Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Additional Tests / Information Required

Susanwisely

Recommended Posts

Susanwisely Newbie
Susanwisely
Posted

Hi there.

Ive been gluten-free since October last yr, weigh around 94 lbs mark, very underweight, was very symptomatic pre diagnosis, have a complete burnt out villi and very inflammed gut. My Specialist said it was the worst case he has seen. Since gluten-free its been good, but no weight gain. Dietician has given me Fortisip drinks 3 x per day. Ive gained 8lbs but thats stopped now. Still eating alot of food during the day too. Definitely 100% no gluten getting into the diet.

My Specialist wants me to get another Endoscopy this Thurs coming as my checkup and also a Barium Swallow. Can anybody tell me why I am getting a Barium Swallow? I dont understand the reason behind it?

Can somebody advise if Crohns disease can be picked up in the Endocopy when this is being carried out? The symptoms seem very similar to celiac disease and with my weight loss and being very thin could this be related? Or would this have been picked up by now?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dally099 Contributor
dally099
Posted

hi there, i can totally understand about the weight thing, i got down to 97lbs in jan and im 5'4" tall way to skinny, im up to 107lbs now. my doc told me to eat full fat dairy, cheeze, ice cream everything. as well i started to lift heavier weights and gain some muscle. im a runner so at 97lbs i couldnt work out very well no energy. i dont know what you eat but the celiac diet can be very low in fat and calories so you may have to get creative and find ways to add fat to your diet. red meat is another one, splurge and eat bacon and eggs for breakfast a couple of times a week. now im not saying to eat like this forever god you would die of heart desease but at least till the weights on i have started to go back to lower fat dairy again, and eating more chicken again hopefully i can maintain the weight gain. good luck, looking hollwood skinny is not everything its cracked up to be.

nikki-uk Enthusiast
nikki-uk
Posted
Hi there.

Ive been gluten-free since October last yr, weigh around 94 lbs mark, very underweight, was very symptomatic pre diagnosis, have a complete burnt out villi and very inflammed gut. My Specialist said it was the worst case he has seen. Since gluten-free its been good, but no weight gain. Dietician has given me Fortisip drinks 3 x per day. Ive gained 8lbs but thats stopped now. Still eating alot of food during the day too. Definitely 100% no gluten getting into the diet.

My Specialist wants me to get another Endoscopy this Thurs coming as my checkup and also a Barium Swallow. Can anybody tell me why I am getting a Barium Swallow? I dont understand the reason behind it?

Can somebody advise if Crohns disease can be picked up in the Endocopy when this is being carried out? The symptoms seem very similar to celiac disease and with my weight loss and being very thin could this be related? Or would this have been picked up by now?

My hubby was seriously underweight at the time of dx (7 and a half st ) and had to have the build up drinks.

He's been gluten-free now for 2and a half yrs now and I would say it took him 18months to get back to a healthy weight.

He's still on the 'slim' side and looses any weight really easy.

It is something he has to keep making an effort at (trying to eat more than he really wants, adding high calorie foods etc)

Keep at it!! - it probably took alot of yrs for your bowel to get that damaged - it's going to take some time to fully repair and you absorb all nutrients :)

It can take an adult up to 2 years for their gut to completely repair.

My hubby also had a barium swallow and this usually picks up stomach ulcers or any damage from reflux.

It's possible it is also a diagnostic tool in dxing Crohns ( I'm not totally sure)

Docs usually also do a 'double ender' (endoscopy and colonoscopy) when looking for Crohns.

ravenwoodglass Mentor
ravenwoodglass
Posted

Not much to add but a warning, MOST barium preparations are NOT gluten-free, make absolutely certain that his is before his exam. I just had a CT done which was supposed to include a barium prep. They ended up using a water based solution because none of the barium they had was safe.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,813
    • Most Online (within 30 mins)
      7,748
    lbksunyoga
    Newest Member
    lbksunyoga
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • AuntieAutoimmune
      Royal Caribbean Only, Please

      By AuntieAutoimmune · Posted

      Great tips, Deb. Thanks.  What a pity that they no longer mark items as gluten-free. And it is even more of a shame that you must bring protein bars instead of the crew helping you with your needs. Are you planning on sailing Royal again? 
    • Scott Adams
      Hidden Gluten in distilled vinegar

      By Scott Adams · Posted

      I've not heard of any issues with Primal Kitchen, but it certainly would be worth not using the brand for a while to see if this helps. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Scott Adams
      Can I trust the gluten free label if a product was made in a facility that also processes gluten?

      By Scott Adams · Posted

      If you are super sensitive you may want to look for only Certified Gluten-Free Products, as @trents mentioned.
    • Scott Adams
      Gluten free/ non dairy , low calorie pudding

      By Scott Adams · Posted

      I'm not sure about low calorie, as puddings are typically a dessert, but we do have this category: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-pudding-recipes/ This one might work if you cut back on the sugar:    
    • DebJ14
      Royal Caribbean Only, Please

      By DebJ14 · Posted

      We are off next week on our 9th RCCL cruise since our diagnoses.  I send an email to special_needs@rccl.com before every cruise letting them know that I am both dairy and gluten free and my husband is gluten free.   Unfortunately, with the new menus they introduced in 2023, they removed the gluten-free designation from each item on the menu.  Instead of having a dedicated person take gluten-free orders, it now falls to your regular wait staff.  Some have been great and some not so good.  We had a great cruise in May and hit it off with our head waiter.  She went the extra mile and ordered gluten free desserts that were not on the menu.  My problem arises from other food allergies.  I am allergic to dairy, beef, and several types of fish.  On those days my husband is a happy camper with a steak or salmon, veggies and a baked potato.  I end up not getting enough protein, so I bring protein bars.  I also bring snacks for the room. As long as the food is commercially prepared and unopened, you can bring it. Often the only dessert choices that are gluten free contain dairy, so I am out of luck.  But, if you are just gluten free, they have plenty of choices.  See the head chef in the Windjammer buffet and he will give you a tour of the gluten-free choices.  They usually have 2 gluten free desserts out at lunch and they are labeled gluten free. We have found that it works best to have assigned dining rather than anytime.  That way the waiters learn from the get go what our needs are, and we don't have to explain ourselves every night.  We also get a private table for 2.  I frankly got sick and tired of tablemates telling me a little bit of gluten would not hurt me.
×
×
  • Create New...