Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Uh Oh


mouth

Recommended Posts

mouth Enthusiast

JUST WANTED TO LET ALL KNOW

I WENT TO BUY THE NEUTROGENA DAILY T/GEL SHAMPOO AND IT IS

NOT gluten-free!!!!!!!!!!!!!!!!!1

SOMEBODY AT NEUTROGENA GOOFED.!!!!!!!!!!!!!!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
JUST WANTED TO LET ALL KNOW

I WENT TO BUY THE NEUTROGENA DAILY T/GEL SHAMPOO AND IT IS

NOT gluten-free!!!!!!!!!!!!!!!!!1

SOMEBODY AT NEUTROGENA GOOFED.!!!!!!!!!!!!!!!!!!

What is the offending ingredient?

blueeyedmanda Community Regular

Please post more information on this. It is not very helpful to anyone right now. It will help everyone if the ingredients were posted.

mouth Enthusiast
What is the offending ingredient?

There is a wheat protien in the daily t/gel formula.

Lynn

mouth Enthusiast
Please post more information on this. It is not very helpful to anyone right now. It will help everyone if the ingredients were posted.

Amanda,

I had written them regarding the Neutrogena T/Gel dandruff therapy shampoo and conditioner. The answer I had received was to get the Daily T/Gel shampoo.

But when I went to buy the Daily T/Gel formula it has wheat protien in it..

lynn

Lisa Mentor

Lynn, why don't you write the company and demand a clarification. Perhaps that might change their listing. We all need to be proactive. I will do it.

rbh Apprentice

Note that Neutrogena's so called "gluten free list" is ONLY a wheat free list -- they haven't checked for the presence of barley, rye and oats. I find it astonishing that a company could be so misleading in their allergen list labeling -- if they don't want to disclose all gluten, that is their choice, but it is misleading to title their list "gluten free" when it is only "wheat free". I had some go rounds with the company about this a number of months ago, then gave up. Some products are tested for rye, barley, oats, so if you call their rep on a particular product, they can tell you if it has only been checked for wheat, or whether it has been checked for all gluten containing ingredients. However, I wouldn't rely on their list for anything.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mouth Enthusiast
Note that Neutrogena's so called "gluten free list" is ONLY a wheat free list -- they haven't checked for the presence of barley, rye and oats. I find it astonishing that a company could be so misleading in their allergen list labeling -- if they don't want to disclose all gluten, that is their choice, but it is misleading to title their list "gluten free" when it is only "wheat free". I had some go rounds with the company about this a number of months ago, then gave up. Some products are tested for rye, barley, oats, so if you call their rep on a particular product, they can tell you if it has only been checked for wheat, or whether it has been checked for all gluten containing ingredients. However, I wouldn't rely on their list for anything.

Hi, thanx for the help. No, it was not a list. It was an actual email and it was incorrect also!!

I am going to have to call them..

Thanx,

lynn

jerseyangel Proficient

I've had conversations in the past week with several different customer service people at Neutrogena.

The first lady actually denied the exsitence of a gluten-free list (!). (In the 2 years I've been on this board, I've only seen it posted about a half dozen times <_< ) She said that her supervisor told her that we had to call about individual products, and they would check on them for us. After hearing my question as to whether their defination of gluten-free meant gluten or just wheat, she put me on "hold" and eventually the call was disconnected....

The gentleman I spoke to after this was very nice. He said that there "was" a gluten-free list (but he used a tone that sounded like it was something he was not supposed to tell me about), and that he would email it to me (he never did). He told me that they test for gluten "as in wheat, oats, barley and rye."

A day or two later, I called and asked about 2 products that I wanted to try. One was deemed gluten-free, and one wheat free. I asked this lady about gluten vs. wheat and she said that not all of their products were checked for gluten--some are, but some are just tested for wheat. I asked her if any gluten ingredients, such as oats, would be clearly listed and she said that they would.

Each conversation yielded slightly different information. I would suggest calling them about any product that you are considering and talk to them about the ingredients.

Gentleheart Enthusiast

I have no experience with Neutrogena. But I was just wondering. Is there some reason to not just move on to other companies? Unless they have something really special over everyone else's products, they honestly sound like they don't need/want our business. They don't sound very professional.

mouth Enthusiast
I have no experience with Neutrogena. But I was just wondering. Is there some reason to not just move on to other companies? Unless they have something really special over everyone else's products, they honestly sound like they don't need/want our business. They don't sound very professional.

