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- trents replied to Jack Common's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms26What should I do with these test results?
Sounds like a good plan, Jack. Correct about the genes. About 40% of the general population possess the genetic potential to develop celiac disease but only about 1% of the general population actually develops celiac disease. So, genetic testing is used as a rule out measure. -
- Jack Common replied to Jack Common's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms26What should I do with these test results?
I haven't seen any information there are other genes which trents wrote but what if I spend money to do this test and the results show I have these genes. It will mean nothing. I can have these genes and not have celiac disease if I know it right. Because biopsy is not available, unfortunately, the most reliable methods are blood tests, in my opinion... -
- cristiana commented on Debado's blog entry in Debado10Gluten migranes at night
The first symptoms I had of coeliac disease were migraines. I think your doctor needs to test you for coeliac disease. The fact you are having migraines at night is interesting, but I never used to drink enough and my headaches were worse when I woke up in the morning. Dehydration was also a big cause for me. -
- trents commented on Debado's blog entry in Debado10
Gluten migranes at night
I'll ask the same question that knitty kitty asked? On what basis did your Dr arrive at the conclusion that you have gluten intolerance? But let's be clear about terminology because the terms "gluten intolerance" and "gluten sensitivity" are typically used interchangeably out there in the wild and both are used indiscriminately to speak of two different... -
- Brandy969 replied to Jack Common's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms26What should I do with these test results?
Thank you! I didn’t know this!
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Sounds like a good plan, Jack. Correct about the genes. About 40% of the general population possess the genetic potential to develop celiac disease but only about 1% of the general population actually develops celiac disease. So, genetic testing is used as a rule out measure. -
By Jack Common · Posted
I haven't seen any information there are other genes which trents wrote but what if I spend money to do this test and the results show I have these genes. It will mean nothing. I can have these genes and not have celiac disease if I know it right. Because biopsy is not available, unfortunately, the most reliable methods are blood tests, in my opinion. So I'm gonna eat gluten for another two months and then do the test again. It will be 12 weeks eating food with gluten so some symptoms might appear. Now, I don't have any except fogginess but I'm a software developer so it could be normal for me. Talking about how much food containing gluten to eat, I'm eating 6 slices of wheat bread per day (each slice weighs around 35 grams). I think it's much more than other people eat doing a gluten challenge. Before a gluten free diet I had symptoms like some food intolerance, diarrhea, bloating, belching. However, I also had giardiasis and after treating it I started a gluten free diet so it's unclear whether I had this symptoms because of eliminating gluten or this parasite. The symptoms for both are very similar. So I think it was this parasite because two years ago and before I didn't have these symptoms and I always ate gluten freely. Am I thinking okay or should I consider/do something else? I appreciate any suggestions. -
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By knitty kitty · Posted
Welcome to the forum, @Debado, Migraines at night can be caused by high levels of histamine. Histamine Intolerance can cause physical symptoms like migraines. Foods contain histamine. Our bodies make histamine, an important neurotransmitter. Our bodies naturally produce more histamine at night as part of our circadian rhythm, our sleep-wake cycles. Some foods like gluten and nuts contain high histamine themselves or trigger our bodies to produce more histamine. A low histamine diet is helpful, cutting out high histamine foods and histamine-release triggering foods. Our bodies can breakdown a certain amount of histamine, but sometimes our bodies cannot keep up with the amount of histamine needing to be broken down, and can be overwhelmed by the amount of histamine resulting in Histamine Intolerance and health problems like migraines. Vitamins C, B12, Pyridoxine B6 and thiamin B1 help lower histamine levels. Our bodies use these vitamins to make an enzyme DOA (diamond oxidase) that breaks down histamine. DAO from beef or pork kidney is an over-the-counter supplement that can be taken. Riboflavin B2 is very helpful for relieving migraines. Have you been diagnosed with Celiac Disease or suspect you have it? Happy Holidays! -
By knitty kitty · Posted
@ABP2025, Have you thought about having a DNA test to check for known Celiac genes? I do hope you will make sure that you are getting sufficient gluten to provoke an autoimmune response strong enough that the antibodies can be measured in the blood. See article below. Celiac disease affects the absorption of nutrients, including vitamins and minerals. Your symptoms may be associated with thiamine deficiency. Migraines and peripheral neuropathy, phimosis (yes, even this), and white spots on the brain are seen in thiamine deficiency. Celiac disease disrupts the absorption of all the essential nutrients, but thiamine can be quickly depleted, in as little as three days. Thiamine deficiency can occur even if blood tests show normal levels. Thiamine deficiency can affect antibody production.
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