Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need To Vent


Crystalkd

Recommended Posts

Crystalkd Contributor

Sorry guys. I need to vent for a second. One of my best friends is getting married on Saturday. I'm maid of honor and let them know of the gluten-free diet as soon as I did. The reception is buffet and I can't seem to get them to understand that even though there will be grilled chicken and salad there that cc is just as bad. Plus there are two brunches and the rehersal dinner. The RD is at a chineiess buffet which REALLY concerns me!!! If I can get through this weekend with out getting sick it will be great. I didn't flip out like I would have. I'm getting better at dealing with peoples lack of understanding. It's still frustrating especially since I feel great today and don't want to be feeling like crap during my friends wedding. I can't bring my own food to the reception. (They have a rule against that.) It seems like now that I'm on the diet I have to eat more often and don't eat as much at one sitting so it's not like I can eat a big meal before every event this weekend. I'll figure it out but I needed to vent to people that unstand and maybe get some tips on how to make it through this weekend without getting sick.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



abigail Apprentice

thats what I just made a post about!

rules about no bringing food??????? what its that??

well make an exeption, WE HAVE SPECIAL NEEDS!!!!!!!!

this its not like a regular diet to loose weight!!!

it there a law that protect us an give us that "privilege"??

Abismart

EBsMom Apprentice
I'll figure it out but I needed to vent to people that unstand and maybe get some tips on how to make it through this weekend without getting sick.

The first thing that popped into my mind is that you can only "manage" the weekend if you have your own food. Can you pack some goodies for yourself - bite sized ones, such as nuts, dried fruit, Lara Bars....whatever you like and can eat. If you can nosh as needed, then at least you can keep your energy level up, keep yourself from getting too hungry, and allow yourself to push the party food around on your plate (pretend to eat) if you don't feel absolutely safe eating what is offered. Regarding the reception - truly, I'd ignore their "rule" and at least have a few bite sized snacks in your purse. Not eating isn't an option, as you have to keep your energy up; depending totally on the food that they serve might not be an option either. You can't be a good maid of honor if you're sick, so I think you have to do whatever is necessary to keep yourself safe. Good luck!!!

Rho

Crystalkd Contributor

I'm trying to figure it out. I've got Coco loco bars,the enviro kids snack bars, and rice cakes. I was going to chop up some veggies and take them with me. I will most likely go to the store in the morning to get some other things. Any ideas? Are all nuts safe (Part of the problem is I'm still trying to figure out the diet too. My mom said that we should be the first to eat so I should be good. I might get her to bring some stuff in my nephews bag since she's going to be there too.

Eriella Explorer

Nuts.. as in just plain nuts... are fine. Some of the flavoring makes them iffy. I also normally get fruit leathers (they have them at Target with another name like dried fruit strips), dried fruit, and cheese sticks.

Ellsabeta Newbie
Sorry guys. I need to vent for a second. One of my best friends is getting married on Saturday. I'm maid of honor and let them know of the gluten-free diet as soon as I did. The reception is buffet and I can't seem to get them to understand that even though there will be grilled chicken and salad there that cc is just as bad. Plus there are two brunches and the rehersal dinner. The RD is at a chineiess buffet which REALLY concerns me!!! If I can get through this weekend with out getting sick it will be great. I didn't flip out like I would have. I'm getting better at dealing with peoples lack of understanding. It's still frustrating especially since I feel great today and don't want to be feeling like crap during my friends wedding. I can't bring my own food to the reception. (They have a rule against that.) It seems like now that I'm on the diet I have to eat more often and don't eat as much at one sitting so it's not like I can eat a big meal before every event this weekend. I'll figure it out but I needed to vent to people that unstand and maybe get some tips on how to make it through this weekend without getting sick.

Oh, gosh. Some people just don't understand and it's unfortunate. I'm sorry this is happening to you.

The "can't bring your own food" thing is ridiculous! Whenever I'm in a situation where I know I can't eat the food before me, I usually pack a little cooler and keep it in my car (although I'm guessing you might not have your car with you). Perhaps inbetween the wedding and the rehearsal you can sneak out? I know as the maid of honor, this could be really difficult (I've been there before), so the snacks in your purse might be the best bet. But seriously, what kind of a caterer would have that rule? I'm surprised they get business.

