Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Philly Gluten Free Cooking Spree


SunnyDyRain

Recommended Posts

Judyin Philly Enthusiast

MANDA

ARE YOU AND JOHN NOT GOING THEN?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 53
  • Created
  • Last Reply
blueeyedmanda Community Regular

Judy-

I am pretty sure we will be going. Is this place close to where you live?

Judyin Philly Enthusiast

YOU KNOW I'M NOT EXACTLY SURE WHERE THIS PLACE IS IN THE CITY SO I ''THINK'' I'M GOING TO MEET THEM SOMEWHERE AND GO INTO THE CITY WITH THEM AS THEY ARE SO FAMILIAR WITH THE CITY.

I HOWEVER; ONLY KNOW S PHILLY WHERE MY SON LIVED.

WHERE ARE YOU AGAIN..HERSHEY RIGHT?

DON'T WORRY ABOUT DRINKING......EITHER.......I HATE BEER AND DRINK AN OCCASIONAL GLASS OF WHITE WINE BUT THAT'S IT. USUALLY WATER.

J

Judy-

I am pretty sure we will be going. Is this place close to where you live?

blueeyedmanda Community Regular

I am in Harrisburg, I work in Hershey. So tonight I am doing my wedding guest list. It will be nice to have a weekend without wedding stuff. I have to admit I must be the worst bride, this wedding planning is not fun. :)

SunnyDyRain Enthusiast

The Hyatt is in a great location! It's right on the Water at Penn's landing, Just west of independence hall and the liberty bell. It's also just a short ferry boat ride from the Camden Aquarium and some big battleship i can't remember the name of. It's a little tricky to get to get to If i remember correctly as you have to go over 95. If I was going I'd go early and go "Ride the Duck" from Constitution Center area around the city to see everything! It's a great tour.. The trolly tour is great too! I love philly... now I wish I was going!

Judyin Philly Enthusiast

MANDA..ARE YOU GOING AND IF SO DID YOU SEND IN THE $$ BY COMPUTER?

I DID IT LAST WEEK AND NEVER GOT A CONFORMATION??????????????/

FOR ANYONE WHO HAS ATTENDED ONE OF THESE...DO THEY SEND A CONFORMATION?

IS ANYONE ELSE GOING?

HUGS

JUDY

blueeyedmanda Community Regular

Hey Judy,

Actually I am not going. My mom is real sick and I want to go home and help her out. We don't know if she got the flu or what but she is really under the weather.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Judyin Philly Enthusiast

AMANDA

I'M SO SORRY ABOUT BOTH..... :(

I'LL MISS SEEING YOU BUT REALLY HOPE YOUR MOM IS OK

BEST MEDICINE FOR HER WILL BE SEEING YOU

IT'S A MUCH BETTER WAY FOR YOU TO SPEND YOUR TIME.

WISH MY MOM WAS HERE FOR ME TO VISIT.

HUGS AND LET ME KNOW HOW SHE IS

J

Judyin Philly Enthusiast

SO NO ONE FROM OUR WHOLE GROUP HERE IS GOING TO THE COOKING SPREE TOMORROW NITE.? :(

I WAS SO HOPING TO MEET SOME OF OUR FELLA CELIAC'S THERE.

JUST GOT MY CONFORMATION AND EXCITED FOR ONCE TO GO OUT SOCIALLY

JUDY

blueeyedmanda Community Regular

I really wished I could go. I am glad I went to see my mom. I am really worried about her. All she did was lay on the couch. She is scaring me.

Judyin Philly Enthusiast
I really wished I could go. I am glad I went to see my mom. I am really worried about her. All she did was lay on the couch. She is scaring me.

AMANDA

SO SORRY

DO YOU KNOW WHAT IS WRONG?

GOSH I'D BE SCARED TOO

HOW OLD IS YOUR MOM?

WILL ADD YOU TO MY PRAYERS TONIGHT.

TONIGHT WAS OK WILL POST ON D/S AND THEN DO A CUT AND PASTE HERE.

IF YOU HAVE MULTIPAL FOOD ALLERGIES IT WASN'T AS MUCH FUN.

OH WELL I GAVE IT A TRY

WILL POST SOME PICTURES OF THE EVENT ON D/S

DON'T KNOW HOW TO DO IT HERE.

