Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Me Help My 3 Year Old Daughter


sspringer

Recommended Posts

sspringer Newbie

I have a 3 year old daughter who was diagnosed about a year ago. About 6 months later I went through a divorce. I know it probably sounds terrible but I don't know how well educated I am. I talked with the nutritionist, doctor and in the beginning went to support group meetings, but like I said I don't know how much I absorbed. I have a handle on alot of the stuff, but I am unsure of some ingredients, like dyes and other hidden stuff. Also I was not aware until I was reading this that I need to be careful of beauty products, I knew of make up, envelopes and some stuff but I guess there is a lot more I need to know. She goes to preschool and I send her lunch every day. I am just so scared after reading all this that I am harming her health by my lack of knowledge. She has acted fine and once in a while will complain of a stomach ache although she is very hyper and has pretty testy behavior, very unlike my other children. I want to make sure I do the best I can for her as I am her only advocate. With my personal issues behind me now I am able to solely focus on her and educating myself further. Please if you have any suggestions let me know. I appreciate everyones help and I am so glad I found this forum.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mama2two Enthusiast
I have a 3 year old daughter who was diagnosed about a year ago. About 6 months later I went through a divorce. I know it probably sounds terrible but I don't know how well educated I am. I talked with the nutritionist, doctor and in the beginning went to support group meetings, but like I said I don't know how much I absorbed. I have a handle on alot of the stuff, but I am unsure of some ingredients, like dyes and other hidden stuff. Also I was not aware until I was reading this that I need to be careful of beauty products, I knew of make up, envelopes and some stuff but I guess there is a lot more I need to know. She goes to preschool and I send her lunch every day. I am just so scared after reading all this that I am harming her health by my lack of knowledge. She has acted fine and once in a while will complain of a stomach ache although she is very hyper and has pretty testy behavior, very unlike my other children. I want to make sure I do the best I can for her as I am her only advocate. With my personal issues behind me now I am able to solely focus on her and educating myself further. Please if you have any suggestions let me know. I appreciate everyones help and I am so glad I found this forum.
mama2two Enthusiast
I have a 3 year old daughter who was diagnosed about a year ago. About 6 months later I went through a divorce. I know it probably sounds terrible but I don't know how well educated I am. I talked with the nutritionist, doctor and in the beginning went to support group meetings, but like I said I don't know how much I absorbed. I have a handle on alot of the stuff, but I am unsure of some ingredients, like dyes and other hidden stuff. Also I was not aware until I was reading this that I need to be careful of beauty products, I knew of make up, envelopes and some stuff but I guess there is a lot more I need to know. She goes to preschool and I send her lunch every day. I am just so scared after reading all this that I am harming her health by my lack of knowledge. She has acted fine and once in a while will complain of a stomach ache although she is very hyper and has pretty testy behavior, very unlike my other children. I want to make sure I do the best I can for her as I am her only advocate. With my personal issues behind me now I am able to solely focus on her and educating myself further. Please if you have any suggestions let me know. I appreciate everyones help and I am so glad I found this forum.

Have you ever read "gluten-free living for dummies" by Danna Korn? I am reading it now and she did talk of gluten in make-up and beauty products and what she said is that unless they are on your mouth or near it so that it may be ingested it usually does not bother you. But she said that some people say that beauty products, shampoos etc. with gluten do bother them, in which case you should obviously avoid them. GOod Luck!!

chrissy Collaborator

are you having your daughter's Ttg levels tested on a regular basis? this is a really good way to monitor how well you are following the diet. we test our girls about every 6 months. i would imagine that over time we will test them less often, but for now, it helps us to keep an eye on things.

sspringer Newbie

Thanks for your replies. I actually was told to follow up with her pediatrician and that the GI doctor didn't need to see her anymore. Do you go to your ped. to get the test or the GI doc? I have also heard alot about the celiac for dummies so I am going to order that today. Thanks again.

JennyC Enthusiast

If you are buying from reliable companies then you don't have to worry about hidden gluten. Nestle, General Mills and Kraft to name a few will not hide their gluten. I suggest going to their websites are printing off a list of their brands. You usually do not need to worry about caramel coloring, but I will not feed my son anything with natural flavoring from an unknown brand without calling them first. Many people say that modified food starch is fine unless it says that it is made from wheat, but I follow the same policy as I use with natural flavoring. The best thing to do besides finding the safe brands is to just start calling companies. Each company usually produces many products so you can sometimes get lots of information from one company. If you send me a private message with your email I will send you an email attachment of some gluten free food lists to give you a head start.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,074
    • Most Online (within 30 mins)
      7,748

    David Croft
    Newest Member
    David Croft
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @KRipple, thank you for the lab results from your husband's celiac disease blood antibody testing. The lab result you share would seem to be the tTG-IGA (Tissue Transglutaminase IGA) and the test result is in excess of 10x normal. This is significant as there is an increasing tendency for physicians to grant a celiac disease diagnosis on the basis of antibody testing alone when the scores on that particular test exceed 10x normal. This trend started in the UK during the COVID pandemic when there was tremendous pressure on the medical system over there and it has spread to the USA. The tTG-IGA is the centerpiece of celiac disease blood antibody testing. All this to say that some doctors would grant a celiac disease diagnosis on your husband's bloodwork alone and not feel a need to go forward with an endoscopy with biopsy. This is something you and your husband might wish to take up with his physicians. In view of his many health issues it might be wise to avoid any further damage to his small bowel lining by the continuing consumption of gluten and also to allow healing of such to progress. The lining of the small bowel is the place where essentially all of our nutrition is absorbed. This is why celiac disease when it is not addressed with a gluten free diet for many years typically results in additional health problems that are tied to nutritional deficiencies. The millions and millions of tiny finger-like projections that make up the nutrient absorbing surface of the small bowel lining are worn down by the constant inflammation from gluten consumption. In celiac disease, the immune system has been tricked into labeling gluten as an invader. As these finger-like projections are worn down, the efficiency of nutrient absorption becomes more and more compromised. We call this villous atrophy.   
    • KRipple
      Thank you so much! And sorry for not responding sooner. I've been scouring the hospital records and can find nothing other than the following results (no lab info provided): Component Transglutaminase IgA   Normal Range: 0 - 15.0 U/mL >250.0 U/mL High   We live in Olympia, WA and I will be calling University of Washington Hospital - Roosevelt in Seattle first thing tomorrow. They seem to be the most knowledgeable about complex endocrine issues like APS 2 (and perhaps the dynamics of how APS 2 and Celiacs can affect each other). His diarrhea has not abated even without eating gluten, but that could be a presentation of either Celiac's or Addison's. So complicated. We don't have a date for endoscopy yet. I will let my husband know about resuming gluten.    Again, thank you so much for sharing your knowledge with me!
    • Jmartes71
      Ginger is my best friend, it helps alot with tummy issues..
    • aattana
      Hi Phosphone, did you ever figure out what elevated your DGP?  I am in the same boat. 
    • trents
      Scott makes a good point about the prednisone. It has a general suppressing effect on the immune system. Don't misunderstand me. In view of your husband's several autoimmune afflictions, it would seem to be an appropriate medication therapy but it will likely invalidate endoscopy/biopsy test results for celiac disease.
×
×
  • Create New...