Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brand New To The Celiac Way Of Life


griffmom

Recommended Posts

griffmom Newbie

Good morning all :-)

I imagine my story is pretty common these days. Hubby has been plagued with headaches

since he can remember. He literally had one without fail every day of his life. It was

just a matter of how bad. He also had the skin issues, especially in the winter. We

had been to our family practice doc numerous times trying to get relief and kept

trying different things. Well he was so miserable he decided to try a chiropractor

and when they did his weight, he was horrified.

He came home that day and said, "That's it, I'm going on a diet". He did the research

and started the South Beach diet. By the end of week one/ beginning of week two he

said," I have not had a headache once today or yesterday!!" This was MONUMENTAL!!

He cheated one day and got a burrito for lunch and within 30-45 minutes he had a splitting

headache and no energy. He started researching the South Beach website and found

out about Celiac disease and how many people have found out they are either allergic

or sensitive to gluten as a result of going off the processed foods and flour.

He's been living gluten free for the better part of a month now and has lost 20 pounds so far.

He looks great and feels so much better. We still have some items in the house that the

kids eat but I'm trying to adopt new ways of meal preparations and have become a

"label addict" I've found making the effort to prepare him healthy good-tasting meals

and researching different foods is the best way I can tell him," I love you." I want him

to be as happy in this life as possible and if that means learning a new way to cook,

eat.... LIVE.. than I'm ready to learn...........

Does anyone have good practical advice for books or other resources they found helpful

starting out? I've been really pleased with the gluten free section at our local Meijer

and we've gone to a whole foods store and Trader Joes as well. We're in Indiana and

healthy eating is still something that takes concerted effort but I'm happy for what I

have found so far. I'm contemplating just having a gluten free home but that's going

to require a much higher food budget!! I just keep telling myself that in the long run,

it's probably going to benefit all of us. My biggest thing is not having too many "stinker"

meals that we would rather fast than eat!!!

Thanks for any advice/support you can offer me

Griffmom in Indy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kbtoyssni Contributor

Welcome and congrats! I love The Gluten Free Gourmet cookbook. I've made most of the cakes in there and they've all turned out great. The gluten free diet can be more expensive at first mainly because people try to replace all their old gluten foods with gluten-free ones. With a bit of thinking outside the box, you can reduce these costs. Like using corn tortillas for PB&J wraps rather than sandwich bread. Or eating a baked potato with toppings for lunch instead of a sandwich. I do very little shopping at a gluten free store and buy mostly "mainstream" brand products so I wouldn't say my food costs have increased much at all. For things like rice flour, I go to the Asian food section and buy it in bulk for cheap (4lbs for $2).

Guest j_mommy

If you want to read up on the subject.....

Living Gluten Free for dummies by Dana Korn. It's humerous and has lots of good info and some great recipes.

Celiac Disease: A Hidden Epidemic by Dr. Peter Green is also great.

I bought both together on Amazon for about $30 as a pair.

Good luck! :D

NoGluGirl Contributor
Good morning all :-)

I imagine my story is pretty common these days. Hubby has been plagued with headaches

since he can remember. He literally had one without fail every day of his life. It was

just a matter of how bad. He also had the skin issues, especially in the winter. We

had been to our family practice doc numerous times trying to get relief and kept

trying different things. Well he was so miserable he decided to try a chiropractor

and when they did his weight, he was horrified.

He came home that day and said, "That's it, I'm going on a diet". He did the research

and started the South Beach diet. By the end of week one/ beginning of week two he

said," I have not had a headache once today or yesterday!!" This was MONUMENTAL!!

He cheated one day and got a burrito for lunch and within 30-45 minutes he had a splitting

headache and no energy. He started researching the South Beach website and found

out about Celiac disease and how many people have found out they are either allergic

or sensitive to gluten as a result of going off the processed foods and flour.

He's been living gluten free for the better part of a month now and has lost 20 pounds so far.

He looks great and feels so much better. We still have some items in the house that the

kids eat but I'm trying to adopt new ways of meal preparations and have become a

"label addict" I've found making the effort to prepare him healthy good-tasting meals

and researching different foods is the best way I can tell him," I love you." I want him

to be as happy in this life as possible and if that means learning a new way to cook,

eat.... LIVE.. than I'm ready to learn...........