HUGS AND LET ME KNOW HOW YOUR DOING.

PM ME IF YOU WANT

HUGS

JUDY

Judyin Philly Enthusiast

hi all

I went to the cooking spree tonight.

Did anyone else go?

Judy

Judyin Philly Enthusiast

GOOD MORNING EVERYONE.

A SPECIAL HUG GOES OUT TO MY FRIEND ROBBIN. THANKS FROM THE BOTTOM OF MY HEART.

THE PHILLY COOKING SPREE. IT WAS AN AMAZING EVENT AND I'M SO GLAD I WENT. I WILL KNOW HOW TO NAVIGATE THE EVENT NEXT YEAR!!

IF YOUR JUST ON A GLUTEN RESTRICTED DIET.....IT'S OUTSTANDING AND A+ EVENT.

IF YOU HAVE OTHER FOOD INTOLLERANCES.....IT WAS VERY DIFFICULT. THE DISHES ...DID NOT HAVE...THE INGREDIENT CARDS AS PROMISED.

THE 2 OTHER FOLKS I WENT WITH HAD 2 PLATES EACH OF H'ORDERVES BEFORE I EVER COULD FIND ANYTHING I COULD EAT... FINALLY SKIPPED THOSE AND WENT FOR THE THINGS PASSED BY WAITERS..THEY DIDN'T KNOW INGRED OF THOSE EITHER...JUST KEPT SAYING ..."THESE ARE ALL GLUTEN FREE."

SO A GLASS OF WHITE WINE AND AND HR LATER A NICE WAITRESS FOUND OUT THAT THE CHICKEN KABOBS JUST HAD O JUICE AND HONEY SO I HAD 3 TINY PIECES OF CHICKEN. SOME PROTEIN--THANK GOD.

AFTER THE COOK OFF COULD TALK TO SOME OF THE CHEFS AND FOUND A VERY SMALL PORTION OF PORK TO EAT. KNOW IT WAS THE COCONUT SEA BASS THAT MADE ME SICK B/C I ASKED ABOUT SOY AND DAIRY..CHEF SAID IT DIDN'T HAVE ANY IN IT AND GAVE ME HIS PERSONAL RECIPE..BUT THERE ON THE PAGE WAS BUTTER AND SOY SAUSE..SO THAT'S WHAT GOT ME

I DISCOVER WHEN LEAVING (AND NOT BEING ABLE TO HAVE ANY DESERTS B/C I DIDN'T KNOW THE INGRED), THAT THERE WAS A LIST BEHIND THE REGISTRATION COUNTER THAT HAD THE NAME OF EACH DESERT AND THE INGRED USED. ALITTLE LATE FOR ME. ALL HAD EITHER...BUTTER, TAPIOCA FLOUR, SOY FLOUR OR MILK. THERE WAS ONE I COULD TASTE AND IT WAS VERY GOOD. SURE I WENT BACK TO GET A SLICE OF THAT ONE.

THIS AM WOKE UP WITH STOMACH CRAMPS AND THE BIG 'D'. I'M SURE THE PLANNERS OF THE EVENT WOULD BE SADDEN BUT WILL WRITE A NICE LETTER TO VANESSA AFTER I FEEL BETTER. BUT.......I DID GO AND I DID TAKE A RISK AND AM GLAD I WAS ABLE TO TEST MY ABILITY TO GET OUT OF MY COMFORT ZONE.......BUT .........I'M NOT HEALED ENOUGH YET

WILL POST MORE LATER WHEN I FEEL BETTER. HOPE YOU ALL HAVE A NICE DAY

PS ----WOULD LOVE SOME FEED BACK FROM SOME OF YOU WHO HAVE ATTENDED THESE EVENTS IN THE PAST...

JUDY

blueeyedmanda Community Regular

Hi judy,

sounds like I missed a good time. Not sure what is wrong with my mom yet. We are thinking the flu. She will not go to the dr. She just lays on the couch and drinks. We are pushing fluids. Yesterday she did eat. I think the reason she doesn't have any energy is she is not eating.

I might call her in a few minutes and check on her.

So the food you did eat, was it any good? I really wish I go to go, I was looking forward to meeting you. Next year or next gluten free event. I am heading to Cape May in 3 weeks!!!

