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Negative Fecal Fat But Underweight

ADevoto

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ADevoto Explorer
ADevoto
Posted

My 12 year old son has the following results from Enterolab -

Antigliadin IgA of 128 units (normal is <10

Antitissue Transglutaminase of 70 (normal is <10

Fecal Fat score of <300 (normal is <300)

They recommend that he go on a gluten free diet which I agree. But I am confused. He is very underweight (5%) but it shows no malabsorb issues. Is that conflicting? I would think that he isn't absorbing nutrients if he is under weight and has those high value results. Any thoughts???

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natalie Apprentice
natalie
Posted

When did he start losing weight? Maybe he has some of his intestines working properly, therefore absorbing the fat. Maybe severe damage hasn't occured yet. I would start the gluten-free diet because his numbers are high.

Natalie

debmidge Rising Star
debmidge
Posted

For all the 27 years my husband went mis-diagnosed his fecal fat count was in normal range however, his weight plummeted from about 180 to 127 over the course of 2.5 years from first symptoms. Those specific blood tests were not invented or his doctors did not utilize them for the first 15 years or so of his illness. It got to the point where even new GI's viewed him as being "mentally ill" and "obsessed" over foods that gave him stomach trouble. Because using their testing methods THEY couldn't find anything wrong with him.

He lost all his body fat and became so malnourished that his body -- for lack of a better word -- ate his muscles - in the same way it would happen to an anexoric.

The doctors brushed this off and he is at point today where the muscles are not re-building; BUT as for a 12 year old he's still growing and as long as you get to the bottom of his problems (i.e., if he is celiac then go gluten-free) it shouldn't turn out this way.

My husband was 27 when he got first symptoms of celiac disease.

confused Community Regular
confused
Posted

My step-son was negative on fecal fat also, but his numbers were kinda high on everything else. He is also underweight, but now when he does stick to the plan he is starting to grow and gain weight. He is 13, going on 14.

paula

dally099 Contributor
dally099
Posted

when you have D all the time you tend to not absorb nutrients and calories very well, im the same thing lost 10lbs in a month but my fecal fat score was normal. also if your sysem is working over time you can be burning more calories, i bet he gains weight when he goes on the diet. i did, good luck

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    • trents
      Hidden Gluten in distilled vinegar

      By trents · Posted

      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
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      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
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      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
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