Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Questions

Rach219

By Rach219
in Coping with Celiac Disease

Recommended Posts

Rach219 Newbie
Rach219
Posted

I was just diagnosed with celiac disease a little over a week ago and am still trying to sort things out, in terms of what I can and can NOT eat. I have not been able to see a dietician yet b/c of having to get back to college. So I was wondering if anyone could answer the following questions for me or have any ideas of where I can get the needed information.

- What do I do about taking the Lord's supper on Sunday morning? Is taking a small, small piece of communion bread okay?

- Is maltodextrin an okay thing to consume or do I need to stay away from it?

- On a gluten free diet can you have artificial flavoring and/or natural flavoring?

- Can you have artificial and/or natural coloring?

- Does anyone know of a site that has a list of ingredients to look out for on labels?

Thanks So Much!

Have a great day!

~Rach219

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted
- What do I do about taking the Lord's supper on Sunday morning? Is taking a small, small piece of communion bread okay?

- Is maltodextrin an okay thing to consume or do I need to stay away from it?

- On a gluten free diet can you have artificial flavoring and/or natural flavoring?

- Can you have artificial and/or natural coloring?

- Does anyone know of a site that has a list of ingredients to look out for on labels?

1. communion: it's a personal call. the official church stance is that transubstantiation means that it is no longer wheat, but the body and blood of Christ and hence contains no gluten. I personally don't believe in transubstantiation that can turn grain into human flesh, literally. (symbolically, fine; literally, no.) some people decide to "trust in God", figuring that if his church would require it, he'll make sure it doesn't hurt people. others choose to recieve the wafer in their hands, and pocket it and dispose of it. others choose to just drink the wine (a sufficient replacement according to church doctrine), but there is a small risk of contamination from the others who drink from the cup. others choose to forgo it entirely and believe that God will understand their choice.

2. Maltodextrin - I believe you have to call and check on that one.

3. Natural/artificial flavoring - I've never heard of an artificial flavoring with gluten, but I don't assume, and I always call on natural flavorings for companies who don't explicitly announce they will label all gluten containing items (like Kraft).

4. Natural/artificial coloring - ditto above.

5. Website for safe/unsafe - the Celiac.com main site has a list of safe and unsafe foods and things to watch for in ingredient labels. it's one of the best lists I've seen around.

Guest barbara3675
Guest barbara3675
Posted

Hello Rachel-----Welcome to the message board, you will find answers to all your questions here if you stick around long enough. I don't have answers to all your questions, but I do have two things to offer.

1. I took some almond crackers (Blu-Daimond Nut-Thins available at the grocery store) to church with me, broken in half, and the pastor (ELCA Lutheran) put one in the dish that he hands them out from so mine was blessed with all the rest. It worked beautifully. As the cracker is kind of tan color, and it ends up being different shaped by being broken in half, he can tell mine from the rest of what he has in his dish. We had already discussed ordering rice wafers, but this is a better solution as I think the rice wafers would have looked just like the wheat ones that everyone else was taking. Both the pastor and I are satisfied with this solution.....now, if you are Catholic, you will run into something very different and this is being discussed at this time in your church. Otherwise, any other denomination should be open to accomodating your needs.

2. Here is a site you can go to for printing off a 49 page printout of the foods that you CAN buy at the grocery store that are gluten free. I got this from my son as my granddaughter who is six now has celiac disease---diagnosed when she was one, a very sick little girl, who is now very healthy. The site is: www.napervillegi.com/celiac/GFfoodlist.pdf

I sure hope this will help you some. I found out just recently (at age 59) that I am gluten intolerant so now we know who gave the gene to my granddaughter, Ana!!!! I have to eat gluten-free/cf (also found out in the testing process that I am casein intolerant) so that I don't develop celiac disease. I am feeling so much better since going gluten-free. You will too. Give it time and have patience. Stick with foods that you know for sure until you get gluten-free savy (and you will). I had a leap up on the whole thing as I have been cooking and baking for Ana for five years now. If you just look at it as a new adventure in your life, then maybe it won't be so daunting. Find a health food store that handles gluten-free foods and use the mixes, they really are quite good. Also they have a bread made from almonds and rice that I love----real heavy and you really have to toast it, but it does the job---makes great garlic toast!!! Sometimes they are also knowledgable about celiac, I got lucky because the owner of my health food store is a celiac patient.

Best wishes to you.......Barbara

Tutahl75 Apprentice
Tutahl75
Posted

Hi Rachel,

I lucked out and found a book that was later recommended by my nutritionist. It's called "Gluten Free Diet - A Comprehensive Resource Guide" and the author is Shelley Case. It's very helpfull in breaking down the good and the bad things in our diet.