After the wedding, I would most definately have a talk, or write a stern letter to the business. Perhaps even drop their name on this board -- that might get them to rethink their policies. :)

Let us know how it goes.

SunnyDyRain Enthusiast

perhaps you can ask the caterer to fix you a plate of grilled chicken and what ever else is safe before letting the crowd loose on it? Have you talked to the caterer at all to see what they suggest? They are paying for you to eat, they have to at least TRY!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Crystalkd Contributor

It's along story and I'll explain more once everything is over. Some of the issue has to do with the short notice and the mother of the bride. I picked up a couple of little things this morning. I know my mom hassome gluten-free stuff at her house as well so I might get her to bring something or get her to carry a few things in her bag. Thank you guys for the support!!! It helps! It feels like I don't get much from anyone right now.

Ursa Major Collaborator

One of my daughters got married almost two weeks ago (tomorrow it will be two weeks). The caterer made sure there was safe food for me, and I brought my own dessert and my own salad dressing. Two of my grandchildren ate my dessert too, as they are obviously gluten intolerant as well.

Unless they are prepared to make sure you are safe, they can't expect you to abide by their rules. If the bride has a problem with that, ask her if she would prefer you bringing your own food, or you vomiting on her dress, or rushing to the bathroom in the middle of the ceremony!

Mango04 Enthusiast

I know it's annoying, and I've vented about similair situations, but here are my two cents (for whatever they're worth :rolleyes: ):

When you say you can't get them to understand, do you mean you can't get the bride to understand, or you can't get the wedding caterer to understand?

I've been in multiple weddings, and it's really best to not ever ever ever say anything about your special dietary needs to the bride, or anyone in the bride's family responsible for throwing the wedding. They won't understand, and with everything else they have going on, they just don't have time to try and understand. It's hard enough for us to understand our own dietary needs, and I think life is just easier if we don't actually expect others to accomodate us. (It does suck sometimes, and sometimes we remain hungry while others are eating, but if you prepare ahead of time and have your own on hand, it's not that bad :))

If you haven't already, it might be a good idea to contact the people responsible for preparing the food (contact the place where they're having the recpetion and the location of the rehersal dinner). If you explain the situation, the chefs involved should definitely be able to prepare you plain, safe chicken and vegetables. At the Chinese place, they should be able to prepare you plain chicken and steamed veggies w/out any sauce.

If you already did that and nobody can help you, or even if they can help you, you really should eat something before each event and have something edible in your purse at all times (no one has to know you have it :)) Good luck. Hope it works out.

tarnalberry Community Regular

if you have to sneak your own food into the wedding, do it. don't get caught, of course, but don't pass out from lack of food either. they've put you in a tough spot. it's quite possible that making something safe (including from CC) for you at this point isn't going to happen, but in that case, you've got to have your own food.

Phyllis28 Apprentice

I ignore the "No Food Rule" on a regular basis. I have also found that I need to deal with restaurants and caterers myself. Pull out the American Disabilities Act if you have to. Bringing your own food is a reasonable accomadation.

Guest lizajane

I don't think you should be rude about it and say you are going to vomit, or be sick all day, etc. I have been going thorugh this for 22 years--weddings, family dinners, funerals with meals, political events with black tie dinners, breakfasts with vice presidents of Hallmark, Heads of neurosurgery of hospitals in Kansas City, players for Chiefs, etc. Its O.K. to eat before the main event!! It's O.K. to bring your own food to snack on so your blood sugar level doesn't drop. It's O.K. to ask the chef or party planner to see if something could be fixed for you and perhaps set aside until your turn to be served. Nobody but the person that is with you needs to know what you are doing to protect yourself, and the person you are there to honor is none the wiser. Perhaps some day you will be able to tell them, but not with grandious intentions--just some insight for people to realize what we live with and will do for them for their special day!

