Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Wonder When The "learning Experiences" Stop ...


hathor

Recommended Posts

hathor Contributor

Dang. The story: I was feeling so good, I was even wondering if I really had problems. My husband said he thought I didn't respond to tiny amounts of gluten. I get a salad that had croutons in it and the waiter takes off before I saw them. I thought I could just pick them out, or dh thought so, anyway. Eating it I actually crunched into a tiny crumb I had missed.

I'm into day 3 of brain fog. Sigh ... I guess I really do have to become higher maintenance in restaurants.

I really hate it when menus don't list all the ingredients. Why would the same restaurant mention croutons & cheese for some menu items and not for others? I also picked some shaved cheese off my entree -- I'm probably reacting to that too. It was just a very busy & noisy restaurant, harried staff, you have to shout to be heard, etc. (I know I should stay out of such places -- I just couldn't do any better since we were out of town for my son's college graduation & all the restaurants we could find that would have seemed to work were like that.)

So, chalk up another learning experience. I'm really tired of them <_<

I don't expect any advice here. I just have to vent a little. I know, I know. I should have known better ... people say you can't just pick the croutons out ... etc., etc.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



zansu Rookie

we sympathize! It really stinks to have your health in someone else's hands and sometime you can't help it/ I hope it was AFTER graduation.... or that you were seated conveniently :ph34r:

kbtoyssni Contributor

I find it helps to carry a card listing all the things I CAN'T have. And some of the things I can that people think I might not be able to (like corn, rice, etc). This helps eliminate the communication issues from the waiter (who likely won't even know what gluten is) to the chef. For salads I also ask about all the things I CAN'T eat even if the menu doesn't say it has it. I tend to get burned by the roll - I can't tell you how many times they've brought out my nice, crouton-free salad with a big wheat roll because I forgot to mention it mainly because I don't even think of the possibility of someone putting a roll on a salad. If I have to send it back I emphasize that they CANNOT just take the roll off; I need an entirely new salad. And I try to remember something about how the food was arranged (i.e. there were two tomato slices on top of each other) so I know for sure if it's a new salad they bring out.

You may also want to try going out to eat at non-peak times when the staff can devote more time to you. I try to call and talk to the manager at a non-peak time, too, to answer all my questions about what has gluten and what doesn't.

Good luck and sorry you're sick today.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,688
    • Most Online (within 30 mins)
      7,748

    Princess.dfc
    Newest Member
    Princess.dfc
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Yes, some people with Celiac do react to quinoa.  I know i do.  Apparently, two different "breeds" of quinoa can stimulate the immune system. Read here... Variable activation of immune response by quinoa (Chenopodium quinoa Willd.) prolamins in celiac disease https://pubmed.ncbi.nlm.nih.gov/22760575/#:~:text=Cultivars Ayacuchana and Pasankalla stimulated,for patients with celiac disease. And some of us react to corn (maize) as well. Maize prolamins could induce a gluten-like cellular immune response in some celiac disease patients https://pubmed.ncbi.nlm.nih.gov/24152750/   P.S. @Brook G have you thought about getting a genetic test done for known Celiac genes?  
    • Brook G
      People who are Celiac don't have a gluten response to Quinoa, but some people who are gluten intolerant do.  I react to quinoa just like I do to gluten.  Freddies/Kroger came out with their own gluten-free Bread and I didn't think to read the ingredients.  I couldn't figure out where I would have gotten gluten in my diet until I read the ingredients in their bread... QUINOA
    • trents
      Thanks for the additional information. I was thinking of asking you if your daughter was taking methylated vitamins since she has the MTHFR gene but you beat me to it. To answer the question you posed in your original post, as I explained, celiac disease does not damage the colon but the lining of the small bowel. If the damage is pronounced enough and the doc doing it is experienced, yes, the damage done to the lining of the small bowel can be spotted with the naked eye.
    • cameo674
      I could not locate the correct Gary Brecka video where he explains the methylation process and specifically states things about how people with the MTRR homozygous gene mutation are known to suffer from heartburn due to a weakened valve/sphincter where the esophagus and the stomach connect.  My brother had the youtube video sent to him from 10x health which is probably why I cannot locate it.     I will have read up on mast cell activation.  I do not know anything about it.  Tums is my preferred gerd treatment.  I always figured a little extra calcium could not hurt me.  
    • cameo674
      Trents: Due to a genetic mutation, my daughter has inherited from both parents she cannot process the Folic Acid provided in the fortified American grains.   An MD told her to avoid eating fortified grains.   My daughter makes the assumption that unless she makes the food item, that the baker used a fortified grain so she has been limiting her gluten intake since 2020.   Her Psychiatrist was who tested her for MTHFR gene issue because she suffers from depression and severe anxiety. The Psychatrist also instructed my daughter to supplement with a methylated version of folate once she knew my daughter was homozygous, because the methylated version bypasses the mutated gene step so her body can absorb it.  Low folate absorption impacts serotonin and dopamine production.  My husband and I also both have two other homozygous gene mutations that interfere with vitamin absorption: MTRR and VDR taq.  The first interferes with B-12 absorption which requires us to take a methylated B-12 vitamin and the second with Vitamin D absorption so we have to take higher doses to stay within normal levels.   My brother, who has the exact same gene mutations, went through 10x health genetic testing for vitamin supplements (paid by his employer) and received a huge report saying the same things about which types of supplements had to be taken.  Gary Brecka does videos on how these gene mutations impact the vitamin absorption pathways.       If my brother had not gotten his testing through work, he would never would have started his supplement journey.  His testing is what triggered my getting functional health testing that tested similar biomarkers to his.  Again the celiac testing was an add-on test that I did off the cuff.  
×
×
  • Create New...