Know what? I think you are right. I will just have to look for something else to use on her. Thats is all. Maybe I will write a "real" letter and let them know about their "poor" customer service in helping people that "really" need their help.

Crystalkd Contributor

What I don't understand is why the whole thing is so darn hard! The way I look at it EVERYONE should havelists available to consumers concerning major allergy issues. It is not as isolated as people seem to think it is. It's hard enough for me to shop for food since I don't understand all of the hidden gluten yet. I haven't even started going through my make up and other things yet. I find this all VERY time consuming, frustrating, and anger producing. I thought with having Cerebral Palsy I was treeted like a second class citizen but this just makes it worse in some respects!

blueeyedmanda Community Regular
What I don't understand is why the whole thing is so darn hard! The way I look at it EVERYONE should havelists available to consumers concerning major allergy issues. It is not as isolated as people seem to think it is. It's hard enough for me to shop for food since I don't understand all of the hidden gluten yet. I haven't even started going through my make up and other things yet. I find this all VERY time consuming, frustrating, and anger producing. I thought with having Cerebral Palsy I was treeted like a second class citizen but this just makes it worse in some respects!

Crystal, I really liked your response. It is true, they should provide lists about everything. :)

Crystalkd Contributor
Crystal, I really liked your response. It is true, they should provide lists about everything. :)

It's just so hard! I know I'm still new to everything but I mean sheesh! I'm southern. I love food and it's such a darn chore to go to the store now! I dread it!!!! It would be easier if lists were readily available. I get tired of peoples attitude already! It's not like we do this because we WANT to. This stuff really makes us sick. It's just as serious as Dieabetes! I'll get off the soap box now! (Sorry I'm in the anger stage right now!) I'm not angry at my diease or my diet change. I'm very thankful to have an answer. I'm angry at others in general for making it so hard or not caring at all. Even when we can find something we can eat we have to worry about CC all the time. EEERRRRR

mouth Enthusiast
Crystal, I really liked your response. It is true, they should provide lists about everything. :)

Dear Crystal,

Sorry to hear about the CP, any way you are right, they should have lists. We are one of the few countries I found out that do not test for this disease at birth. I saw Dr. Green speak at a gluten-free fair in April, and Alot of countries test for it when children are born. And, he was telling us that if you go to some other countries, there are gluten-free menues right there with the regular menus, and in some fast food type restaurants, they have them right up on the wall and you don't even need to ask. Just order.

Is that cool or what?

Good Luck, and BTW if you have any questions, just ask them here and I guarantee 9 out ot 10, you will get an answer. I wish I could send you copies of the lists my daughters doctors gave me of safe and unsafe foods and additives. It helps me so much.

Agan, good luck.

you have my email if you have questions.

YOU SHOULD LOOK FOR A CELIAC GROUP IN YOUR CITY.

ASK IN THESE BOARDS. LOOK FOR THE BOARD THAT MENTIONS CELIAC GROUPS.

LYNN

Crystalkd Contributor
Dear Crystal,

Sorry to hear about the CP, any way you are right, they should have lists. We are one of the few countries I found out that do not test for this disease at birth. I saw Dr. Green speak at a gluten-free fair in April, and Alot of countries test for it when children are born. And, he was telling us that if you go to some other countries, there are gluten-free menues right there with the regular menus, and in some fast food type restaurants, they have them right up on the wall and you don't even need to ask. Just order.

Is that cool or what?

Good Luck, and BTW if you have any questions, just ask them here and I guarantee 9 out ot 10, you will get an answer. I wish I could send you copies of the lists my daughters doctors gave me of safe and unsafe foods and additives. It helps me so much.

Agan, good luck.

you have my email if you have questions.

YOU SHOULD LOOK FOR A CELIAC GROUP IN YOUR CITY.

ASK IN THESE BOARDS. LOOK FOR THE BOARD THAT MENTIONS CELIAC GROUPS.

LYNN

There is a support group here but they usually meet for dinner once a month and I don't drive because of the CP so there are places I can't get to. I'll figure everything out it just takes time. I go see my GI in the morning so I'll see what he has to help but this is the one who doesn't think I have celiac disease.

mouth Enthusiast

Dear Crystal:

Were you looking for makeup? If so, Mary Kay has some gluten-free products, but the following has alot. The name of the company is NU SKIN. web: www.nuskinusa.com or you can Call Kathy at 757-206-7140 her web is www.executive-concepts.com Tell her that somebody gave you the info from the Gluten Free Fair at SUNY FARMINGDALE COLLEGE IN NY. They have tons of gluten-free products. I am ordering lipstick for my daughter, even some for myself because I really liked some of the colors they have.

