Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tia Like Symtpoms When Glutened?!


DestinyLeah

Recommended Posts

DestinyLeah Apprentice

So I accidentally got glutened through misinformation the other day while out on the go. Shortly after, I was slurring my words, couldn't get a thought completed to save my life (except to remember the "FAST" mnemonic for a stroke) and went weak down the left side of my body and fell into the shelves at Wal-Mart. Great start to my day. So I went home to get some rest and took a potassium and a b-12 supplement, and thought everything was fine, until about 3 hours later when it happened again. The third time this happened was at 1:30 in the morning, and left behind the worst migrane I have ever had. Ben took me to the ER, where they looked at me as though I had completely lost my mind for coming in and telling them what I thought was wrong, nevermind that I am the first female in 5 generations of my family to not go to any medical schooling. I asked for a CT scan to rule out a Transient Ischemic Attack, and blood tests to rule out any major nutritional deficiencies. The doctor instead put me on narcotics and gave me the CT scan, then asked what Celiac was, refused to run blood work, and sent me home saying it was just a migrane, not Celiac related (How would he know?!?! Ask me?) with a prescription for a non gluten-free narcotic. Way to go, buddy!

So does anyone else get stroke-like symptoms when they get a LOT of gluten in their system? Hoping this is not just me...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

I had jerk doctors like that in the ER in my local hospital as well. Doesn't it make you soooooooo mad to be treated like a joke? It makes me angry on your behalf that you have been treated like that.

Yes, I get symptoms like that as well. And narcotics make my migraines worse.

You should go and be tested for nutritional deficiencies anyway, ordered by your regular doctor. What comes to mind is vitamin D, vitamins B6 and B12, ferritin, calcium and magnesium, potassium and vitamin K.

I avoid my ER like the plague now, after being treated like garbage there several times. I know I take chances by not going when I have heart-attack-like symptoms (which is what happens to me when glutened). But I just can't handle going any more.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Inconclusive results

    2. - cristiana replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    4. - Russ H replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,435
    • Most Online (within 30 mins)
      7,748

    Vivien Armstrong
    Newest Member
    Vivien Armstrong
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
    • cristiana
      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
    • Scott Adams
      In the USA only wheat-based breads are fortified with certain vitamins, but not gluten-free breads, thus we typically encourage celiacs to take multivitamin supplements.
    • Russ H
      For people who can tolerate oats, Marks and Spencers sell a nice loaf:   https://www.marksandspencer.com/food/made-without-wheat-gluten-free-oaty-loaf/p/fdp60140058
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.