Judyin Philly Enthusiast

good luck with mom and can't wait to pictures of the big event and esp pictures of Cape may

did you try the Bella Villa yet

if not you have to go there to eat.

j

blueeyedmanda Community Regular
good luck with mom and can't wait to pictures of the big event and esp pictures of Cape may

did you try the Bella Villa yet

if not you have to go there to eat.

j

Yep, I went there last summer. I got the chicken parm. It was great. I can't wait to go back there again.

luvs2eat Collaborator

My daughter and I went. It was pretty neat. The anchor from CNN who has Celiac was a host and she asked all Celiacs to raise their hand. It was so cool to see about 250 hands shoot up. WE ARE OUT THERE!

We don't have any other issues besides gluten, so we ate like little piggies. Food was delish, booze was free, and we got a whole bunch of freebies from Pamela's bakery and a huge set up Wegman's had there, plus the gift bag of all sorts of goodies.

My only disappointment was the $20 raffle tickets. I understand that it was for a good cause, but $20 for ONE raffle ticket?

We met some super nice people and had a ball!

blueeyedmanda Community Regular

What kind of freebies did Wegamsn give away?

luvs2eat Collaborator

I got a bottle of BBQ sauce (the lady was telling me that no other BBQ sauces are gluten-free... so what have I been using for all these years??), a bottle of basting oil w/ all sorts of spices in it, and a Greek marinade for chicken. Pamelas gave me a box of chocolate biscotti. The gift bag had all sorts of goodies in it.

Most interesting was a little sample of melba toast from a baker names Ina Garden, which you know, if you watch the Food Network, is REALLY close to another chef's name.

I've said it before, and said to the lady from Wegman's... I've had the best luck w/ store brands for things like BBQ and spaghetti sauce. Their ingredients are more REAL (no high-fructose corn syrup) and often gluten-free.

I asked if they'd ever heard of a gluten-free hoisin sauce? She said she'd check up on it and call me!

blueeyedmanda Community Regular
I got a bottle of BBQ sauce (the lady was telling me that no other BBQ sauces are gluten-free... so what have I been using for all these years??), a bottle of basting oil w/ all sorts of spices in it, and a Greek marinade for chicken. Pamelas gave me a box of chocolate biscotti. The gift bag had all sorts of goodies in it.

Most interesting was a little sample of melba toast from a baker names Ina Garden, which you know, if you watch the Food Network, is REALLY close to another chef's name.

I've said it before, and said to the lady from Wegman's... I've had the best luck w/ store brands for things like BBQ and spaghetti sauce. Their ingredients are more REAL (no high-fructose corn syrup) and often gluten-free.

I asked if they'd ever heard of a gluten-free hoisin sauce? She said she'd check up on it and call me!

Cool,

I buy all my marinades, BBQ sauce and other things from their store due to the "G" on the label. Plus you can't beat the price. It is always a bit lower than the others.

luvs2eat Collaborator

Yea, they were really pushing their big "G" on the labels. Interestingly, both my daughter and I started to read the ingredients, out of habit, and were surprised to see Modified Food Starch. I've read different opinions about it, but we tend to just avoid it, assuming that if it doesn't specify the kind of starch, that it's not allowed.

blueeyedmanda Community Regular

It's funny because we don't have a store in our area yet not till Sept. Well I still shop there when I go see my family. I buy a lot of their brand stuff, the G is easy to shop for. Well, my coworkers think it is the neatest thing they love to look at the packages.

I use their pasta sauces a lot and they are real good. I recommend the Smooth Marinara.

Judyin Philly Enthusiast

Sorry I dropped the ball on the info

I did post but boy was I knocked to the ground..Still feel nauseous but might be partly the heat. The 'd' has finally stopped. ;)

think Wegmans had the best display..and at the end gave away all the products.

i couldn't eat anything in my goodie bag and only 2 things from wegmans...the basting oil w/ all sorts of spices in it, was ok and tried the ti. broth but had anchovies so now can't use that

but it still was a great event.

