Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anybody Have This


little d

Recommended Posts

little d Enthusiast

Hi Ya'll

I was just wondering if anybody else has this Keratosis Pilaris is a skin condition herediarty of course. It looks like little pimples with hard little core the cores are hair, sometime can be itchy. I was diagnosed with this when I was 22. I just started to look around the internet for this to see if it might be connected to Celiac. But what I have seen so far say "KP is hereditary, inherited as an autosomal domiant gene...single gene from a parent...geneticllay predetermineind and treatment can be ointments, creams, lotions" Retine A was one cream that was prescribed to me and I totally could not tolerate on my skin. and I can not tollerate hardly any lotions or creams on my skin. I quikly stopped the cream and never went back the Dermatologist after that.

Later

Donna


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Juliebove Rising Star
Hi Ya'll

I was just wondering if anybody else has this Keratosis Pilaris is a skin condition herediarty of course. It looks like little pimples with hard little core the cores are hair, sometime can be itchy. I was diagnosed with this when I was 22. I just started to look around the internet for this to see if it might be connected to Celiac. But what I have seen so far say "KP is hereditary, inherited as an autosomal domiant gene...single gene from a parent...geneticllay predetermineind and treatment can be ointments, creams, lotions" Retine A was one cream that was prescribed to me and I totally could not tolerate on my skin. and I can not tollerate hardly any lotions or creams on my skin. I quikly stopped the cream and never went back the Dermatologist after that.

Later

Donna

I had it. Don't any more. Mine was related to food allergies. I've read it can be caused by dairy and indeed I had a dairy allergy. Daughter still has it. She too has a dairy allergy and a gluten allergy among other. I've been told by my naturopath that sea salt will make it go away. She sells bars of Himilayan sea salt. She said she used one on the bath and hers went right away.

dionnek Enthusiast

Where do you get this? Not sure if this is what I"ve had for about 15 years (only about 50 dermatalogists couldn't figure it out!), but I have it on the insides of both shins and it is very itchy. Of course I scratch it and it bleeds and scabs, etc. Retin A didn't help (tried that in high school) and I think I've had every kind of cream imaginable and nothing helped. Have you found anything that gets rid of it? I would love any suggestions! I've been told it's eczema, psoraisis, ingrown hair, and many "Don't know" from dermatologists! Has not gone away with a gluten-free diet (been gluten-free for one year now - confirmed celiac last May).

little d Enthusiast

Hi Dionnek

I have this Keratosis Pilaris (little pimpply bumps that have ingrown hair that will come out when they get a little festered) I have had this all my life I don't ever remember a time when I have not had anything. On me they are all over mostly arms (usually they are on the back of the arms, thighs, buttuck area) Not me I have it all over. My sister always thought that is was lack of taking a bath and not washing good enough as kids well little did she know that it was and is something real. When I was 22yrs old I fianlly went to a dermatologist after I had an old boyfriend freek out on me because he wanted to be touchy feely and I did not want him to touch my arms or legs, because I didn't know what it was that I have had all my life, He demanded to know of course he never offered to pay for the bill. The Dermatologist know exactly what it was and also proptly wanted to check my thyroid levels, put me on Retin A which was not good for my skin totally broke out in hives and itched really really bad not a pretty site. I can not use a lot of Lotions especiallly with fragrance in it. I have learned to live and accept that it had unsightly arms and legs at times. At one time I thought I had a small case of DH last summer on my knees, sure did look like the pictures that I saw on the web, but it could have been from the sun lotion that I put on will swimming, with combo of eating Wheat bread sandwiche at that time I had been on gluten-free for 4 months and feeling great. I never went to the doctor to get anything diagnosed. I finallly stopped itching enough to be able to function so i never made a Dr appt. to see what the rash that I had. Yes I was eating gluten-free before I got tested for celiac disease, which made everything come back negative.

Later Donna

little d Enthusiast

Dionnek, sorry I went off on a stupid old boyfriend and did'nt really answer you question. No it has not gone away on a gluten-free diet. It got better but still had it not as bad when I was pregnet with my daughter I drank water like it was going out of style, the one and only thing I think that I craved at that time. My skin did look better, lotions don't help, my guess I that maybe it is connected to staying very hydrated, but I have to force myself to drink water. It is genitic and my daughter has some bumps on her arms and she is getting a little freeked at times because she does not like them. Do I wish that I could have smooth silky skin like everybody els of course, but God made me like this and I have learned to deal with it, am i still embarrased by my arms, sometimes, will I let my husband caress my arms and leg(NO WAY) for me it is irritating for my arms to be caress. I'd rather caress him very ralaxing for me that is. Ok I know a little too personal sorry!