Rach219 Newbie
Rach219
Posted
  • Author

Hello All,

Thank you so much for your responses and your help. It's getting easier for me to identify the ingredients that are off limits, when on a gluten-free diet. I was wondering if anyone else had problems with weight loss once going on the gluten-free diet. I've been on the gluten-free diet for 2 weeks now since being diagnosed with Celiac disease and I've lost a total of 7lbs. I'm still eating as much as I used to, it's just that the foods are now gluten-free instead of having gluten in them. Any suggestions on how to stop the weight loss or get back to my regular weight?

Thanks Again,

Rachel :)

celiac3270 Collaborator
celiac3270
Posted

I think everything's been answered except for your question about maltodextrin. In the United States, maltodextrin almost never contains gluten. It is usually made from corn in US products, though it is sometimes made with gluten-containing ingredients in other countries. You do need to be wary of maltodextrin in prescriptions, though, even in the US

mommida Enthusiast
mommida
Posted

I've been losing weight too. I think the first weight that comes off is water weight gain from your body's defense system. Muscles are starting to develop and gain strength. From what long term gluten-free dieter's say the weight gain will come soon enough. I've been making sure I eat a Tablespoon of peanut butter a day.

Laura

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


strack2004 Rookie
strack2004
Posted

I've been losing weight also. It goes down slowly, increasingly so, but every so often it's down another pound. My scale is not very accurate. Need to get a new one soon. At the doctor's my last weight was 130 lbs. Of course, that counts clothes and they account for more weight now in a chilly fall. Last year at this time I weighed 160 lbs. However, I had already modified my diet considerably before starting on the SCD diet in July. I was using bread and oatmeal and pasta before July 26, but did not eat desserts or sugar things. Cheers, Ruth

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Reverse Osmosis (RO) Water

      I've heard RO water is bad, too. Distilled water has all the minerals distilled out of it, so it will pull minerals out of your bones, too. I only use distilled water to fill up my clothes iron so it won't get mineral deposits inside and quit working. I drink mineral or spring water.
    2. Yaya
      - Yaya replied to Yaya's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Great Value Veggies cannot be trusted.

      Scott. Thank you for your reply. I'm still having symptoms, but significantly better. I will go back to batch cooking and freezing vegetables. I have had success with Pict Sweet frozen, single item (not mixed) vegetables. My Kroger carries very little Pict Sweet variety. Regards, Yaya
    3. Known1
      - Known1 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Reverse Osmosis (RO) Water

      I am hesitant to post this as I have seen many people here recommending RO water. With that said, I want to share my experience and how RO water now impacts me. Three or four years ago a local store installed a RO water refill station. I had been buying gallons of distilled and spring water prior to that. I switched over to using the RO water refill station...
    4. Known1
      - Known1 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      What would you do - neighbor brought gluten-free pizza from Papa Murphy's

      My neighbor's mom was diagnosed with celiac disease 16 years ago. She is a very kind person and has shared some info about local grocery stores and daily (soon to expire) meat deals. This evening she brought over 2 slices of Papa Murphy's gluten-free pizza. It looks to be topped with chicken and spinach. I asked, "aren't you concerned with cross contamination...
    5. Scott Adams
      - Scott Adams replied to Yaya's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Great Value Veggies cannot be trusted.

      That must have been really upsetting to discover, especially after relying on a product you believed was safe. Labeling can change at any time due to supplier shifts or shared equipment, so it’s always important to double-check packaging—even on products we’ve trusted for years. A “may contain wheat” statement usually indicates potential cross-contact risk rath...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,442
    • Most Online (within 30 mins)
      7,748
    Peggy Vorell
    Newest Member
    Peggy Vorell
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Reverse Osmosis (RO) Water

      By knitty kitty · Posted

      I've heard RO water is bad, too.   Distilled water has all the minerals distilled out of it, so it will pull minerals out of your bones, too.  I only use distilled water to fill up my clothes iron so it won't get mineral deposits inside and quit working. I drink mineral or spring water.  
    • Yaya
      Great Value Veggies cannot be trusted.

      By Yaya · Posted

      Scott.  Thank you for your reply. I'm still having symptoms, but significantly better.  I will go back to batch cooking and freezing vegetables.  I have had success with Pict Sweet frozen, single item (not mixed) vegetables.  My Kroger carries very little Pict Sweet variety. Regards, Yaya
    • Known1
      Reverse Osmosis (RO) Water