Wish we could get a group to go and meet next year.

if they had the ingred cards it would have been a big help but still...........they are showing how great gluten-free can taste so of course they are using butter, etc so i do understand it.

sorry for the delay

i will call Vanessa soon.

will post what she says

love you guys

j

blueeyedmanda Community Regular
Sorry I dropped the ball on the info

I did post but boy was I knocked to the ground..Still feel nauseous but might be partly the heat. The 'd' has finally stopped. ;)

think Wegmans had the best display..and at the end gave away all the products.

i couldn't eat anything in my goodie bag and only 2 things from wegmans...the basting oil w/ all sorts of spices in it, was ok and tried the ti. broth but had anchovies so now can't use that

but it still was a great event.

Wish we could get a group to go and meet next year.

if they had the ingred cards it would have been a big help but still...........they are showing how great gluten-free can taste so of course they are using butter, etc so i do understand it.

sorry for the delay

i will call Vanessa soon.

will post what she says

love you guys

j

Are you talking about the Soup Stock broth? If so I use the chicken all the time. I jumped up and down in the aisle when I found that!!!

Judyin Philly Enthusiast

hi Manda

it was the Thia broth. think the rest had soy. I'm not sure as i use kitchen basic or imagine beef and chicken broth.

the sweet lady at wegmans tired so hard to find a salad dressing etc without soy

she was as sorry about it as i was.

i can't eat the Pamela's either but know their products tastes wonderful-- before if found i couldn't tolerate them. Pamela folks at the table were so nice..they gave me a whisk and some bag closer clips...they were really sweet as were the pizza people

those little boys were precious.

i asked if they had any slices without cheese.......bless their hearts they all went... ugh, who wants a pizza without cheese? you gotta love their innocence.

they sure went all out for this event!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,985
    • Most Online (within 30 mins)
      7,748

    Sparks889395
    Newest Member
    Sparks889395
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Okay, it does make sense to continue the gluten challenge as long as you are already in the middle of it. But what will change if you rule it out? I mean, you have concluded that whatever label you want to give the condition, many of your symptoms improved when you went gluten free. Am I correct in that? According to how I understand your posting, the only symptom that hasn't responded to gluten free eating is the bone demineralization. Did I misunderstand? And if you do test positive, what will you do different than you are doing now? You have already been doing for years the main thing you should be doing and that is eating gluten free. Concerning how long you should stay on the gluten challenge, how many weeks are you into it already?
    • WildFlower1
      I mean that I will be re-taking the celiac blood test again while I am currently on the gluten challenge right now, but not sure how many weeks more to keep going, to ensure a false negative does not happen. Thank you.
    • WildFlower1
      Thank you for your help, I am currently in the middle of the gluten challenge. A bit over 6 weeks in. At 4 weeks I got the celiac blood tests and that is when they were negative. So to rule out the false negative, since I’m in the middle of the gluten challenge right now and will never do this again, I wanted to continue consuming gluten to the point to make sure the blood tests are not a false negative - which I did not receive a firm answer for how many weeks total.    My issue is, with these blood tests the doctors say “you are not celiac” and rule it out completely as a potential cause of my issues, when the symptoms scream of it. I want to rule out this 30 year mystery for my own health since I’m in the middle of it right now. Thank you!
    • trents
      I am a male and had developed osteopenia by age 50 which is when I finally got dx with celiac disease. I am sure I had it for at least 13 years before that because it was then I developed idiopathic elevated liver enzymes. I now have a little scoliosis and pronounced kyphosis (upper spine curvature).  All of your symptoms scream of celiac disease, even if the testing you have had done does not. You may be an atypical celiac, meaning the disease is not manifesting itself in your gut but is attacking other body systems. There is such a thing as sero negative celiac disease. But you still have not given me a satisfactory answer to my question of why do you need a differential dx between celiac disease and NCGS when either one would call for complete abstinence from gluten, which you have already been practicing except for short periods when you were undergoing a gluten challenge. Why do you want to put a toxic substance into your body for weeks when, even if it did produce a positive test result for celiac disease, neither you or your doctors would do anything different? Regardless of what doctors are recommending to you, it is your body it is affecting not theirs and they don't seem to have given you any good justification for starting another gluten challenge. Where you live, are doctors kings or something?
    • WildFlower1
      Sorry to put it clearly, at 15, infertility started (tried to word it nicely) meaning menstruation stopped. Which is in correlation to celiac I mean. Thank you. 
×
×
  • Create New...