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I Thought That They Were Gluten Free


little d

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little d Enthusiast

I picked up a box of Vann's waffles at Walmart good price 1.79 they were right next to the Gluten free/wheat free boxs and i picked up the blueberry waffles didn't even look to verify that it said Gluten free and took them home started to eat them, the second time I ate them just happened to read the box for the millionth time as I had them in the toaster and started to eat realized that they had wheat in them, I though no wonder I still didnt feel that great after you know lathargic, heartburn a little tummy burn and now since I had them tuesday and last week I think that is was Monday last week that I had these and I then started to get my reacurring itching, burning I cant stop scratching on the side of my wrist and then the little blisters came which some went away or bursted while in the shower they were raised before the shower after they went down and then came the D :ph34r: the lovley D very smelly :ph34r: so smelly that the restroom that I used at work is a little hidden have to go through 2 doors just to get to it and someone wanted to use it and never ventured much farther that the first door they turned right around to find another bathroom, I thought wow it really must stink for it to reach the first door i was kinda embarresed but im glad that they didn't know that it was me. Of course I have not been diagnosed with DH but I think that it could be, I did go to the primary doctor to look at it and he just said exzama I told him that I had wheat last week and D now and he said well sound like that it could be connected and just to continue with my gluten free diet do what I can until something major happens, He looked at the report that the GI sent him and said that all looks normal and to keep an eye on thing if gets worse let him know, He didn't know what else to do because he is just a general doctor who has been my husband doctor since he was 3 month old so he has been practing for over 33 years. I don't have any hard feeling for my doc he is nice he is just a little old, but he does get what we need when the family is sick and very understanding to our needs and he was honest with me last year when he said I have no idea what Celiacs is and the gluten free diet consist of and his nurse gotta love her too just as old and when she had talked to me on the phone last year she said to me if you do have Celiac Disease or intolerance My goodness she said what on earth are you supposed to eat I couldn't help but laugh :lol::lol: and I said I don't know you tell me. Wow I'm sorry ya'll I didn't realize how long I was going to be I just rambled on, I guess thats what you get for being tired from working all night and only getting 2-3hours of sleep no not because of D but because of the phone. :angry:

donna


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grey Explorer

Wow, sorry to hear that you got glutened! If you'd told me, I wouldn't have been surprised to hear that there was a Vann's that was gluten-free. I guess that's why we're supposed to read everything... (you'd think that we could just get one of those buzzers on the wrist or something instead though to train us). I bought this thing at Target (or Menard's?) a de-smellifier -"True Air"- that's a plug in filter/fan. It doesn't pump chemicals in the air - no smells - it circulates the air through a filter. It's not perfect, but it does a help in a small space. I wonder if you could plug it in at work?

I picked up a box of Vann's waffles at Walmart good price 1.79 they were right next to the Gluten free/wheat free boxs and i picked up the blueberry waffles didn't even look to verify that it said Gluten free and took them home started to eat them, the second time I ate them just happened to read the box for the millionth time as I had them in the toaster and started to eat realized that they had wheat in them, I though no wonder I still didnt feel that great after you know lathargic, heartburn a little tummy burn and now since I had them tuesday and last week I think that is was Monday last week that I had these and I then started to get my reacurring itching, burning I cant stop scratching on the side of my wrist and then the little blisters came which some went away or bursted while in the shower they were raised before the shower after they went down and then came the D :ph34r: the lovley D very smelly :ph34r: so smelly that the restroom that I used at work is a little hidden have to go through 2 doors just to get to it and someone wanted to use it and never ventured much farther that the first door they turned right around to find another bathroom, I thought wow it really must stink for it to reach the first door i was kinda embarresed but im glad that they didn't know that it was me. Of course I have not been diagnosed with DH but I think that it could be, I did go to the primary doctor to look at it and he just said exzama I told him that I had wheat last week and D now and he said well sound like that it could be connected and just to continue with my gluten free diet do what I can until something major happens, He looked at the report that the GI sent him and said that all looks normal and to keep an eye on thing if gets worse let him know, He didn't know what else to do because he is just a general doctor who has been my husband doctor since he was 3 month old so he has been practing for over 33 years. I don't have any hard feeling for my doc he is nice he is just a little old, but he does get what we need when the family is sick and very understanding to our needs and he was honest with me last year when he said I have no idea what Celiacs is and the gluten free diet consist of and his nurse gotta love her too just as old and when she had talked to me on the phone last year she said to me if you do have Celiac Disease or intolerance My goodness she said what on earth are you supposed to eat I couldn't help but laugh :lol::lol: and I said I don't know you tell me. Wow I'm sorry ya'll I didn't realize how long I was going to be I just rambled on, I guess thats what you get for being tired from working all night and only getting 2-3hours of sleep no not because of D but because of the phone. :angry:

donna

little d Enthusiast

grey

The buzzer thing would be a great idea when shopping just add a scanner run it over the bar code and wam bam it will tell don't do it you will regret it later on the PROCLINE THRONE. and yes there are Vann's waffle that are gluten free/wheat free I have bought them in the past and not a problem. But they are very blah the apple cinnimon are good a little tastyer.