Donna

NWLAX36Mom Rookie

My son has had it on his arms and cheeks ever since he was a baby. Once a doctor recommended Eucrin Plus cream in the jar. Don't know if that is something safe for a celiac to use but it does help him if he uses it consistently.

Flor Apprentice

I've had it since I was a kid (or a baby) -- just on the back of my arms. it's not itchy for me but as an adolescent I couldn't leave it alone and so it was irritated all the time. My husband has it and our son has had it from birth. Interestingly, I did NOT have it while I was pregnant and that's the only time in my life.

I ignore it -- it's worse in winter and better in summer. I haven't read anything about it being associated with food allergies or celiac disease, but then there's so much we don't know.

A dermotologist gave me some heavy-duty lactic acid lotion for it when I was younger but it didn't seem worth the trouble or expense to keep doing it. It helped a little. The dermo also told me it was genetic.

I'll do some research on this and let you know if I learn anything new.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

My DS had this from early childhood. It went away after he was gluten free for a few months. So did everybody's acne in my family. Oh and the exzema. And of course my DH.

Generic Apprentice

My daughter has this and I have had a couple of friends with it as well. I believe it is a vitamin A defincency. I know a couple of people who have asked dermatologists about it and they say they don't know or it's normal. Whatever!

Try taking vitamin A and see what happens. It only returns when my daughter quits taking the vitamin A, same as for 1 of my friends. Fish oil particularly cod liver oil works really well.

The other friend doesn't bother becasue she doen't care, it doesn't bother her.

Yenni Enthusiast

I have had it my whole life. It used to be on my face a little but now I am mostly just red there kinda. Very soft skin otherwise.

But I have it on the back of my arms. I can't feel it much, never had a problem with itching.

I read and was told cremes with AHA and BHA is good for it. You gotta keep that skin out of the sun though when you use that type of creme.

I am not using anything on it when I don't feel it in any ways. I think I have a milder one. But the AHA/BHA stuff can make your skin a bit irritated so I stopped using it.

My brother has this too and also my mom some. It's from her side of the family. I think grandpa had some too...

Going gluten free hasn't made any difference so far.

CarlaB Enthusiast

I had this on the back of my arms and the sides of my legs/buttocks. It has completely gone away since I've been gluten-free ... so have my rough elbows.

  • 6 years later...
AlwaysLearning Collaborator

Ingrown hairs of all sorts all over my calves. Definitely worse when I had an influx of gluten into my diet. Definitely better after going gluten free.

It was actually one of the symptoms that helped me figure out that my body was reacting to something I was eating. And my sister confirmed it when she started having similar problems after going gluten free then retoxing to have gluten testing done, suddenly having the same symptoms she had seen me suffer with for years.

I suspect that it may be made worse if gluten is not a steady part of your diet, rather a reaction to a sudden influx as I was probably detoxing and retoxing most of my adult life without realizing it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Hidden Gluten in distilled vinegar

    2. - Manaan2 replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Hidden Gluten in distilled vinegar

    3. - BIg Nodge replied to BIg Nodge's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Opinions on my test results/symptoms

    4. - Dawn Meyers replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines

    5. - Scott Adams replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,855
    • Most Online (within 30 mins)
      7,748

