Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tired All The Time


SandyC

Recommended Posts

SandyC Newbie

Hi,

I'm fairly new to this forum. Need some suggestions. I have been gluten free for several months. Well mostly, except for the accidental glutening from an unsuspected medication. My concern is tiredness. I can get 8-10 hours of sleep and I still am tired. I am on Effexor for depression, which helped a lot! I also take a multi vitamin, eat a healthy diet. Most of my symptoms of celiacs have subsided. I just have this incredible fatigue. I have absolutely no energy. I feel like I need a nap, all the time!

My other question is this. My multivitamin , Nature Made Multi for Her has 250 mg of Calcium and over 1000 IU of Vitamin D. If I suppliment with Nature Made Advanced Calcium I get even more Vitamin D. It seems to me that Vitamin D is one of the vitamins that stores up and you can become toxic if you get too much. Most vitamins if you get too much are excreted but not Vitamin A, D, E, and K. They store in the fat cells. I'm afraid that in order to get all my needed Calcium, I will get too much Vitamin D. Any suggestions? I figure that I need to get at least 750 mg of Calcium to meet the minimum requirement of 1000 mgs. If I Suppliment my Calcium I end up getting 1400 I.U's of Vitamin D in addition to my diet.

I'd welcome any suggestions.

Sandy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Sandy, lots of things can cause fatigue. Lack of magnesium is one of them. You should never take calcium without magnesium.

Low vitamin D is another thing that could cause fatigue (besides many other problems). You are right, if your vitamin D is good, you shouldn't supplement with too much. That is why you should never take high doses of vitamin D without first checking your levels of it.

Low levels of iron, or vitamin B6 or B12 could be another problem.

It sounds to me like you need to get some bloodwork done, to determine your levels of essential nutrients. Every person diagnosed with celiac disease ought to do that. Get your levels of vitamin D, calcium and magnesium, vitamin K, ferritin (iron), vitamin B6 and B12 and your hemoglobin checked. Then you will know where you need to supplement, and how much is needed.

Lastly, you may be suffering from adrenal fatigue or hypothyroidism, or both. It would be good to be tested for those as well.

loraleena Contributor

I would get your thyroid checked. Read up on symptoms of hypothyroidism. Make sure you get the whole panel including thyroid peroxidase antibodies (show the autoimmune version of the disease). This is very common in celiacs.

SandyC Newbie

Thank you both for responding. I have had my bloodwork done. My calcium is on the low end of normal, that's why the doctor suggested supplimenting my calcium and taking a good multi vitamin. My bone density results were not good. It is real obvious that I haven't been absorbing enough Calcium. Obviously the result of the Celiacs. It just seems odd to me that my multi vitamin has over 1000 IU's of Vitamin D (250% of Daily Value) but only has 250 mg of Calcium and only 100 mg of Magnesium (which is only 25% of needed daily value). My Calcium Suppliment has 500 mg of Calcium, 250 mg of Magnesium and 200 mg of Vitamin D. In order to get 1000 mg of Calcium a day, I would end up getting 475 mg of Magnesium which is over 150% of the Daily Recommended Value, and well over 1300 mg of Vitamin D which would be over 325 % of Daily Value. That just seems like an awful lot of Magnesium and Vitamin D. My thyroid and adrenals are also fine. I tend to be a little bit anemic, which could be what is causing it. I was just curious if this was just par for the course and when my body "normalizes" I'll feel better or if there was some suppliment I was missing. I am also taking acidophilus, which has helped a lot. Any other suggestions are welcome.

Thank you both again.

Sandy

CarlaB Enthusiast

Anemia, even slight anemia, will definately cause fatigue. Do all you can to get this fixed!

I take NT Factor for fatigue. You can Google it ... but the full-strength stuff can only be purchased through a doctor.

Nancym Enthusiast

Vitamin D in a dry form is virtually worthless. If you're going to supplement it be sure to get the sort that is oily and says cholecaliferol.

For the fatigue I'd start suspecting an autoimmune disease. Talk to your Dr. about it. It might be thyroid, or something else, most of them make you fatigued.

tarnalberry Community Regular

RDA's are far from gospel (many times they were picked out of thin air - such as the one for sodium).

Magnesium should be in a 1:2 ratio with calcium - so if you're supplementing 1000mg of calcium a day, you take 500mg of magnesium along with it.

More useful is knowing the toxic levels of vitamins, and the RDA is not that - it's merely the minimum amount needed to not get sick - which by American standards, is *not* the same as the amount needed to stay healthy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SandyC Newbie

Thank you all!! I've learned more in a few posts than I ever learned from the doctor and the dietician at the hospital. Sandy

loraleena Contributor

How are your B-12 levels. The RDA is way to low. You can not overdose on B12, so try a sublingual version.