Good luck. Lynn

Crystalkd Contributor

Right now I'm looking at everything. I just bought gluten-free living for dummies last night. I haven't read much of it yet but should have some time this weekend. I just need to gather things up and start call manufactures. My problem is finding time since I'm out of the house from 8am to 7pm and can't really get things done at work. Plus now that I'm feeling better I can resume my weekend actvites which means alot of time I'm on the go for 7 to 14 days without a break. I'm just thankful I'm healthy enough and getting comfortable enough with the diet to go further away from my own kitchen!!! (I did however make a booboo by not asking the cook at Waffle House to clean off the grill before my food was made. I'm still recovering from that one!!!) Thank you for the encouragement. Right now I'm worrying about food and as the other things need to be replaced or as I can afford to replace them I will. I've decided to take things one step at a time and not to overly stress myself. Next on the list is shampoo and conditioner. (I don't wear makeup daily and have no need to wear it for the next couple of weeks so I'll worry about that once I get all the bills payed.lol)

mouth Enthusiast
Right now I'm looking at everything. I just bought gluten-free living for dummies last night. I haven't read much of it yet but should have some time this weekend. I just need to gather things up and start call manufactures. My problem is finding time since I'm out of the house from 8am to 7pm and can't really get things done at work. Plus now that I'm feeling better I can resume my weekend actvites which means alot of time I'm on the go for 7 to 14 days without a break. I'm just thankful I'm healthy enough and getting comfortable enough with the diet to go further away from my own kitchen!!! (I did however make a booboo by not asking the cook at Waffle House to clean off the grill before my food was made. I'm still recovering from that one!!!) Thank you for the encouragement. Right now I'm worrying about food and as the other things need to be replaced or as I can afford to replace them I will. I've decided to take things one step at a time and not to overly stress myself. Next on the list is shampoo and conditioner. (I don't wear makeup daily and have no need to wear it for the next couple of weeks so I'll worry about that once I get all the bills payed.lol)

Dear Crystal,

Feel free to tap my brain. And of course anybody else's here. Any question you have can be answered. Ok for Soap, Tone is gluten-free, right now, dove is gluten-free, Alot of people say they use Aussie for shampoo. I also let my daughter use it. Where do you live? Or at least what state? That helps also. You can put up a message stating where you live and can anybody help you for shopping in the area you live in. You may have to travel to shop. It stinks, I know, but to get what you need is what you have to do. You also have to do the change slowly, dont let anybody fool you about doing it all at once. The quicker the better, but its very hard to do all at once. Cookies? Pamela's, enjoy life, pasta? My daughter likes the Tinkydaya. It is made of Stone ground Rice and water. That is all. Land o Lakes butter is gluten-free. Skippy if gluten-free. Welches jelly. If you can not call a company, email them. Most will answer promptly. If you want, send me a letter here, with your email and i will send you any info that i have. MOST Orida fries are gluten-free, Some Friendlies Ice Creams, Some Edys, and alot of companies will also send you coupons if you ask for them and they have them. Columbo yougart, Yo Crunch w/ M& M's and reeses pieces are the gluten-free. The other Yo Crunch are not. NO Nestles'. Hersheys choc syrup is gluten-free, plain hersheys choc is gluten-free. Know what? Email me and I will send all info I have. Ok? Good Luck. OH as summer is here, I am told that Coppertone is gluten-free....

