Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can't Find My Answer In Any Another Post...can You Help?


jessdreams

Recommended Posts

jessdreams Rookie

Hi all,

I just got the results from my blood test and they are negative =( It may sound odd but I was REALLY hoping and praying for a positive result b/c it would mean an end to years of unexplained problems.

Ok so here is my question, I have heard a lot on these boards about people getting false negative...but does that just mean that those people have "boarderline" or "weak positive" results? I am looking at the test results right now and my scores are LOW!

Antiglaidin IgA = 1

Antiglaidin IgG = 2

tTG IgA = 1

tTG IgG = 1

A little backround, for about 2 months before blood test I was doing Weight Watchers Core, which is somewhat low carb, really the only gluten I was eating was a bowl of shredded wheat in the morning and possibly some trace ammounts of hidden gluten although I wasn't eating much processed food at all. I tried to pump up the gluten in the week I had between the doc prescibing and me actually having the blood drawn, but....

Is it possible that my diet was too low in gluten to show the anitbodies in my blood but high enough to cause symptoms? I have been gluten free since the test since that seems to be the real test and I "think" I feel better but I'm not sure of anything anymore.

Please be honest, am I barking up the wrong tree?

Thanks in advance,

Jessica


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaloca2 Apprentice

"Is it possible that my diet was too low in gluten to show the anitbodies in my blood but high enough to cause symptoms? I have been gluten free since the test since that seems to be the real test and I "think" I feel better but I'm not sure of anything anymore. "

I think it is very possible that could have effected it. Also, if you are gluten intolerant (which acts the same), instead of celiac, it will not show up in the tests.

I wasn't sure either 'till I sat down and wrote down all the little things that I had before going gluten free (ie: cracked lips, very bad skin, extreme mood swings) and realized i hadn't even thought about those things lately because they had all pretty much gone away. the only time I notice them are when I get glutened.

CarlaB Enthusiast

I would think the bowl of shredded wheat would be enough ... I know it would be enough to make me sick!! LOL

What are your symptoms? Which have gotten better? Which do you still have?

I would go on the gluten-free diet. If your symptoms go away, then you know you have a gluten problem. If they don't, then you know it's something else. If they don't go away, you can still ask here if anyone has any suggestions ... many of us are familiar with the other diseases that can look like celiac. There's a tremendous amount of experience here.

kbtoyssni Contributor

The shredded wheat might be enough to make you sick, but it's very possible it's not enough to show up on a blood test. I think the guideline is 3-5 slices of wheat bread for several months prior to the blood test to get a positive if you have celiac. Gluten-light could be enough to not give you a positive. Try the diet and see how you feel. If you feel better after a few months, you have your answer.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,087
    • Most Online (within 30 mins)
      7,748

    Gerald cromwell
    Newest Member
    Gerald cromwell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your approach is spot-on—trusting reliable sources like Mayo Clinic and sticking to a gluten-free diet that works for you is the best way to navigate all the noise out there. The claim that rice and corn contain forms of gluten harmful to celiacs is indeed a misconception. While these grains do contain proteins that may technically be referred to as "glutens" in a broader scientific sense, they are structurally and functionally different from the gliadin found in wheat, which is the specific protein harmful to those with celiac disease. Scientific research overwhelmingly supports the safety of non-contaminated rice and corn for celiacs unless there’s a separate sensitivity or allergy involved. Some opinion pieces or alternative health sources may blur the lines by conflating these proteins, which can cause unnecessary worry. You're absolutely correct to focus on the distinction between scientifically validated information and anecdotal claims. It's also important to note that some people with celiac disease may develop sensitivities to other grains over time, but this is individual and not a universal rule. If you’re asymptomatic and thriving on a diet that includes certified gluten-free products with rice and corn, there’s no reason to change what’s clearly working for you. The internet is a breeding ground for well-meaning but misguided advice, and it’s easy to feel overwhelmed. Your instinct to validate claims through reliable research is exactly the right way to go. Keep enjoying your gluten-free meals, stick with trusted certifications, and don’t feel pressured to adopt restrictive diets that aren’t backed by science or tailored to your specific needs. Happy New Year to you too!
    • Scott Adams
      Healing and regaining energy after a celiac diagnosis can be a frustratingly slow process, but you're not alone in feeling this way! Everyone's healing journey is different, and factors like age, how long celiac was undiagnosed, and the extent of intestinal damage can all play a role. In general, villi can begin to heal within a few weeks to months after starting a strict gluten-free diet, but for some adults—especially those diagnosed later in life—it can take a year or more to see significant improvement. Studies suggest that older adults may heal more slowly, but it does happen with consistent gluten avoidance. Since you're already taking iron, vitamin D3, and a multivitamin, you're on the right track. Here are a few additional tips that might help: Be Patient with Your Body: It’s hard to wait, but healing takes time. Track your progress in small ways—maybe energy levels on a scale of 1-10 each week—to notice gradual improvements. Check for Other Deficiencies: Sometimes celiacs have trouble absorbing other nutrients, like B12, magnesium, or zinc, which can also affect energy levels. Your doctor may want to test for these. Consider Other Conditions: Fatigue can be linked to other issues like thyroid problems, adrenal fatigue, or even sleep disturbances, which can sometimes occur alongside celiac disease. It might be worth discussing this with your healthcare provider. Stay Active, but Pace Yourself: Gentle exercise, like walking or yoga, can help improve energy levels, but don’t push yourself too hard—listen to your body. Hydration and Balanced Meals: Make sure you're drinking enough water and eating a balanced gluten-free diet with plenty of whole foods. Sometimes highly processed gluten-free products can leave you feeling sluggish. Remember, healing isn’t just physical—it’s also mental. You’ve made a huge, positive change by going gluten-free, and your body is working hard to repair itself. It’s okay to feel impatient, but know that you're moving in the right direction. Hang in there—you’ll get there!
    • Lotte18
      Hi Scott, I thought I'd be like "most people" and could go back to having dairy once my villi had healed.  But after dealing with neurological problems that cropped up long after my gut had healed it turned out that this just wasn't true.  I have no idea if celiac influences pancreatic enzyme production or if it's the other way around--for some of us-- but there is a very real relationship that isn't being discussed with patients.  The article just reiterates information that can mislead you if your real problem is pancreatic not villi related.  
    • Scott Adams
    • trents
      Welcome to the forum, @Amyinwyoming! Answers to your question that you might receive may not be helpful to you as an individual since sensitivity levels vary significantly within the gluten sensitive/gluten intolerant/celiac community. The other complicating factor is that low levels of gluten in a product may not cause obvious symptoms but may still generate low level inflammation in the small bowel. When in doubt, it is best to pass on the product. I'm not a particularly sensitive celiac so I might allow myself to eat something at a guest's house that was made from a food product with the kind of disclaimer label you describe but I typically shy away from buying them or consuming them when I have a choice.
×
×
  • Create New...