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Misdiagnosis

Jyvett

By Jyvett
in Dermatitis Herpetiformis

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Jyvett Newbie
Jyvett
Posted

Hi! I have just had blood work done to check for Celiac disease. I have not received my results yet but have a lot of the symptoms. My question is concerning my sister who also has a host of these symptoms and what has been diagnosed as chronic hives. They have not found any cause for these outbreaks and none of the meds they have tried seem to be effective for them other then steroids. Is it possible that what she has is DH? I have not read anything anywhere on it being mistaken for hives but the pictures I have seen look like what she gets. Thanks!

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Happycat Rookie
Happycat
Posted

Hi, I am also suffering from chronic hives right now. I have had them about 10 weeks. I've been to 2 internists and 2 allergists. If your sister's doctor said it's hives then she probably has hives. Has your sister been to allergist? They can work with the antihistamines to get the right combo of drugs for her. They did for me, well to keep me comfortable most of the time. I still have my times during the day or night when I get a little itchy!! Sometimes my lips swell, not fun!!

I also have autoimmune thyroid disease and the doctor(s) told me that 30-35% of people with this also get chronic hives. They also told me more often than not you never find the cause(90-95% of the time).

Enjoy your weekend! :P

Lisa

3boyzmom Newbie
3boyzmom
Posted

Here are some articles regarding urticaria (hives) and celiac disease:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

I have also encountered several people who have had this experiece as well... antecdotal evidence.

Jyvett Newbie
Jyvett
Posted
  • Author

Hi! Thanks so much for your reply. I have forwarded the links to my sister. Sure hope she can find something that can work for her as well as you have. At least maybe you will be an incentive for her to get into an allergist and try differant :D meds. Thanks again!

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      How are you doing, @sadiec123?  Did you get through the holidays alright?    Have you been checked for nutritional deficiencies?  Many newly diagnosed Celiacs  are low in Vitamin D and many of the B vitamins like thiamine.  Thiamin insufficiency can cause weight loss and loss of appetite (anorexia) as well as affect mood.   Benfotiamine has been shown to promote intestinal healing and improve mood.
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      I agree, @Sarah Marie, it's best to keep eating gluten and get on the doctor's cancellation list.  Some people have extreme symptoms when reintroducing gluten after a brief abstinence.  Be sure she consumes six slices of bread or gluten-y equivalent a day in the two weeks prior to the endoscopy.  There are different amounts of gluten in different products.  Chewy pizza crust and artisan breads have more gluten than cookies and cakes. Keep us posted on your progress!
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      Those are links to articles on this site.  I don't do Instagram either. https://www.celiac.com/celiac-disease/cross-reactivity-between-anti-gliadin-antibodies-and-proteins-in-spices-may-trigger-symptoms-in-some-people-with-celiac-disease-r5900/ And  https://www.celiac.com/celiac-disease/beyond-gluten-exploring-lesser-known-triggers-and-cross-reactivities-for-celiac-patients-r6350/  
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      Wow! That's really good information. I have noticed that my Celiac symptoms are ever increasingly seeming like allergy symptoms as well. Stuffed up head, horse throat post navel drip symptoms. I'm afraid I'm not sure I understand how to follow the links you sent for the expanded version of non-histamine diet? Are those Instagram addresses? Because I don't do Instagram. Thank you so much for that reply. To my knowledge, I'm okay on all of those things. Although I don't think that I've been tested for zinc. I do know when the flu's going around I try taking zinc mixed with quercetin but that seems to put my autoimmune into overdrive. As does some of these over-the-counter things which are recommended for traveling. To boost the immune to prevent sickness. Also things like echinacea and elderberry which you would think would be innocuous
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