Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tia Like Symtpoms When Glutened?!


DestinyLeah

Recommended Posts

DestinyLeah Apprentice

So I accidentally got glutened through misinformation the other day while out on the go. Shortly after, I was slurring my words, couldn't get a thought completed to save my life (except to remember the "FAST" mnemonic for a stroke) and went weak down the left side of my body and fell into the shelves at Wal-Mart. Great start to my day. So I went home to get some rest and took a potassium and a b-12 supplement, and thought everything was fine, until about 3 hours later when it happened again. The third time this happened was at 1:30 in the morning, and left behind the worst migrane I have ever had. Ben took me to the ER, where they looked at me as though I had completely lost my mind for coming in and telling them what I thought was wrong, nevermind that I am the first female in 5 generations of my family to not go to any medical schooling. I asked for a CT scan to rule out a Transient Ischemic Attack, and blood tests to rule out any major nutritional deficiencies. The doctor instead put me on narcotics and gave me the CT scan, then asked what Celiac was, refused to run blood work, and sent me home saying it was just a migrane, not Celiac related (How would he know?!?! Ask me?) with a prescription for a non gluten-free narcotic. Way to go, buddy!

So does anyone else get stroke-like symptoms when they get a LOT of gluten in their system? Hoping this is not just me...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

I had jerk doctors like that in the ER in my local hospital as well. Doesn't it make you soooooooo mad to be treated like a joke? It makes me angry on your behalf that you have been treated like that.

Yes, I get symptoms like that as well. And narcotics make my migraines worse.

You should go and be tested for nutritional deficiencies anyway, ordered by your regular doctor. What comes to mind is vitamin D, vitamins B6 and B12, ferritin, calcium and magnesium, potassium and vitamin K.

I avoid my ER like the plague now, after being treated like garbage there several times. I know I take chances by not going when I have heart-attack-like symptoms (which is what happens to me when glutened). But I just can't handle going any more.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,113
    • Most Online (within 30 mins)
      7,748

    J CARUCCI
    Newest Member
    J CARUCCI
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
    • Xravith
      My genetic test results have arrived - I’m homozygous for DQB1*02, meaning I have HLA-DQ2. I’ve read that this is one of the genes most strongly associated with celiac disease, and my symptoms are very clear. I’m relieved that the results finally arrived, as I was getting quite worried since my symptoms have been getting worse. Next step, blood test. What do these results imply? What should I tell my family? I’m concerned that this genetic predisposition might also affect other family members.
    • Roses8721
      Two months. In extreme situations like this where it’s clearly a smoking gun? I’m in LA so went to a very big hospital for pcp and gi and nutritionist 
    • rei.b
      So far 3 months in - worsening symptoms. I have had the worst constipation in my life and I am primarily eating naturally gluten-free foods like potatoes, eggs, salad with homemade dressing, corn tortillas, etc. I hate gluten-free bread and pasta so I don't eat it. Occasionally I eat gluten-free almond flour crackers. As stated in the post, I don't have any vitamin deficiency. I was already tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.