Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Took My Three Kids In To Be Tested Today


TrillumHunter

Recommended Posts

TrillumHunter Enthusiast

I'm surprised but it went really well. Only one had ever had blood drawn and he was too little to remember it. They are 6, 8 and 10. The youngest has eczema and hypoglycemia. The middle has smelly, bulky poos and a difficult disposition. The oldest has chronic constipation and a defect in his teeth enamel. All three complain of their bones hurting--I've always thought it was growing pains. I'll be surprised if at least one doesn't test positive. Do many of you have multiple children who have it? My husband and I have agreed to make the house gluten free if two of them test positive. It will have to be majority rule. Like I said, it will be a long week!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

Well, we did enterolab so I can't answer specifically.

My youngest hasn't been tested but his eczema cleared up going soy and then gluten free. Gluten lite wasn't good enough for him so I'm thinking he has celiac. All the children have at least one celiac gene since my husband has two.

Everyone tested positive through enterolab for elevated IgA except my husband.

gf4life Enthusiast

All 3 of my kids have it. I was actually relieved. I would rather it be either all or none. I would have felt really bad if it had only been one or two of them. then we would have had to deal with the others bring ing gluten into the house or having different foods when we go out and stuff. It is so much easier to have us all on the diet. My husband is the only one who does not follow the gluten-free diet, but he eats mostly gluten free just because I do most of his cooking and I get sick from the gluten being in the house. He eats gluten when we go out sometimes, but he keeps it away from the rest of us!

TrillumHunter Enthusiast

Mariann I can't help but think how less of an issue it would be if they all had it. My biggest fear is that only my daughter will have it. She has said over and over that it would be the worst thing that could ever happen to her. :( Which I can't understand because I have been sincerely happy to know what is wrong and how to take care of it. I have already made lots of yummy foods that she has enjoyed. I hope and pray that if she does have celiac disease that going gluten-free will lessen her terrible moodiness and negativity. I noticed a difference the first two weeks I was diagnosed and everyone was gluten lite. But of course I've made a point to load her up the last two weeks in order to get an accurate test.

One thing I know for sure is that none of them will have to go through the years of poor health like I did. That alone makes me confidant we can deal with this. That and this board! ;)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,073
    • Most Online (within 30 mins)
      7,748

    David Croft
    Newest Member
    David Croft
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @KRipple, thank you for the lab results from your husband's celiac disease blood antibody testing. The lab result you share would seem to be the tTG-IGA (Tissue Transglutaminase IGA) and the test result is in excess of 10x normal. This is significant as there is an increasing tendency for physicians to grant a celiac disease diagnosis on the basis of antibody testing alone when the scores on that particular test exceed 10x normal. This trend started in the UK during the COVID pandemic when there was tremendous pressure on the medical system over there and it has spread to the USA. The tTG-IGA is the centerpiece of celiac disease blood antibody testing. All this to say that some doctors would grant a celiac disease diagnosis on your husband's bloodwork alone and not feel a need to go forward with an endoscopy with biopsy. This is something you and your husband might wish to take up with his physicians. In view of his many health issues it might be wise to avoid any further damage to his small bowel lining by the continuing consumption of gluten and also to allow healing of such to progress. The lining of the small bowel is the place where essentially all of our nutrition is absorbed. This is why celiac disease when it is not addressed with a gluten free diet for many years typically results in additional health problems that are tied to nutritional deficiencies. The millions and millions of tiny finger-like projections that make up the nutrient absorbing surface of the small bowel lining are worn down by the constant inflammation from gluten consumption. In celiac disease, the immune system has been tricked into labeling gluten as an invader. As these finger-like projections are worn down, the efficiency of nutrient absorption becomes more and more compromised. We call this villous atrophy.   
    • KRipple
      Thank you so much! And sorry for not responding sooner. I've been scouring the hospital records and can find nothing other than the following results (no lab info provided): Component Transglutaminase IgA   Normal Range: 0 - 15.0 U/mL >250.0 U/mL High   We live in Olympia, WA and I will be calling University of Washington Hospital - Roosevelt in Seattle first thing tomorrow. They seem to be the most knowledgeable about complex endocrine issues like APS 2 (and perhaps the dynamics of how APS 2 and Celiacs can affect each other). His diarrhea has not abated even without eating gluten, but that could be a presentation of either Celiac's or Addison's. So complicated. We don't have a date for endoscopy yet. I will let my husband know about resuming gluten.    Again, thank you so much for sharing your knowledge with me!
    • Jmartes71
      Ginger is my best friend, it helps alot with tummy issues..
    • aattana
      Hi Phosphone, did you ever figure out what elevated your DGP?  I am in the same boat. 
    • trents
      Scott makes a good point about the prednisone. It has a general suppressing effect on the immune system. Don't misunderstand me. In view of your husband's several autoimmune afflictions, it would seem to be an appropriate medication therapy but it will likely invalidate endoscopy/biopsy test results for celiac disease.
×
×
  • Create New...