THIS IS A HORRIBLE DISEASE TO LIVE WITH ON A DAILY BASIS, BUT IT DOESN'T GET ANY EASIER, SO TAKE EACH ONE OF THESE TIMES AS A MENTAL CHALLENGE TO FEEDING YOURSELF! Sometimes they work, and sometimes they don't!! My mother never understood my disease and always ordered pizza for dinner on the nights we drove all day to visit her! I used to get SO mad that she couldn't even remember that I couldn't have pizza--my favorite food!! Then the end of Feb, 2007, she had a major stroke and can't order me pizza, and she can't have it either. I sit with her while she tries to eat a bland diet, and regrete the anger that I had over an 84 yr old woman with 9 kids who couldn't remember that I couldn't eat pizza-was it all about me? Did my whole family have to forget having pizza because I couldn't? Is it true that what goes around comes around and that's why she is on her horrible diet?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      36

      Blood results

    2. - knitty kitty replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      Confused about HLA-DQ Celiac gene test result

    3. - Scott Adams replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      9

      Pain in the right side of abdomen

    4. - Scott Adams replied to science enthusiast Christi's topic in Coping with Celiac Disease
      2

      Sugar intolerance 10 years into gluten-free diet

    5. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,465
    • Most Online (within 30 mins)
      7,748

    Dferares
    Newest Member
    Dferares
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Heatherisle
      She is waiting to get bloods done to check for various things including bone profile. As far as I know she does a lot of cooking from scratch, lots of veg, chicken. She’s never been a fan of processed foods like cold ham but does like bacon and will also buy gluten free sausages. Shares a flat with her friend who is aware of her coeliac. As far as I’m aware they’re very careful about cross contamination but I know it’s possible it happens from time to time
    • knitty kitty
      @Heatherisle, Has your daughter been checked for vitamin and mineral deficiencies?   A combination of Thiamine Hydrochloride (or Benfotiamine) and B12 and Pyridoxine B6 relieves pain as well as over-the-counter pain relievers.  What sort of food does she eat on the GFD?  Many gluten free processed foods?
    • knitty kitty
      Your doctor is incorrect! Your positive DQB1*02 is all you need to develop Celiac disease.  Just having one copy is sufficient to develop Celiac.   Reference: Carrier frequency of HLA-DQB1*02 allele in patients affected with celiac disease: A systematic review assessing the potential rationale of a targeted allelic genotyping as a first-line screening "...importantly, a comparable risk of celiac disease development was present in individuals carrying a double dose of HLA-DQB1*02 alleles, no matter the paired HLA-DQA1 alleles." And... "If we could consider a mass screening looking for the carrier status of HLA-DQB1*02 only, we may identify 95% of celiac disease predisposed patients and, concomitantly, rule out (with no more than a 5% error) the lifetime risk of disease in 60%-70% of the general population: These non-predisposed individuals should never receive the serological screening, unless any consistent clinical symptoms appear at some point of the existence without any other explanation." https://pmc.ncbi.nlm.nih.gov/articles/PMC7109277/ Classical celiac disease is more frequent with a double dose of HLA-DQB1*02: A systematic review with meta-analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC6375622/ Also, the Malabsorption of Celiac can cause low B vitamins (and minerals) that are related to poor oral health. The Role of Vitamin B Complex in Periodontal Disease: A Systematic Review Examining Supplementation Outcomes, Age Differences in Children and Adults, and Aesthetic Changes https://pubmed.ncbi.nlm.nih.gov/40218924/ Best wishes for your Celiac journey!
    • Scott Adams
      I can see why she’s worried, especially with a history of ovarian cysts, but it’s also very common for healing after a celiac diagnosis to take time. Even when someone is doing their best gluten-free, it can take months for inflammation to calm down, and bloating, abdominal pressure, and even back discomfort can flare during the adjustment period. The upcoming dietitian visit is a great step, since hidden gluten exposure or nutritional gaps can sometimes contribute to ongoing symptoms. That said, if the pain is persistent, worsening, or feels similar to her prior cyst symptoms, it’s reasonable to mention that to her doctor for peace of mind. It’s not uncommon for multiple things to overlap, so checking both GI and gynecologic angles can help rule things out and reduce anxiety while her body continues healing. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.    
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.