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Hi I'm The New Aussie On The Block

Subhangi

By Subhangi
in Coping with Celiac Disease

Recommended Posts

Subhangi Newbie
Subhangi
Posted

Hi, I'm Subhangi from Australia. Just thrilled to be part of a forum full of people with the same symptoms as me. Been suffering alone for years. Only eye rolls from all the healthy family and friends whenever I complained. This is a b---- of an illness. Love you all and thanks for the gold mine of info. I guess I am in denial. Just changing my diet has not been enough. I was diagnosed 2 yrs ago, and still suffering everything under the sun....luv :P

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Guest dreams25
Guest dreams25
Posted

Hi Subhangi,

Going gluten free is certainly not an easy task, though getting easier with a lot of products going gluten free, but its the hidden little things you find gluten in that im finding more of a problem ..

Joining the Coeliac Society, has helped filling me in on products that are safe to eat.

Found out recently that the choc topping on coffee cappicino especially is not always gluten free.. so that was a hidden one for me i didn't even think of... but feel free to email me directly if you like to find out anything.. I have been gluten free for nearly 12 months and my cholestrol and health has improved.. but its a constant battle with food.

My email addy is noreenbriggs@optusnet.com.au if you want to me email me and just vent tis fine..

Good to see another aussie on here...

Thanks .. dreams25

Subhangi Newbie
Subhangi
Posted
  • Author
Hi Subhangi,

Going gluten free is certainly not an easy task, though getting easier with a lot of products going gluten free, but its the hidden little things you find gluten in that im finding more of a problem ..

Joining the Coeliac Society, has helped filling me in on products that are safe to eat.

Found out recently that the choc topping on coffee cappicino especially is not always gluten free.. so that was a hidden one for me i didn't even think of... but feel free to email me directly if you like to find out anything.. I have been gluten free for nearly 12 months and my cholestrol and health has improved.. but its a constant battle with food.

My email addy is noreenbriggs@optusnet.com.au if you want to me email me and just vent tis fine..

Good to see another aussie on here...

Thanks .. dreams25

Hi Noreen,Nice to talk to u ;)

Yep, seem to get contaminated everytime I turn around. I'm vegetarian anyway should be healthy but just feel like I'm dying constantly because of this disease. It is so incideous(probably spelt wrong but had to use that word as it is appropriate)I'm curious, diet coke is my weakness, anyone heard anything bad about gluten and coke?

Bye, Subhangi xx

Rosewynde Rookie
Rosewynde
Posted

Hello there, sorry your still having relapses. It's definitely not an easy diet but better than feeling awful 100% of the time. I think I prefer having to be on a diet than medicine for life ; D

I read somewhere that all Pepsi and Coke products are ok. Do a forum search on Coke.

mikeanway Newbie
mikeanway
Posted
Hi Noreen,Nice to talk to u ;)

Yep, seem to get contaminated everytime I turn around. I'm vegetarian anyway should be healthy but just feel like I'm dying constantly because of this disease. It is so incideous(probably spelt wrong but had to use that word as it is appropriate)I'm curious, diet coke is my weakness, anyone heard anything bad about gluten and coke?

Bye, Subhangi xx

Hi Subhangi,

I drink Coke a bit and I have no problems. I hate saying that because this disease affects everyone differently,and even if you aren't having symptoms,doesn't mean it's gluten free,you still need to verify. The best thing to do is call the manufacturer. They all have 800 numbers. I know it sounds like a pain,but you would be sure and it would ease your mind.

Here is a link to mainstream products that are gluten free on this site. :D

https://www.celiac.com/st_main.html?p_catid=12

Mike

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    • Levi
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By Levi · Posted

      When I was first Dg’d I researched like mad. One thing I remember from then, which may have changed with advancement in medical science, is that Coeliac is a first generation disease which means either you or your husband need be Coeliac for your daughter to have inherited it. Far as I know, and I’m not a scientist just a victim, the amount of gluten (wheat, rye, or barley) one consumes does not cause a person to contract Coeliac Disease. So if neither of you as her biological parents have Coeliac then your daughter cannot pass any blame should she contract this horrific disease.     It’s humbling, and sometimes I believe GOD allows such as these autoimmune diseases for those who need it most. 
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      Oats gluten free?

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      The body reacts to all grain proteins in all grains from my observation. Call it Gluten, Gliadin, which is what they test for commonly, however, I am Celiac and react with dermatitis herpetiformis to corn and the glutenous protein in it is called Zein. They only test for Gliadin. Testing needs to be updated in my opinion. It only take a small parts per million to continuously create systemic inflammation. This is not productive to healing and all grains contain some for gluten like substance. It's called Molecular Mimicry.
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      Thank you for sharing your perspective. It's true that many grains contain proteins that are technically classified as "glutens" (like zein in corn and orzenin in rice), but it's important to clarify that these proteins are not the same as the gluten found in wheat, barley, and rye, which contains gliadin and glutenin. These specific proteins are the ones that trigger an autoimmune response in people with celiac disease. For individuals with celiac disease, the primary concern is avoiding gluten from wheat, barley, and rye, as these are the grains scientifically proven to cause damage to the small intestine. While some people with celiac disease or non-celiac gluten sensitivity may also react to other grains, this is not universal and varies from person to person. For most people with celiac disease, grains like corn and rice are considered safe and are widely recommended as part of a gluten-free diet. That said, you raise an important point about systemic inflammation and individual tolerance. Some people may indeed have sensitivities to other grains or find that eliminating additional grains helps them feel better. However, it’s crucial to differentiate between celiac disease, which requires strict avoidance of wheat, barley, and rye, and other conditions or sensitivities that may involve broader dietary restrictions.
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      Oats gluten free?

      By trents · Posted

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      Oats gluten free?

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      In fact ALL grains contain different forms of gluten that go by different names. Corn contains Zein and Rice contains Orzenin. We all need to realize that a very small amount of any of these grains can cause continued systemic inflammation which is not optimal for allowing the body to heal itself.  
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