    Tuba1971
    Newest Member
    Tuba1971
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Manaan2, I was on Miralax for several months after I crushed three vertebrae and fractured my hip.  The compression fractures of my vertebrae affected the Vagus nerve that stimulates digestion and intestinal movement, peristalsis. Miralax just didn't relieve the constipation I was experiencing at all.  Nothing budged.  I tried Milk of Magnesia (magnesium oxide) which pulls water into the digestive tract, and found that rather harsh and dehydrating.   Bad idea. I was already taking thiamine in various forms, Benfotiamine, TTFD (tetrahydrofurfuryl  disulfude), Lipothiamine and Allithiamine.  Click on my name, then Activities in the pull down menu to get to my blog to learn more about my journey with thiamine.   Since we need more thiamine when we are physically ill and emotionally stressed, I decided to focus on TTFD,  Benfotiamine, and magnesium l-threonate.  Within a week of increasing my doses a bit, my constipation was gone.  It took several more months to heal the compressed nerve damage.  For pain, I take a combination of TTFD, Pyridoxine B 6, and  Cobalamine B12 which together have an analgesic effect.  I can't function with pharmaceutical pain killers, besides they cause constipation.   Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Yes, I did just stop the Miralax, but I wasn't on it as long as your daughter.  Yes, there's a difference between adults and children.  Yes, my circumstances were different than your daughter's, but thiamine deficiency does affect the nerves and the brain.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function (which activates the Vagus nerve and controls digestion).   I recommend you visit Dr. Chandler Marrs' website, hormonesmatter.com.  Dr. Marrs worked with Dr. Derrick Longsdale, a pioneer in thiamine research, specifically with children and autism spectrum disorders.  She has been very helpful to me when I reached out to her.  She would be better able to guide you about your daughter's care. https://hormonesmatter.com/sibo-ibs-constipation-thiamine-deficiency/#google_vignette Do stay in touch, please.  You can start another thread or personal message me any time.  My heart goes out to you, your husband, and especially your daughter.   Namaste
    • Manaan2
      @knitty kitty  The information you've provided is invaluable!  I have a lot more homework to do before we make the official switch but you have significantly increased my hope that we can get her off Miralax (she started at 3 years old and is almost 8!).  This weekend my husband and I plan to solidify all the details for a start point, then adjust as we go along.  I realize that everyone's body is different, then there's also the fact that she's a child but just out of curiosity if you don't mind sharing and if you'd rather not, no problem at all-how long did you take Miralax before switching and when you switched, did you just completely stop the Miralax or was there a period where you did Miralax and the supplements?  I plan to research that piece this weekend but just curious what you did.  
    • BIg Nodge
      Scott, thanks so much for the thoughtful replies. My doctor did actually just re-order thyroid labs to see what is going on with my TPOs. I agree that will be interesting information.  I think I know the answer to this, but as far as the biopsy . . .. that would be quite conclusive as far as celiac goes, but a negative result would not rule out NCGS, correct? Does NCGS also cause damage to the lower intestine/leaky gut?  I appreciate the thought that I should be open-minded to other causes. I did not have dysautonomia on my radar, so I will look into that. From a quick scan at the potential symptoms it seems like almost anyone could convince themselves they have it, very broad! I can see why that is a tricky one to diagnose. I did also show low vitamin D, I'm in New England so that is somewhat common. I have a memory of low iron on some lab result as well but I can't find it, so I'll look into that. My cholesterol is high too, so working on that.  While the initial adjustment was tough, I have actually adapted fairly well to going gluten-free at home. The tough part for me is I love eating out and traveling, so that has been a challenge. I suppose if the answer ends up being NCGS then I could maintain a mostly gluten-free diet but also experiment with the occasional splurges. Snowboarding just doesn't feel right without a beer in the lodge . . ... cider is just not the same!  Thanks again.  
    • Dawn Meyers
      I did some research and found out that vaccines put preservatives, sugar alcohols and metals in them. Which I have a intolerance too.  I was supposed to do testing to find out metal's I was allergic to because I can't  wear jewelry of any kind. Mayo felt I had other allergies also.
    • Scott Adams
      For individuals who have experienced negative reactions to the flu vaccine, there are alternative formulations that may reduce the risk of allergic responses. Traditional flu vaccines are typically produced using egg-based methods, which can pose issues for those with egg allergies. However, there are now several egg-free options available, such as cell-based and recombinant flu vaccines. Recombinant Vaccines (e.g., Flublok Quadrivalent): These are produced without the use of eggs and are grown in insect cells, making them a suitable option for individuals with egg allergies. Cell-Based Vaccines (e.g., Flucelvax Quadrivalent): These vaccines are also egg-free and are produced using mammalian cell cultures, which can be a safer alternative for those with egg allergies. Other Considerations: If you have had a reaction to a specific component of the flu vaccine (e.g., gelatin, preservatives, or antibiotics), discussing your medical history with a healthcare provider is crucial. They can help identify vaccines that exclude these ingredients. It's important to consult with an allergist or healthcare provider to determine the safest option based on your specific allergies and medical history. They can also provide guidance on pre-vaccination testing or desensitization protocols if necessary. Also, at @trents mentioned, could you be getting hidden gluten in your diet? Do you eat in restaurants? If so, this could be why you still have high gluten antibodies.
×
×
  • Create New...