      By Known1 · Posted

      I am hesitant to post this as I have seen many people here recommending RO water.  With that said, I want to share my experience and how RO water now impacts me.  Three or four years ago a local store installed a RO water refill station.  I had been buying gallons of distilled and spring water prior to that.  I switched over to using the RO water refill station saving money by brining in my own clean empty gallon jugs.  Every 6-months I would replace the jugs by buying new gallons of distilled water.  This RO water is the only water I would drink while at home.  Two huge glasses every morning before work and two more after work.  I would also use the RO water to make coffee and hot coco. This past December, prior to my celiac diagnosis, my gut was making more noise than anything I had ever experienced.  Seriously, it was crazy, almost like fire works going off in my stomach.  I happened to pick up some distilled water for my 6-month jug rotation.  Literally, as soon as I started drinking the distilled water my stomach settled a great deal.  I could honestly feel the difference after the first glass of water.  I thought that maybe the RO water from the store's refill station was contaminated with some sort of cleaning agent.  I swore to myself I would never drink from that RO refill station again.  Instead I went back to buying distilled along with gallon jugs of spring water.  No issues with either of those as far as an upset stomach is concerned.  Cost, well that's a different story all together. After being diagnosed marsh 3c, I went shopping at Aldi's for the first time in my life.  I noticed they also sell water by the gallon.  Over the course of the last few weeks, I have purchased a total of 6-gallons of their water.  (Thankfully they were out on two of my visits.)  After having my stomach starting to make noises similar to mid-December again, it dawned on me, maybe its the Aldi water?  Initially I had contributed my bubble gut to some sort of gluten exposure or cross contamination.  Even though everything I have put into my stomach is naturally gluten-free or has been labeled gluten-free / certified gluten-free.  I had assumed that the Aldi water was spring water.  Come to find out, that was a bad assumption.  Looking close at the label it says purified by RO or distillation (or something like that). Again, I switched to different water.  Just like last December, the non-RO water instantly calmed my stomach and even felt better going down the hatch.  This was earlier today by the way.  Prior to creating this post, I did a few searches via Uncle Google.  I bumped into a thread on Reddit (where I am not a member) that has multiple people complaining of GI issues related to RO water.  So my initial thoughts on a cleaning agent in the refill station RO water were likely not correct.  Unfortunately, it seems the RO water itself causing me problems.  I am not sure if we are allowed to post links to other sites and hopefully I will not get into trouble for doing so.  I did try printing the Reddit thread to a PDF file.  Unfortunately, the file is 2MB in size, which is well over the 500KB file attachment limit here on this amazing forum.  Again, hopefully this is ok.  🤞  Here is the Reddit thread. This may not be a popular opinion here, but personally, I will not willingly drink another glass of RO water for the remainder of my life.  Who knows, maybe drinking RO water for the past several years is part of what activated my celiac?  No proof, but just a thought.  Come to find out RO water is well known to leech minerals from your body.  With people like us often lacking minerals to begin with, RO water does not seem like a wise choice.  As the Reddit thread mentions, there are RO water filtration systems that will inject minerals back into the water.  However, those systems are likely not being used at the grocery store refill stations nor by the bottling companies producing RO water for sale at your local store. Please do not shoot the messenger as I am just sharing my personal experience and letting others know that most RO water will leech minerals from your body. God bless and stay well, Known1
    • Known1
      What would you do - neighbor brought gluten-free pizza from Papa Murphy's

      By Known1 · Posted

      My neighbor's mom was diagnosed with celiac disease 16 years ago.  She is a very kind person and has shared some info about local grocery stores and daily (soon to expire) meat deals.  This evening she brought over 2 slices of Papa Murphy's gluten-free pizza.  It looks to be topped with chicken and spinach.  I asked, "aren't you concerned with cross contamination"?  She said no and apparently eats it on a somewhat regular basis. I found an old article here along with another thread pertaining to Papa Murphy's gluten-free pizza.  The article is quite old, so I do not think it holds much weight nowadays.  The thread I found was also a bit dated, but certainly more recent and relevant.  The information in the thread I found was a bit inconclusive.  Some said they trust Papa Murphy's gluten-free pizza and others were a big no way.  One person even took time to train their local franchise on how to ensure the pizza remains gluten-free without cross contamination. Anyway, being recently diagnosed as marsh 3c, I am currently working on week 3 or 4 in my new gluten-free journey.  I do not want to be rude and toss the pizza out, but I also do not want to have a reaction.  Since she has celiac and obviously ate much or at least some of the pizza, I am leaning towards eating the two slices for lunch tomorrow.  As this thread's title states, what would you do?  Would you eat it or toss it out?  I suppose I could also just give it back to my neighbor to polish off. I look forward to reading your thoughts. Thanks, Known1
    • Scott Adams
      Great Value Veggies cannot be trusted.

      By Scott Adams · Posted

      That must have been really upsetting to discover, especially after relying on a product you believed was safe. Labeling can change at any time due to supplier shifts or shared equipment, so it’s always important to double-check packaging—even on products we’ve trusted for years. A “may contain wheat” statement usually indicates potential cross-contact risk rather than an added ingredient, but for people with celiac disease that risk can still be significant. If you’ve been having symptoms, it may take days to weeks to fully settle, depending on the level and duration of exposure. In the meantime, switching to fresh produce or brands that clearly state gluten-free status is a reasonable step. It may also help to contact the manufacturer directly to ask when the labeling changed and what their current cross-contact controls are.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.