out they

have the most common genetic disorder of humankind. Now's the time

to raise awareness and to increase funding for celiac research.

Thank you.

Beth Hillson

President

American Celiac Disease Alliance

www.americanceliac.org


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,177
    • Most Online (within 30 mins)
      7,748

    Marla Jansen-DeMarco
    Newest Member
    Marla Jansen-DeMarco
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Keep in mind that Dapsone can have some serious side effects, so be sure to look into those before you start using it. More about that is here: https://www.mayoclinic.org/drugs-supplements/dapsone-oral-route/description/drg-20063327
    • eKatherine
      I suggest you look at your calorie intake. If you're not eating enough calories, your body will signal you to wake up and forage for more food. You need to be eating more calories than a healthy person of normal weight in order to gain weight. Also, your diet is extremely low in fat unless you are eating chicken thighs with the skin on, which I would recommend. Also be sure to add butter (real butter) to your vegetables. You can measure and record everything you eat, then look up and calculate what your protein/carb/fat intake is. Or just eat more chicken rather than filling up on vegetables and fruit.
    • trents
      Since your mother has celiac disease, I would still keep an eye on this as there is a genetic component. Study results vary wildly, but the numbers are that anywhere from 10% to almost 50% of the first degree relatives of those with active celiac disease will themselves develop celiac disease.
    • Russ H
      Your initial test showed a moderately raised level of IgA tTG2. There are several causes of this apart from coeliac disease including: inflammation of the joints, bowel and liver. Transient rise in levels can be caused by an infection.
    • trents
      Rogol72, your recommendation to the OP to "show them pictures of dermatitis herpetiformis" confuses me as the OP does not mention having dermatitis herpetiformis.
×
×
  • Create New...