Does anyone have good practical advice for books or other resources they found helpful

starting out? I've been really pleased with the gluten free section at our local Meijer

and we've gone to a whole foods store and Trader Joes as well. We're in Indiana and

healthy eating is still something that takes concerted effort but I'm happy for what I

have found so far. I'm contemplating just having a gluten free home but that's going

to require a much higher food budget!! I just keep telling myself that in the long run,

it's probably going to benefit all of us. My biggest thing is not having too many "stinker"

meals that we would rather fast than eat!!!

Thanks for any advice/support you can offer me

Griffmom in Indy

Dear Griffmom,

It is nice to see a fellow Hoosier on here! :) I have a present for you! It is to welcome you to the forum!

I have a list that should really help. This is overwhelming. I went through this with myself eight months ago. You spend most of your day cooking and cleaning obsessively. The rest you are on the phone with reps from companies trying to find out what is safe. I decided to save you the trouble!

1. There are a number of things in the regular grocery that are safe. Some things are labeled already. Wal-Mart's Great Value brand has numerous things you can eat.

2. For the love of God use Coupons on items you are allowed to eat. People can get them and print them out online even. Call some of the local stores and ask if they accept online coupons.

3. Check the ads online and in the newspaper. You would be surprised how many people do not do this.

4. Some items like rice flour and rice noodles are safe to buy at the Chinese or oriental market. The merchants are more than happy to help you if you cannot read the label.

Now, here is my list of great things to get you started:

Condiments:

Smart Balance Margarine*

Crisco Shortening

Crisco Oil

Pompeiian Olive Oil

Great Value soy sauce

Heinz Ketchup

Lea & Perrins Worchestershire Sauce (all Lea & Perrins Products are safe)

Sweet Baby Ray's Barbecue Sauce

Kraft French Fat-Free Salad Dressing

Kraft Thousand Island Fat-Free Salad Dressing

Pace Picante Sauce

Ortega Salsa

All Classico Red and *White sauces

All Jif Peanut Butters including Smooth Sensations

Welch's Grape Jelly

Cool Whip*

Philadelphia Cream Cheese*

Miracle Whip

Daisy Sour Cream (fat-free, low-fat, regular)*

Snack Foods:

Utz Potato Chips (Found at Sam

tiredofdoctors Enthusiast

NoGluGirl: That is a GREAT list! And, those are fantastic ideas. I've been gluten-free almost two years, and I haven't used some of those ideas! Going to start immediately.

Also, all Hunts tomato products are gluten-free.

Softsoap antibacterial soap is gluten-free.

Watch out for Worcestershire sauce, soy sauce, things like that. Those are sources of "hidden" gluten. My dietician said that those are two biggies to watch.

The Clan Thompson software seems to be better than the Gluten Guard . . . . they used to follow up on items more often than the other. Don't know about it now. Also, they were really willing to work with you if there were items you wanted researched and listed in their next quarterly update. Don't know if you have a PDA, but they now support both Palm and (can't think of the word!) operating systems.

Don't know if this helps, but thought I'd let you know.

NoGluGirl: You ROCK!

NoGluGirl Contributor
NoGluGirl: That is a GREAT list! And, those are fantastic ideas. I've been gluten-free almost two years, and I haven't used some of those ideas! Going to start immediately.

Also, all Hunts tomato products are gluten-free.

Softsoap antibacterial soap is gluten-free.

Watch out for Worcestershire sauce, soy sauce, things like that. Those are sources of "hidden" gluten. My dietician said that those are two biggies to watch.

The Clan Thompson software seems to be better than the Gluten Guard . . . . they used to follow up on items more often than the other. Don't know about it now. Also, they were really willing to work with you if there were items you wanted researched and listed in their next quarterly update. Don't know if you have a PDA, but they now support both Palm and (can't think of the word!) operating systems.

Don't know if this helps, but thought I'd let you know.

NoGluGirl: You ROCK!

Dear tiredofdoctors,

You are so welcome for the information! There really are some great things we can have! I just made the best Tollhouse cookies! Chocolate Chip are my favorites! They are so good right out of the oven! I had not had any since I went gluten-free back in August of last year.

I was not able to access the Clan Thompson list the last time I tried. I know one thing, I will not drink Coke.

It goes by Codex. Even 0.02 percent ppm is too much gluten! I get violently ill from it.

There is great news about soy sauce and worchestershire sauce. Lea & Perrins has gluten-free everything in the U.S. In Canada and other countries, their products are not safe, though. LaChoy Soy Sauce and Wal-Mart's GV brand are safe. Chinese food is my life blood. I have not eaten it since going gluten-free. I plan on making some this week! Crab and shrimp rangoon, and spring rolls! Also, Chinese food often requires cooking sherry. Wal-Mart carries Holland House Cooking Sherry. It is labeled gluten-free.

