Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Misdiagnosis


Jyvett

Recommended Posts

Jyvett Newbie

Hi! I have just had blood work done to check for Celiac disease. I have not received my results yet but have a lot of the symptoms. My question is concerning my sister who also has a host of these symptoms and what has been diagnosed as chronic hives. They have not found any cause for these outbreaks and none of the meds they have tried seem to be effective for them other then steroids. Is it possible that what she has is DH? I have not read anything anywhere on it being mistaken for hives but the pictures I have seen look like what she gets. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Happycat Rookie

Hi, I am also suffering from chronic hives right now. I have had them about 10 weeks. I've been to 2 internists and 2 allergists. If your sister's doctor said it's hives then she probably has hives. Has your sister been to allergist? They can work with the antihistamines to get the right combo of drugs for her. They did for me, well to keep me comfortable most of the time. I still have my times during the day or night when I get a little itchy!! Sometimes my lips swell, not fun!!

I also have autoimmune thyroid disease and the doctor(s) told me that 30-35% of people with this also get chronic hives. They also told me more often than not you never find the cause(90-95% of the time).

Enjoy your weekend! :P

Lisa

3boyzmom Newbie

Here are some articles regarding urticaria (hives) and celiac disease:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

I have also encountered several people who have had this experiece as well... antecdotal evidence.

Jyvett Newbie

Hi! Thanks so much for your reply. I have forwarded the links to my sister. Sure hope she can find something that can work for her as well as you have. At least maybe you will be an incentive for her to get into an allergist and try differant :D meds. Thanks again!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,296
    • Most Online (within 30 mins)
      7,748

    Struz
    Newest Member
    Struz
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Gunni
      Hey Talia4, I still try to stay on the lower end of carb intake but things are way easier for me these days. It really looks like a digestive issue at the core in my case   As supplements with meals I'm now taking 3-4x 650mg betaine hcl without pepsin (to handle larger doses) 1-2x Doctor's Best digestive enzymes   And daily Share Pommelozzini. This has helped my digestion immensely with carbs and fats. I'm way more tolerant of larger meals and things are a lot easier. Happy to hear any progress or findings on your end as well though!  
    • trents
      I think most of us, when we first got our diagnosis, imagined that going gluten free would be the magic the bullet that would restore us to perfect health. We soon find out that it usually isn't quite that simple and that celiac disease has long fingers.
    • Celiacsugh
      Thanks! I still have much to learn, I'd hoped going gluten-free would be a magic bullet and I'm learning my system is still very sensitive which is overwhelming and discouraging at times. Thanks for the yogurt tip! There is comfort in knowing that this is common during early healing and I'm not alone! 
    • Celiacsugh
      Thanks so much for the response. Are you usually able to pinpoint a trigger when you get the pain again? What I didn’t share in my earlier post is that I also usually eat out on weekends (though I share celiacs/needs to be gluten-free) and I’ve also been under a lot of stress lately in my personal life. While I’m speculating that it’s the wine it could certainly be a number of things. Do you ever notice the pain more when you are stressed? Learning so much about the brain/gut connection and celiacs. Thanks, there is comfort in hearing others have experienced similar symptoms. 
    • Raquel2021
      This was my main symptom. I still get it from time to time. Also feels like a burning pain on the upper abdomen. I think the wine could definitely cause the pain to be worse. There are do many things I still can't eat.
×
×
  • Create New...