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Come Out, Come Out And Show Yourself

pedro

By pedro
in Coping with Celiac Disease

Recommended Posts

pedro Explorer
pedro
Posted

Hi I was looking at the main page and I see more than 100 people logged on as guest. :ph34r:

Please don't be affraid. :unsure:

I've only been here for almost two months, the help, and support that found here is enormous. ;) Everyone is very humble and ready to help. From an advice to a prayer we are here for you. We all know what struggles and concerns one can have at the beginning.

Here you will make friends that will last forever.

So I encourage you to come out, here we all are like the three musketeers. "One for all, and all for one"

Take care. :lol::lol::lol:

Pedro

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confused Community Regular
confused
Posted

I was afraid to read this post, i thought u were going to tell us all to put our pic on our thing lol.

Yes come and join this group, dont lurk.

paula

pedro Explorer
pedro
Posted
  • Author
I was afraid to read this post, i thought u were going to tell us all to put our pic on our thing lol.

Yes come and join this group, dont lurk.

paula

Paula to funny :lol::lol::lol:

confused Community Regular
confused
Posted
Paula to funny :lol::lol::lol:

Now you know why i dont take meds, i get goofy off of tyenol lol

paula

pedro Explorer
pedro
Posted
  • Author
Now you know why i dont take meds, i get goofy off of tyenol lol

paula

Paula

Good for you. We have enough with gluten. I told the doctor I am not taking anymore the librax, I like my hyperactivity.

Lisa Mentor
Lisa
Posted

Okay Pedro, how did you find us? You start ;)

happygirl Collaborator
happygirl
Posted

Pedro, well said :)

I think we all "lurked" for some point...I know I did!!!!! Even after I joined, it took me awhile to get going.

Happy that you have joined us...and hope that others will as a result of this post.

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pedro Explorer
pedro
Posted
  • Author

Okay

I found this site on a day that I was sooooooo tired and so sick and without any hope of solving any of my digestive issues. I was ready to belive it was all in my head. I google for support groups and this came out. It was destiny. You guys open my vision you gave me hope, I found thru one the postings about EnteroLabs, and the rest is history. Thru your experiences I've been able to share my story and educate inform many people about Celiac and gluten allergies.

You all are a blessing!!!!!!!!!!

I did plenty of lurking here. :ph34r::ph34r:

The first post is the hardest. the rest comes very easy, because you feel at home immediately here.

Pedro

little d Enthusiast
little d
Posted

HI

Yes I was a lurker too and I was looking to a join something I applied to some other site but never got a response back and as soon as I put my info in I got the response back, Thanks to who is in charge of the sign up. I also have learned alot on here, alot more is making sense.

Donna

Canadian Karen Community Regular
Canadian Karen
Posted
Now you know why i dont take meds, i get goofy off of tyenol lol

paula

LOL! Times like that, you need to alter your screen name to "Dazed and Confused"!!!! :lol:

chocolatelover Contributor
chocolatelover
Posted

I don't even remember how I found this site...I just know that it's been such a blessing to me. I lurked for a long time, and then when I finally got up the nerve, it seemed like every time I posted I killed the topic! :blink: I still spend a fair amount of time lurking, but I really try to share my experiences, thoughts and recipes, etc. Anything to make it easier for others who are new or struggling or confused. It's been such a lifesaver to be able to hop on here whenever I want and pretty much be able to find whatever I need here. I've said it before and will say it again--I've learned soooooo much more from the people here than from almost every doctor I've been to.

It can also be a great soursce of entertainment at 2:00 in the morning when I can't sleep! :lol:

Guess I'd consider myself a double lurker, too. :ph34r::ph34r:

CL

loco-ladi Contributor
loco-ladi
Posted

I was handed a list of foods my cousin could no longer eat, she didnt know why.

My doctor didnt offer any answers he sent me away with more pills that didn't fix anything.

I took "the list" to the local dietician who did a bit more research, I think she may have actually looked at it, she said that "most" of the things on my "list" contained gluten, but she didnt know if that meant anything.....

I did a search for "gluten" and ended up here after a bit, lurked for a while.... signed up..... lurked more...learned more...... researched more.....

Confronted my Dr numerous times, came away with more pills that didnt work......

Finally said screw the dr's and diagnosed myself.

2 months later feeling better, not 100% but a dang site better getting better daily even tho I dont always notice the daily changes.

Abbygail Newbie
Abbygail
Posted

The day I found this site really turned my life around. I've only been gluten free for the last 3 months so still have so much to learn as I feel my way along, day by day. I'm afraid I am guilty of lurking still, much of the time. :ph34r:

There are so very many knowledgeable people here to learn from and I do learn constantly. It is a life long journey and it begins with small steps. Each day something new pops up and I go hmmmm :blink: Never would have thought of that.

Thank you for being here and sharing your experiences and encouragement.

Guest KG in FL
Guest KG in FL
Posted
The day I found this site really turned my life around. I've only been gluten free for the last 3 months so still have so much to learn as I feel my way along, day by day. I'm afraid I am guilty of lurking still, much of the time. :ph34r:

There are so very many knowledgeable people here to learn from and I do learn constantly. It is a life long journey and it begins with small steps. Each day something new pops up and I go hmmmm :blink: Never would have thought of that.

Thank you for being here and sharing your experiences and encouragement.

Why is lurking so bad?

Lisa Mentor
Lisa
Posted
Why is lurking so bad?

Lurking is not so bad, it's just a kind invitation to join us. :)

wowzer Community Regular
wowzer
Posted

I didn't lurk on here too long. I first found the site after looking up itchy rashes. I thought maybe I had DH. Then I had a biopsy that came back spongiotic dermatitis. I found the natural cure for it was a gluten free diet and it led me here.

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    • ChrisSeth
      Waiting on Blood test results…

      By ChrisSeth · Posted

      I’m reading that some sites list a high Immunoglobulin A result for my age above 300, another site says above 356, and other sites are saying above 400. I don’t know what to make of this result 🤷‍♂️
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      You got some bum steers my friend. I have little confidence that you can trust your test results as differentiating between NCGS and celiac disease. And I think you would be much more likely to have gotten that note you need if you had been diagnosed with celiac disease. But believe me, I understand the predicament you are in with regard to the risks of repeating the gluten challenge. We have heard this story many times on this forum. People experiment with the gluten free diet before getting an official diagnosis and then cannot tolerate the gluten challenge later on when they seek an official diagnosis.
    • Jason Hi
      Need Advice on Doctors

      By Jason Hi · Posted

      For the upper gastrointestinal endoscopy, they said 7 days of gluten. So I did 8...fast food and Krispy Kreme doughnuts. For the earlier blood test, the younger doctor said I didn't have to. My immune system went down, I was in the bathroom a lot, and as my wife said my brain wasn't braining.
    • ChrisSeth
      Waiting on Blood test results…

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      Thanks guys. I just got my results but I don’t know what they mean…  celiac disease reflex panel Immunoglobulin A  normal range 66-433  my results are a score of 358. Is this normal? I have no idea what to make of it…
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      How long was your gluten challenge? I hope it was longer than a week. If not, your testing was likely invalid. Recently upgraded guidelines call for the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat bread) for at least two weeks prior to either the blood antibody test draw or the endoscopy/biopsy. And if you had been gluten free for all those years, you likely had lost any tolerance to gluten you may have had when consuming it regularly. That's probably why it was such a tough sledding experience. Before I was diagnosed, I had very minor GI symptoms. Now, after many years of being gluten free, I get violently ill for hours if I get a good slug of gluten, like when I got my wife's wheat biscuits mixed up with the gluten free ones she made me.
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