Sincerely,

NoGluGirl

P.S. Thank you for the compliments!

  • 2 weeks later...
barbara123 Apprentice
Dear tiredofdoctors,

You are so welcome for the information! There really are some great things we can have! I just made the best Tollhouse cookies! Chocolate Chip are my favorites! They are so good right out of the oven! I had not had any since I went gluten-free back in August of last year.

I was not able to access the Clan Thompson list the last time I tried. I know one thing, I will not drink Coke.

It goes by Codex. Even 0.02 percent ppm is too much gluten! I get violently ill from it.

There is great news about soy sauce and worchestershire sauce. Lea & Perrins has gluten-free everything in the U.S. In Canada and other countries, their products are not safe, though. LaChoy Soy Sauce and Wal-Mart's GV brand are safe. Chinese food is my life blood. I have not eaten it since going gluten-free. I plan on making some this week! Crab and shrimp rangoon, and spring rolls! Also, Chinese food often requires cooking sherry. Wal-Mart carries Holland House Cooking Sherry. It is labeled gluten-free.

Sincerely,

NoGluGirl

P.S. Thank you for the compliments!

Does Coke have gluten?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NoGluGirl Contributor
Does Coke have gluten?

Dear barbara123,

I think I drank it before and I was alright. It is just that I have heard negative things about Codex. I am nervous about any gluten. They said on the site I went to called Gluten Free in SD that they keep their amount of gluten below 0.02 ppm, but I am not sure I should drink it now. Would anyone like to add to this?

Sincerely,

NoGluGirl

barbara123 Apprentice
Dear barbara123,

I think I drank it before and I was alright. It is just that I have heard negative things about Codex. I am nervous about any gluten. They said on the site I went to called Gluten Free in SD that they keep their amount of gluten below 0.02 ppm, but I am not sure I should drink it now. Would anyone like to add to this?

Sincerely,

NoGluGirl

Thank you, i was out camping with my husband for three days, drank coke, thought i was being good. Woke up this morning feeling bad, tired, achy, headache, and fog head. I can't remember anything, afraid to go anywhere, afraid will be sick in public.

NoGluGirl Contributor
Thank you, i was out camping with my husband for three days, drank coke, thought i was being good. Woke up this morning feeling bad, tired, achy, headache, and fog head. I can't remember anything, afraid to go anywhere, afraid will be sick in public.

Dear barbara123,

I have drank it in the past, and am extremely sensitive. I did not get sick from it, though. However, after reading that they go by Codex standards, I decided not to drink it as a precaution. I am not sure if it is okay now. Of course, I have heard others say they drank it with no trouble. There are other things in the Coke that you might be reacting to. It is difficult to say, since I am not certain about this, as I had said before.

I react violently as well. I start to break out in a sweat, shake all over, sometimes my hands go numb, I get really nauseated, have the sudden urge for a bowel movement, and if I do not get a promethazine down fast enough, I begin having dry heaves that are so painful, they make it feel like my insides are imploding. I am not sure if Codex standards are unreliable here, but I know they are in Europe. I guy on here told about that. I think I will ask around and see if there has been a consensus reached.

Sincerely,

NoGluGirl

  • 1 month later...
tuxedocat Apprentice
He came home that day and said, "That's it, I'm going on a diet". He did the research

and started the South Beach diet. By the end of week one/ beginning of week two he

said," I have not had a headache once today or yesterday!!"

Interesting. This was my experience when I went on the Atkins Diet a few years ago - it never occurred to me that the issue was gluten, not carbs even though I occasionally "cheated" and had sushi with sushi rice, with no ill effects.

Mally-bug Apprentice
If you want to read up on the subject.....

Living Gluten Free for dummies by Dana Korn. It's humerous and has lots of good info and some great recipes.

Celiac Disease: A Hidden Epidemic by Dr. Peter Green is also great.

I bought both together on Amazon for about $30 as a pair.

Good luck! :D

You are so right! I have recently read both of those books and the Gluten Free for Dummies is super. I really enjoyed the read and would recommend it to anyone starting out on this "adventure"... Great advice!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,951
    • Most Online (within 30 mins)
      7,748

    SY8
    Newest Member
    SY8
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.