Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fibromyalgia


confused

Recommended Posts

confused Community Regular

How common is it to have this and celiac. Or do some people really have celiac or are labeled with fibro?

paula


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Teacher1958 Apprentice
How common is it to have this and celiac. Or do some people really have celiac or are labeled with fibro?

paula

I was diagnosed with fibromyalgia last October. Eventually, my psychiatrist prescribed Cymbalta, an anti-depressant that contains a serotonin reuptake inhibitor and norepinephrine, which helps to address the pain of fibromyalgia. (This replaced the anti-depressant I had been taking.) It worked very well for the pain, although the fatigue remained.

Fast forward to Spring Break 2007. My family and I were on vacation in San Francisco, and toward the end of our vacation I got really sick and stayed that way for a number of days after I got back. I was showing symptoms of malabsorption, which I won't detail here, but which were very specific and unusual. I googled the symptoms and kept coming up with Celiac Disease/gluten intolerance. I decided to go off of wheat and make an appointment with my doctor. Her conclusion was the same as mine, although she couldn't prove it because I refused to go back on gluten-containing foods.

Anyhow, I have very few symptoms of fibromyalgia anymore. Occasionally, my shoulders and hands will hurt like they used to, although with less intensity. My depression is much better, but I am afraid to ask for a reduction in the dosage of the medication because I've been depressed on numerous occasions in the past. I have more energy and focus than I've ever had in my life, and my ADD symptoms and spaciness have left. I totally believe that the gluten caused the symptoms of my fibromyalgia. I just wish more people would be able to find out what I've learned.

natalie Apprentice
I was diagnosed with fibromyalgia last October. Eventually, my psychiatrist prescribed Cymbalta, an anti-depressant that contains a serotonin reuptake inhibitor and norepinephrine, which helps to address the pain of fibromyalgia. (This replaced the anti-depressant I had been taking.) It worked very well for the pain, although the fatigue remained.

Fast forward to Spring Break 2007. My family and I were on vacation in San Francisco, and toward the end of our vacation I got really sick and stayed that way for a number of days after I got back. I was showing symptoms of malabsorption, which I won't detail here, but which were very specific and unusual. I googled the symptoms and kept coming up with Celiac Disease/gluten intolerance. I decided to go off of wheat and make an appointment with my doctor. Her conclusion was the same as mine, although she couldn't prove it because I refused to go back on gluten-containing foods.

Anyhow, I have very few symptoms of fibromyalgia anymore. Occasionally, my shoulders and hands will hurt like they used to, although with less intensity. My depression is much better, but I am afraid to ask for a reduction in the dosage of the medication because I've been depressed on numerous occasions in the past. I have more energy and focus than I've ever had in my life, and my ADD symptoms and spaciness have left. I totally believe that the gluten caused the symptoms of my fibromyalgia. I just wish more people would be able to find out what I've learned.

How long did it take for your symptoms to got away?

lob6796 Contributor
How common is it to have this and celiac. Or do some people really have celiac or are labeled with fibro?

paula

I was diagnosed as fibromyalgia and a month later while running all of the exclusion tests for a "positive" diagnosis of fibro, the celiac panel came back positive. My doctor feels that after anywhere from a week to a year after I am gluten free, I may not have any lingering symptoms of the fibro. He says that if I *do* have fibromyalgia AND celiac, that once the celiac is under control, the fibro will not be such a detrimental thing - more of an annoyance. I am SO ready for the fatigue and pain and dizziness to go away!

I've heard both - that people can have both disorders, and that people are misdiagnosed as fibro when in fact they have celiac.

natalie Apprentice

I have always wondered if I had fibro, but now I think it may just be the celiac. I have not noticed a huge improvement in my symptoms yet ( 3 weeks gluten-free.)

happygirl Collaborator

FWIW

I was dx'ed with fibro, but I knew I didn't have it.....a few months later, was dx'ed Celiac, went gluten-free, and my symptoms went away. Never had fibro, just had the "symptoms"---that were caused by the gluten reaction.

Generic Apprentice

I was diagnosed with celiac 19 years ago and have been gluten free since. I was diagnosed with fibro 2 years ago. I have my bad and good days, I have tried eliminating foods. Nothing helps, in mean time I eat muscle relaxers and pain pills like tic-tacs at times. Stress causes it to flare up and so does over exerting myself.

I finally got a referal to a rheumtoidologist, since supposedy they know how to "treat" it better. I would just like to figure out what is causing it, not just treat it. I heard there is a clinic that will get to the bottom of what causes fibro/chronic fatigue. But my insurance won't cover it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SunnyDyRain Enthusiast
I was diagnosed with celiac 19 years ago and have been gluten free since. I was diagnosed with fibro 2 years ago. I have my bad and good days, I have tried eliminating foods. Nothing helps, in mean time I eat muscle relaxers and pain pills like tic-tacs at times. Stress causes it to flare up and so does over exerting myself.

I finally got a referal to a rheumtoidologist, since supposedy they know how to "treat" it better. I would just like to figure out what is causing it, not just treat it. I heard there is a clinic that will get to the bottom of what causes fibro/chronic fatigue. But my insurance won't cover it.

