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- trents replied to Dawn Meyers's topic in Related Issues & Disorders6Vaccines
Dawn, yes, once the genes that give the potential for the development of celiac disease are "turned on" so to speak, they will be on for the rest of your life. It is not something that is cured or comes and goes but something that must be managed. Eliminating major sources of gluten from one's diet is pretty straight forward but many don't realize the multitude... -
- Scott Adams replied to BIg Nodge's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Opinions on my test results/symptoms
PS - Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. You mentioned that your bowel movements may be a bit more regular, so this could be another indication of NCGS. -
- Scott Adams replied to Dawn Meyers's topic in Related Issues & Disorders6
Vaccines
You did not mention your age, but depending on how old you are it makes a big difference on how important it is to get a flu vaccine. -
- Scott Adams replied to BIg Nodge's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
Opinions on my test results/symptoms
Your situation is not straightforward, so it’s understandable why you’re seeking clarity. Your elevated thyroid peroxidase antibodies (TPOs) and thyroglobulin levels suggest autoimmune thyroid involvement, possibly Hashimoto’s thyroiditis, even though your thyroid function currently appears normal. The link between autoimmune thyroid disease and celia... -
- Dawn Meyers replied to Dawn Meyers's topic in Related Issues & Disorders6Vaccines
Yes no gluten in my diet. I get so sick that I have to go to the ER for fluids and medicine. I was diagnosed in 2017 but was told I probably have had it my whole life. (Went to Mayo in 2019 to confirm diagnoses and address all other autommune issues ect.) Also intolerance to sugar alcohols and chicory root. Try to eat clean and stay away from processes foods...
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Dawn, yes, once the genes that give the potential for the development of celiac disease are "turned on" so to speak, they will be on for the rest of your life. It is not something that is cured or comes and goes but something that must be managed. Eliminating major sources of gluten from one's diet is pretty straight forward but many don't realize the multitude of places and ways gluten is hidden in the food supply and sneaks its way into our eats. So, eating "lower gluten' is easy but attaining a consistently and truly gluten free state is much harder and requires diligence. I am linking this article that might be of help to you in that regard: -
By Scott Adams · Posted
PS - Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. You mentioned that your bowel movements may be a bit more regular, so this could be another indication of NCGS. -
By Scott Adams · Posted
You did not mention your age, but depending on how old you are it makes a big difference on how important it is to get a flu vaccine. -
By Scott Adams · Posted
Your situation is not straightforward, so it’s understandable why you’re seeking clarity. Your elevated thyroid peroxidase antibodies (TPOs) and thyroglobulin levels suggest autoimmune thyroid involvement, possibly Hashimoto’s thyroiditis, even though your thyroid function currently appears normal. The link between autoimmune thyroid disease and celiac disease is well-documented, but your celiac panel results are inconclusive, with only the deamidated gliadin IgA elevated. As you doctor correctly mentioned, this could indicate non-celiac gluten sensitivity (NCGS) rather than celiac disease, especially since you lack classic GI symptoms. However, the absence of improvement after four months gluten-free is notable. While some non-GI symptoms like fatigue and brain fog can take longer to resolve, the lack of progress raises questions about whether gluten is the primary driver of your symptoms. It might be worth revisiting the possibility of a biopsy (after a gluten challenge) to rule out celiac definitively, or exploring other potential contributors, such as nutrient deficiencies, other autoimmune conditions, or even dysautonomia, given your temperature regulation and energy issues. Have you had your thyroid levels retested since going gluten-free? If not, I would do that before resuming a regular gluten diet. It would be interesting to see if there has been any normalization in those levels while on a gluten-free diet. -
By Dawn Meyers · Posted
Yes no gluten in my diet. I get so sick that I have to go to the ER for fluids and medicine. I was diagnosed in 2017 but was told I probably have had it my whole life. (Went to Mayo in 2019 to confirm diagnoses and address all other autommune issues ect.) Also intolerance to sugar alcohols and chicory root. Try to eat clean and stay away from processes foods.
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