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Hi. I'm New And I Have A Question

Crystalkd

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Crystalkd Contributor
Crystalkd
Posted

Hi all. My name is Crystal. I was told 5 days ago that I have celiac disease but have been on the diet for 2 1/2 weeks. My question is this: I went to a gastrointerologist and had a biopsy done after 2 blood tests came in in a gray area. The biopsy came back negitive. I then went to see an Internist. He said that even if the biopsy comes back negitive you can still have it. The only true test is to try the diet. I had been really sick before the diet and lost alot of weight. I can tell when I blow the diet. I don't feel well for a few hours or a few days. I've started to gain weight back and I feel a lot better! There are still a couple of things he's checking for as well since I have mild Cerebral Palsy too. Has anyone else run into the same problem? I'm starting to get really confused. All I know is I'm starting to feel alot better. I also know my body is very sensitive to the slightest change.

I forgot to say that I didn't go on the diet until AFTER the biopsy was done. My family and I decided that I had nothing to lose and why wait a week or two for the results when I could start feeling better sooner.

Thanks

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tom Contributor
tom
Posted

1st, congrats on starting the diet and feeling better!

2nd, it is all too common for biopsies and/or blood tests to be false negatives. If u hadn't started eating gluten-free (and DO have celiac), u would have started to at some point in the future after one or both tests finally proved it. I've heard of as long as YEARS later.

3rd, u may actually not have celiac at all, but rather be gluten-intolerant. And in this case also you've done the right thing, imho, in going gluten-free.

Best of luck! Tom

pedro Explorer
pedro
Posted

Hi Crystal and welcome.

You have done well by starting the diet. You will feel better little by little.

In this forum you will get lots of information from many people.

Best regards to you and again welcome aboard.

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    • trents
      Autoimmune Reaction to SO many foods

      By trents · Posted

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      Autoimmune Reaction to SO many foods

      By Maura Gissen · Posted

      Hi Trent! Thanks so much for your warm welcome and questions! They do, but these symptoms have been ongoing for a long time before the pregnancy. However, it's hard for me to know what's a celiac response vs. a Hashimotos one. I haven't, maybe it's worth getting those checked again? 
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      By trents · Posted

      Welcome to the forum, @Maura Gissen! Don't those same symptoms often come along with the territory when pregnant? And then throw in Hashimoto's.  Have you had your celiac antibody levels checked recently?
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