donna

  • 2 months later...
zachsmom Enthusiast

The gluten free ones are kinda next to the regular ones.... too bad. My favorite is when my husband comes home and says HEY >>> I found the greatest cereal bars that say WHEAT FREE>>>> yipeeee doooo dah......... Untill I say .. ah duhhhh boy, wheat free doesnt mean gluten free and I am leaving.. and guess who gets to clean up the baby now in an hour and a half when he starts to vomit.... YOU DOOOOOOOOO ,,,, SO now he looks at the lables better,,, But this isnt easy

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    • trents
      We are all different and our immune systems are unique. I will say, however, that I have not gotten the impression as a moderator and reading hundreds and hundreds of posts on this forum over the years that a dermatitis herpetiformis outbreak caused by grains other than wheat, barley and rye is common. But perhaps it is more common than we have realized and it could be why it it is seems to be common that those who suffer from dermatitis herpetiformis struggle to keep it under control. Perhaps there are qualities found in all cereal grains besides gluten that are contributing factors. Also, have you tried a low iodine diet to see if it helps with your dermatitis herpetiformis? Reportedly, reducing iodine helps some folks afflicted with dermatitis herpetiformis.
    • Richardo
      Ok thanks Trents. I had the lesions biopsied and confirmed dermatitis herpetiformis, so I guess dermatitis herpetiformis can be associated with other grains not typically gluten. I appreciate your comment and I'll give Dr Osborne the benefit of the doubt because without him I would never have known of my grain intolerance and would still be suffering today. I simply never read anyone explain how grains could worsen dermatitis herpetiformis and I feel that information should be made much more readily available. Hey if someone tries going grain free and there's no improvement, no loss, however it drastically changed my life for the better and could at least be offered as a suggestion to sufferers from dermatitis herpetiformis. The other option is Dapsome and I wouldn't want anyone taking that chemical if there was a more natural solution. thanks again 
    • trents
      Welcome to the forum, @Richardo! We sometimes run across terms like "rice gluten", "corn gluten", and "oat gluten" but they are used informally and, technically, it is incorrect to speak of grains other than wheat, barley and rye as having gluten. Gluten is a protein with a specific structure found only in wheat, barley and rye. Other cereal grains contain proteins that are more or less similar in structure to gluten in some ways but are not actually gluten. Having said that, the proteins found in these other cereal grains are similar enough to gluten to possibly cause cross reactivity in some celiacs. Cross reactivity also happens with non cereal grain foods as well that have a protein structure similar to gluten. A prime example is dairy (the protein "casein"). Another example may be soy. Other foods can also cause cross reactivity for different reasons, such as microbial transglutaminase (aka, "meat glue") used commonly in pressed meat products. Just so you'll know, Dr. Osborne's claims have not received wide acceptance in the celiac community and are looked upon with skepticism by the medical and scientific community. Although he is a board certified nutritionist, his doctorates are actually in chiropractic medicine and pastoral science: https://www.drpeterosborne.com/about/dr-peter-osborne/ I am not sure Osborne has the training and background to address the chemical structure that defines gluten. I would encourage you to do some research on what gluten actually is. I have done this for myself and came away convinced that only wheat, barely and rye actually contain the protein gluten. I do not doubt your claims that you have breakouts of dermatitis herpetiformis from consuming these other grains. I am just contending it is not actually from gluten.
    • Richardo
      I was diagnosed celiac about 15 years ago and followed the usual diet restriction on Wheat, barley and rye and did very well on those restrictions with no problems with dermatitis herpetiformis. 4 years ago I started getting bad rashes on my knees and calves, buttocks, around my waist and my elbows and forearms and hands. It seemed to last about 11/2 to 2 months then clear up for a month and come back  again. I never changed anything in my diet and a dermatologist told me I  must getting  cross contamination, which I knew I wasn't.  Finally after struggling with it all that time, I watched a video by Dr Osborne who sited a study done in England showing that ALL grains (rice, corn etc) contain gluten. I went on a totally grain free diet and have now been 100 percent free of dermatitis herpetiformis for over a year. I tried a test and ate corn flour and it started to come back so I'm off all grains again. Long story I know, but my question is, why is practically EVERY celiac site private or Govt only mentioning the BIG 3 and never mentions other grains as a possible means of contamination? I am free  from a horribly uncomfortable condition now and I know there are others who would be encouraged by this.
    • trents
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