Good Luck,

sincerely,

Lynn :D

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,248
    • Most Online (within 30 mins)
      7,748

    Rosann
    Newest Member
    Rosann
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      There are thirteen essential vitamins:  eight B vitamins, four fat soluble vitamins, and Vitamin C.  They all work together.   If you are deficient in one, you are probably low in the other dozen.  Celiac Disease affects the absorption of all the vitamins, and the dozen or so essential minerals, as well.  Cobalamine Vitamin B12, needs Folate B9 and Pyridoxine B6 to function properly.  Pyridoxine B6 needs Riboflavin B2.  Vitamin C is needed to interact with B12 as well.  Thiamine B1 and Niacin B3 are also needed to provide the energy for these vitamins to function properly.  If one is also low in Folate and Pyridoxine, B12 Cobalamine is not going to be able to function properly and the body doesn't bother to absorb it.   Vitamin D is safe even in high doses.  Vitamin D3 should be supplemented.  Vitamin D2 is not as well utilized because it's synthetic, not a form the body can utilize easily.  Vitamin D must be activated by Thiamine Vitamin B1.  Insufficient Thiamine B1 will make one feel "dopey".  Thiamine is needed for brain function.  The brain uses as much energy just thinking as your muscles do while running a marathon.   Multivitamins do not contain sufficient amounts of essential vitamins to correct nutritional deficiencies.  Supplementing with ALL eight B vitamins, extra Thiamine (don't use the form thiamine mononitrate because it's not absorbed nor utilized well), Vitamin C and the four fat soluble vitamins will be more beneficial than just supplementing one or two vitamins by themselves. With sufficient amounts of essential vitamins, the immune system gets regulated and becomes less reactive to other things like pollen, molds and animal dander.  Sleep apnea is frequently found in Thiamine insufficiency.  The eight essential B vitamins are water soluble and easily excreted if not needed.  The B vitamins all work together.  Supplement them together. Thiamine deficiency disorders: a clinical perspective https://pubmed.ncbi.nlm.nih.gov/33305487/  
    • Jane07
      i have been gluten free for about 2 yrs i had a ttg recently done my blood test was .7 higher then last time. i must be doing something wrong im still not in the normal range. What advice would anyone give?
    • Michelle Amirault-Packard
      He should definitely have his vitamin D and Vitamin B12 checked.  I have celiac and i always felt tired, sometimes i described it as dopy.My vitamin D is always low at times extremely low which can affect you. But  I also did some research and contacted my doctor to see if she checked my Vitamin B12 and She said she didn’t check my vitamin B-12 because a wasn’t Anemic and the normal protocol is , if you are not Anemic they don’t test for B-12.  She had no problem doing the test for me and it came back super super deficient . So I was given a shot of B12 once a week for 4 weeks and I give myself 1 shot intramuscular once a month now for 18 years. Once your B12 is low it can take a long time to bring it back up and sustain it. I think it took about 6 months to get a decent number and about a year to get it right. I do get my Vitamin D checked but not yearly more like every other year because it is a more expensive test and I tend to always be low. I do take a vitamin D supplement but I would talk to your doctor before taking a supplement to make sure you don’t take too much especially if you are already taking a multivitamin. Because too much D can also have some bad side effects.  Celiacs tend to be able to take a higher dose due to our digestive and malabsorption issues but always talk to your doctor before taking. Other things could be making him feel extremely tired  like new allergies like pollens, animals, molds etc.. sleep apnea is a huge one( cause extreme fatigue) and some medications. Just other things he can have checked! Good luck 
    • knitty kitty
      I suggest you eliminate dairy from your son's diet next.  Cow's milk protein, Casein, can trigger tTg IgA antibody production, the same as gluten, because casein contains segments of proteins that resemble gluten protein segments.   Mucosal reactivity to cow's milk protein in coeliac disease https://pmc.ncbi.nlm.nih.gov/articles/PMC1810502/ I cannot consume dairy products.  Some people find they can tolerate A2 dairy without a reaction. Corn is another frequently hard to tolerate food because the protein zein in corn also resembles the protein structure of gluten.   Do research in Dr. Derrick Lonsdale and TTFD thiamine.  Taking TTFD really can make a dramatic difference, speaking from personal experience. https://hormonesmatter.com/energy-deficiency-asd/ Keep us posted on your progress!
    • Scott Adams
      It sounds like you're doing everything right with your gluten-free diet, yet still experiencing significant discomfort, which must be frustrating. Since your stool sample came back normal but symptoms persist, pushing for further investigation—like a colonoscopy or biopsy—is a reasonable next step. You might also want to discuss the possibility of additional conditions, such as IBS, microscopic colitis, or other inflammatory issues, with your doctor. Tracking your symptoms, diet, and triggers in detail could help identify patterns. Don’t hesitate to advocate for yourself—if your current doctor isn’t addressing your concerns, seeking a second opinion or a referral to a gastroenterologist could be beneficial. You’re right to seek answers, and I hope you find relief soon. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...