Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Know Of Good Celiac Doctor In Minnesota - Twin Cities?


GFinMN

Recommended Posts

GFinMN Apprentice

Anyone recommend a celiac specialist in the twin cities area?

  • 1 month later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skyepie Newbie

There are wonderful GI doctors who specialize in celiac disease at Mayo Clinic in Rochester. Drive an hour, it'd be worth it. One of the leading researchers in the field is located there. Also, there is a Gluten-Free Cupboard grocery store and a Good Food Store in Rochester, both have a wide variety of gluten-free products.

Katydid Apprentice

I ditto the suggestion of Mayo because they have a renowned specialist there. I think his name is Dr. Murray At the very least, you could call and ask them for a referral to a good celiac doctor in the cities. Oh - If you do go to Rochester, be sure and check out that Gluten Free Cupboard the previous poster mentioned. They are just a little teeny store, but they have absolutely everything.

kbtoyssni Contributor

Not a celiac specialist, but my GP is great if you're looking for a yearly doc who won't give you the evil eye when you mention you have celiac and will know what to look for. I go to Ronda Stellar at the Shoreview Medical Clinic. She says whenever she gets someone who's having trouble getting pregnant, she'll test them for celiac. She's also been to several talks about it so she' pretty knowledgeable and realizes there's more to it than the stereotypical symptoms.

sparkles Contributor

This is not about a doc but if you live in the twin cities, there is a great grocery store called Fresh and Natural. There is one in Shorview and one in Bloomingtom. They have tons of gluten-free foods, seminars, even cooking class. It puts both Trader Joe's and Whole Foods to shame. Also there are two great gluten-free bakeries in Mnpls and Eagan. Both have foods at Fresh and Natural!!!!

GFhopeful Rookie

MN Gastroenterologists is a group of doctors that practice around the Twin Cities. I am new to Celiac but when in the hospital, this group saw me and are the ones who recommended the endoscopy when I did not have symptoms typical of Celiac. Don't yet know how good they are but am also thinking of driving down to Mayo and having them take a look at everything as a second opinion. Good luck.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,648
    • Most Online (within 30 mins)
      7,748

    kawalla50
    Newest Member
    kawalla50
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Here is a category of study summaries on the relationship of Type 1 diabetes and celiac disease: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/diabetes-and-celiac-disease/ This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • RMJ
      How frustrating! The Endomysium antibody result is usually given as a titer, 1:5, or 1:10, or 1:20.  This indicates how far the serum can be diluted and still give a positive result. It could be going down but the way they show the results you can’t tell. If you click on the “view trends” button on an electronic version of the results does it show any additional information?
    • misslemon
      Hi, I'm hoping to get some advice on how to handle Mass as a new Catholic.  I'm looking to take the Mass for the first time in March.  I've been told that the church has a "low gluten" option that is 0.01% gluten.  Is this safe, especially to do every week?   I also read that taking the wine instead could be more of a problem if it gets contaminated with regular crumbs.   I found this information online:  "The Benedictine Sisters of Perpetual Adoration in Clyde, Missouri, have developed a Communion host that is extremely low in gluten. The host is made from gelatinized wheat starch. The Sisters report the hosts test to a level of 0.01% gluten. At that level, the lowest that could be tested, no gluten was detected. This means that there is less than 0.01% gluten in one of these hosts. The Secretariat for the Liturgy of the United States Conference of Catholic Bishops has stated that these hosts meet the requirements of the Code of Canon Law (924 §2) and may be validly used at the celebration of the Eucharist with permission of the person's pastor. The Catholic with celiac disease can now fully participate in Holy Communion with the whole parish family. Catholic celiacs may choose to receive consecrated wine at a regular communion station if their parish offers communion under both species. There is greater risk for contamination using this option. The fraction rite may allow small, yet dangerous crumbs to be in the cup." Thank you for any guidance!
    • Jenn D
      My son was diagnosed with Celiac Disease is April 2023. His ttg antibody was over 100 at the time of diagnosis. Now it is at 3 (which is considered negative), but his endomysium antibody iga is still coming up positive. There is no specific number just positive or negative so I'm not sure if he's getting better or not. I'm getting nervous that something else is going on and I was just looking for some advice or an understanding what this "postive" actually means. He gets tested every 6 months. Thank you so much for any responses😊 Attached is a picture of his bloodwork from August 2024
×
×
  • Create New...