My mom has fibro, she read a book, sorry i don't know the name of it, but it tells of food that have anti-infalmatory properties that as you eat them it works with the body to reduce inflamation and help her move better. The more active she stays, the better she feels. I know turkey is one of those things that helps her. She also like the 3 day pain patch, it's the only pain meds that really work.

Judyin Philly Enthusiast

I WAS DX'D WITH FIBRO 12 YEARS AGO.

STARTED TAKING ONLY 25 MG OF ZOLOFT FOR THE PAIN (A SERITONIN SSRI) ...AND DAILY SWIMMING ..THE PAIN LESSENED.

DX'D WITH CELIAC 2 YEARS AGO

ONCE I WENT GLUTEN FREE THE FIBRO SYMPTOMS GREATLY IMPROVED.

THEN 6 MONTHS DELETED SOY AND THEN 5 MONTHS AGO DELETED DAIRY, LACTOSE AND CASEIN.

FRIDAY JUNE 15TH WAS MY 2 YEAR gluten-free ANNIV.

I MUST SAY I FORGET WHAT THE FIBRO WAS LIKE UNLES........I GET AN ACCIDENTAL GLUTENING OR SOY OR DAIRY BY CC.

SOME FOLKS SAY FIBRO ISN'T A REAL DX. THEY SAY IT'S A 'JUNK' DX AND COVERING UP OTHER UN DX'D MEDICAL ISSUES. THIS IS JUST MY PERSONAL HISTORY.

3 WEEKS REALLY ISN'T ENOUGH TIME FOR IT TO BE A VALID JUDGEMENT OF IT NOT WORKING BUT EACH PERSON IS DIFFERENT AND IF YOU DO NOT HAVE OTHER ISSUES...ONLY YOU CAN JUDGE HOW YOUR FEELING OR IF IT'S HELPING..THIS IS JUST MY OPINION.

GOOD LUCK..IT'S SURE WORTH A TRY AND IT MIGHT HELP YOU.

I SURE KNOW GLUTEN, SOY AND DAIRY DO NOT LIKE ME ... :lol:

Teacher1958 Apprentice
How long did it take for your symptoms to got away?

It probably took about 4-6 weeks, I would say. I think most of it was the gluten-free diet, but I can't discount the Cymbalta either. Lots of doctors are using it to treat fibromyalgia.

lob6796 Contributor
It probably took about 4-6 weeks, I would say. I think most of it was the gluten-free diet, but I can't discount the Cymbalta either. Lots of doctors are using it to treat fibromyalgia.

Yes, I post on a fibro board and all of us there who are being actually treated for fibro are on some sort of drug like cymbalta, amitriptyline, etc. They have good sleeping and pain reducing side effects. My doc is continuing my fibro treatment until the symptoms disappear (if they disappear).

lcbannon Apprentice

I was dx'd with fibro 18 years ago. Seems about every 4-5 years I have to change the meds. 1st of this year I started having symptoms of what I searched and found to be Gluten Intolerance. Had food allergy blood work done and enterolab, Tests came back positive, However just had surgery because bladder was fused to colon so that might have helped it along too. I have been totally gluten-free for about 3 months now. A lot of the symtoms since 1st of year are much decreased but not a huge diff on fibro issues - YET- I am hopeful.

little d Enthusiast

What are the symptoms of fibro

donna

confused Community Regular

thank you for all your replies. I was just wodering cause i found out my brother has this disease, i use to think i got celiac from my moms side of the family, but I am now wondering if it came from my biologicals fathers side.

paula

loraleena Contributor

Sometimes fibro is caused by celiac, but it can be caused by other things as well, such as candida overgrowth. Also, some people get fibro symptoms from nightshade veggies. These include eggplant,potatoes, tomatoes, peppers. I feel better not eating these and gluten. I still have flare ups from time to time though.

sixtytwo Apprentice

Almost the same song and dance...........got diagnosed with fibro in December one year and then celiac in the summer of the next year. The fibro is much better due to the fact that I take Mobic and a lot of magnesium with malic acid and probably because I do not eat gluten. I still have flare-ups (pain and weariness) occasonally due to overwork or stress, but it isn't anything like it was in the beginning. The rhumatologist and my general doctor just don't get the connection between the two. Barbara

sixtytwo Apprentice

Almost the same song and dance...........got diagnosed with fibro in December one year and then celiac in the summer of the next year. The fibro is much better due to the fact that I take Mobic and a lot of magnesium with malic acid and probably because I do not eat gluten. I still have flare-ups (pain and weariness) occasonally due to overwork or stress, but it isn't anything like it was in the beginning. The rhumatologist and my general doctor just don't get the connection between the two. Barbara

confused Community Regular

Do you think the drs might just diagnose him with fibro cause he is in the military and know that if it turns out to be celiac then he could be discharged.

paula

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      20

      Hidden Gluten in distilled vinegar

    2. - Mynx replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      20

      Hidden Gluten in distilled vinegar

    3. - Mynx replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      20

      Hidden Gluten in distilled vinegar

    4. - trents replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      20

      Hidden Gluten in distilled vinegar

    5. - Mynx replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      20

      Hidden Gluten in distilled vinegar


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,873
    • Most Online (within 30 mins)
      7,748

    Charli.stoz09
    Newest Member
    Charli.stoz09
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
×
×
  • Create New...