Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Biopsy Taken, What Does This Mean, Help

whattodo

Recommended Posts

whattodo Enthusiast
whattodo
Posted

Hi everyone, well an hour ago i had a endoscopy and a biopsy taken of the Duodenum. When the tests were completed the nurse came and gave me my results of things they saw. She said my stomach was fine but when looking down the Duodenum she said it was flat, i had a look at the photo and the could see folds further down the photo but not in the beginning of the Duodenum. I asked her what that meant (as it was quite clearly a issue raised by the doctor) and she did not know. On coming back home I rang the hospital and asked to speak to someone to advise me what the nurse meant as it made me quite worried. I saw the photo and i could quite clearly see no folds. The nurse went to ask a doctor and she came back stating that is very possible that i has celiac disease. It then that put my mind at rest as i was kind of waiting for that response.

My question is does all this sound normal. I understand all the issues about villi plattening but not folds flatenning. What does this mean or is it the same thing?

Will these folds ever return to normal like the villi should.

God, i am so comfused and worried and dont know what to do, They said i should have the results in 3 weeks and dont know if i can wait that long.

2 weeks prior to the endoscopy i went gluten free and just this week i went back on gluten for the biopsy. During the gluten free period i had what i can only exlain as withdrawal symptoms as my head and hands were very disorientated but the stomach pain stopped hurting like it had done for 7 months. When going back on the gluten my head and arms cleared up pretty much the day after (had initial lower stomach pain for a morning). But my stomach pain returned.

Please can everyone help with suggesting what is going on.

Thanks everyone

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nikki-uk Enthusiast
nikki-uk
Posted

Loss of duodenum folds is indicative of celiac disease and quite common in untreated celiac disease.

Open Original Shared Link site is quite interesting!

Ultimately though you will have to wait until they've looked at your biopsies under the microscope for the 'official' dx of celiac disease. :)

whattodo Enthusiast
whattodo
Posted
  • Author
Loss of duodenum folds is indicative of celiac disease and quite common in untreated celiac disease.

Open Original Shared Link site is quite interesting!

Ultimately though you will have to wait until they've looked at your biopsies under the microscope for the 'official' dx of celiac disease. :)

Thanks for the reply so soon, i have had a look at the website and the photos in the middle of the page looked exactly like the one they showed me. I know i need to wait for the biopsy to be officially diagnosed but just for piece of mind wanted to know if these folds come back. This is not the same as villi flattening is it (i presume villi are only seen under the microscope)? What are the reasons for the folds?

nikki-uk Enthusiast
nikki-uk
Posted

The reduction of folds comes with villous atrophy.

Once established on the gluten-free diet they will come back (along with the villi)

You're right in saying the villi can only be seen under the microscope :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. K6315
      - K6315 replied to K6315's topic in Related Issues & Disorders
      4

      Newly gluten free… withdrawal?

      Well, that's interesting. I am lactose intolerant and have been managing that for years. I'd be interested in seeing if that changes once I feel better from not eating gluten (one thing at a time for now, though). Helpful to hear about the avenin. I will do some digging and pose that to the dietitian. Grateful for your feedback.
    2. kate g
      - kate g posted a topic in Gluten-Free Restaurants
      0

      Nandos improper preparion celiac childrens food

      Recently my daughter ate in nandos harlow I rang in advance to speak about the celiac protocals and learned that childs portion chicken nandinos is cooked on the same grill as garlic bread even if they are celiac! Even if you clean it this is not good practise and will be making many children ill. I learnt adults butterfly chicken cooked on a grill purely...
    3. Scott Adams
      - Scott Adams replied to TexasCeliacNewbie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High blood test numbers - with scales. Any advice?

      I agree with @RMJ, you have multiple positive tests so celiac disease is likely. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.
    4. trents
      - trents replied to K6315's topic in Related Issues & Disorders
      4

      Newly gluten free… withdrawal?

      One small study found that 50% of celiacs react to the dairy protein "casein" like they do to gluten. It is also common for celiacs to be lactose (the sugar in milk) intolerant, though that often disappears in time as the villi heal. About 10% of celiacs react to the oat protein "avenin" like they do gluten.
    5. K6315
      - K6315 replied to K6315's topic in Related Issues & Disorders
      4

      Newly gluten free… withdrawal?

      Thank you so much Trents (Scott?)! I have started working with a dietitian and did a deep research dive as soon as I got the diagnosis. I am aware of what you mentioned in the first two paragraphs, and was not aware of anything in the third, so I am grateful for that information, and will talk to the dietitian about that. I think I was most interested in...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,757
    • Most Online (within 30 mins)
      7,748
    Tdizzle18
    Newest Member
    Tdizzle18
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • K6315
      Newly gluten free… withdrawal?

      By K6315 · Posted

      Well, that's interesting. I am lactose intolerant and have been managing that for years. I'd be interested in seeing if that changes once I feel better from not eating gluten (one thing at a time for now, though). Helpful to hear about the avenin. I will do some digging and pose that to the dietitian. Grateful for your feedback.
    • kate g
      Nandos improper preparion celiac childrens food

      By kate g · Posted

      Recently my daughter ate in nandos harlow I rang in advance to speak about the celiac protocals and learned that childs portion chicken nandinos is cooked on the same grill as garlic bread even if they are celiac! Even if you clean it this is not good practise and will be making many children ill. I learnt adults butterfly chicken cooked on a grill purely for chicken.  This is fine and what we ordered however nandos need to take note of your practises for the safety of celiac children. my daughter has been ill from their nandinos chicken before and i emailed head office and they wouldnt accept responsibility 
    • Scott Adams
      High blood test numbers - with scales. Any advice?

      By Scott Adams · Posted

      I agree with @RMJ, you have multiple positive tests so celiac disease is likely.  This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.     
    • trents
      Newly gluten free… withdrawal?

      By trents · Posted

      One small study found that 50% of celiacs react to the dairy protein "casein" like they do to gluten. It is also common for celiacs to be lactose (the sugar in milk) intolerant, though that often disappears in time as the villi heal. About 10% of celiacs react to the oat protein "avenin" like they do gluten.
    • K6315
      Newly gluten free… withdrawal?

      By K6315 · Posted

      Thank you so much Trents (Scott?)! I have started working with a dietitian and did a deep research dive as soon as I got the diagnosis. I am aware of what you mentioned in the first two paragraphs, and was not aware of anything in the third, so I am grateful for that information, and will talk to the dietitian about that. I think I was most interested in the withdrawal process - it gives me hope that, although I have felt unwell recently, I just need to be patient (not a strong suit). I have printed the article you sent and will look at it more closely. Thanks again!
×
×
  • Create New...