SandyC Newbie

Started taking the Subling. B12. and increased my iron intake. Feeling much better. Thank you all for your suggestions

Sandy

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,716
    • Most Online (within 30 mins)
      7,748

    Peggy Bohan
    Newest Member
    Peggy Bohan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.6k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @PlanetJanet, Sorry to hear about your back pain.  I have three crushed vertebrae myself.  I found that a combination of Thiamine, Cobalamin and Pyridoxine (all water soluble B vitamins) work effectively for my back pain.  This combination really works without the side effects of prescription and over-the-counter pain meds.  I hope you will give them a try. Here are articles on these vitamins and pain relief... Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ And... Role of B vitamins, thiamine, pyridoxine, and cyanocobalamin in back pain and other musculoskeletal conditions: a narrative review https://pubmed.ncbi.nlm.nih.gov/33865694/
    • Scott Adams
      Here is the info from their website. If you don't trust them, you may find products that are labelled "gluten-free," but I don't see any reason to believe there is any gluten in them. Hunt's Tomato Paste: https://www.hunts.com/tomato-sauce-paste/tomato-paste   Hunt's Tomato Sauce: https://www.hunts.com/tomato-sauce-and-paste/tomato-sauce  
    • PlanetJanet
      Hi, trents, Thanks for responding! One book I read is called, Doing Harm, by Maya Dusenbery.  She has wonderful perspective and insight, and it's all research-based.  It's about how women can't get treated.  Everyone should read this!  I wouldn't mind reading it again, even.  She believes that women are so busy taking care of families, working, etc., that we are more likely to ignore our pain and symptoms for longer.  Men have women bugging them to go to the doctor.  Women don't have anyone telling us that.  We don't have time to go.  Providers think we are over-emotional, histrionic, depressed, have low tolerance to pain...Men get prescribed opioids for the same symptoms women are prescribed anti-depressants.  My car crash in January 2020 made going to the doctor a full-time job.  I grew up with 2 rough and tumble brothers, played outside, climbed trees.  I was tough and strong, pain didn't bother me, I knew it would heal.  But do you think I could get treated for back pain--as a woman?  I am so familiar now with the brush-offs, the blank looks, the, "Take your Ibuprofen," the insinuation that I am just over-reacting, trying to get attention, or even, "Drug Seeking."  Took almost 2 years, but what was happening was Degenerative Sacroiliitis.  I couldn't walk right, my gait was off, effected my entire spine because gait was off.  I had braced myself with my legs in a front-impact, slightly head-on crash with someone who made a left turn in front of me from the opposite direction.  I finally had SI Joint Fusion surgery, both sides.  It's not a cure. I have given up on trying to get properly treated.  There is so much pain with these spine issues caused by bad gait:  scoliosis, lithesis, arthropathy, bulged disc, Tarlov cysts.  And I can't take anything because of my bad tummy. Not that I would ever hurt anyone, but I can relate to Luis Mangione who couldn't get treated for his back injury. I feel so alone.
    • PlanetJanet
      They say maltodextrin is gluten-free, even if it's made from wheat, because the gluten is processed away.  It makes no difference to my body.  I still get uncontrollable flatulence and leakage.  Happens every time, even if I refuse to believe it will happen.  Once I was taking Gas-X chewables to hang around with people I was visiting and staying with, to make sure I would feel safer and more comfortable.  WRONG.  I forgot to read the label. I didn't realize it till after I left and went home--MALTODEXTRIN.  I was miserable the whole time. The second gastroenterologist I saw made the tentative diagnosis of microscopic colitis.  Usually occurs in women over 60, I was 59, had been in a crash, (2020) was taking alot of NSAIDS, muscle relaxants.  Had constant diarrhea, gas, leaking.  Unbearable, and I didn't know it was NSAIDS.  I was scheduled for two-way endoscopy, mouth to butt, but they wanted $2,000 up front.  Finally, had a colonoscopy in 2022, 10 biopsies, didn't find a thing!  MC can go into remission, which I was, of course, desperate to do.  No more NSAIDS, tried to cut down on all the other pain killers, everything, chemicals that I knew triggered me.  So, no, they didn't find anything.  So sad that we have to make ourselves sicker and more injured to get a proper diagnosis! Microscopic colitis is being seen concurrently with gluten problems.  MC can be triggered by NSAIDS, SSRI's, all kinds of things. https://my.clevelandclinic.org/health/diseases/17227-microscopic-colitis Some links for maltodextrin health effects: https://pmc.ncbi.nlm.nih.gov/articles/PMC6409436/#:~:text=Altogether%2C these findings show that,the development of intestinal inflammation. https://www.mdedge.com/internalmedicine/article/193956/gastroenterology/maltodextrin-may-increase-colitis-risk  
    • PlanetJanet
      Titanium dioxide is that chemical in vitamins, toothpaste, and processed white foods that is the whitener for the pill coloring.  It is inflammatory for me.  I have an intestinal reaction to it, every time. https://www.webmd.com/diet/titanium-dioxide-in-food https://pmc.ncbi.nlm.nih.gov/articles/PMC11295244/#:~:text=EFSA concluded that titanium dioxide,uncertainties in recent toxicological studies.
×
×
  • Create New...